Lady of Lyme
  • Blog
  • Shop
  • About
  • Products I Love
    • Supplements & Meds
    • Makeup & Skincare
    • Food & Diet
    • Apps & Organization
    • Gift Guides
  • Resources
    • Symptoms/Resources
    • Lyme Vocabulary
    • Printables
    • Books & Reading
  • Features
  • Testing
  • Contact
  • Treatment Info
    • DesBio Treatment Facts
    • My Treatments
    • Treatment Blog

Things I Have Learned

11/9/2011

4 Comments

 
We as humans are constantly learning things. Whether its lessons in life, or simply knowledge, we are always growing and adapting to changing ways. It's safe to say this disease has taught me a lot about people and it's taught me a lot about the kind of person I want to be.

Just recently I contacted my doctor to get in touch with some of his cured Lyme patients who might speak to me of their experience. Considering this is completely an unknown venture I'm entering, I thought someone might share with me how they got their life back. To my shock & surprise none of the contacted patients would talk. I get that once you get cured of Lyme you want to live your life and not talk about it again (for some people). Never the less, it was a major let down.

This brings me to my point. I vow to talk about my good times, I vow to talk about my bad times, and most of all I vow to be an advocate for Lyme disease for the rest of my life. This journey is one that shapes you as a human being, and as much as people may want to forget those years ever happened, it simply isn't possible to erase it. My biggest hope is that once I'm better I can be a cheerleader to those who feel stuck or who feel scared to start treatment. I will always be able to relate to that feeling & I won't become "too good" to speak to anyone about it. I want to be an open book & an honest person on this blog mostly for the fact that I want everyone to be real with me. If its going to hurt, tell me. Don't sugar coat it, don't say 'maybe.' I want the truth & I will give the truth back.

My second point about learning things is that it's important for people to learn facts & truth about Lyme. Being uneducated about this disease is the top reason it's brushed under the rug in the medical field. That, in turn, leaves diagnosed patients with lots of questions & no way of finding answers. Their loved ones can't get answers either, so it becomes this unspoken subject matter. I'm going to address a new topic almost daily so for those of you curious, or if you are someone currently battling I hope as I learn that we can learn together.

My third & final point, & the thing I've learned about life is that you can't be scared of anything. As I prepare myself & my body for treatment I had to ask what I was truly afraid of. I'm a tough cookie when it comes to pain, so am I really scared of the treatment itself, or maybe it's the fear of what this experience will do to life in general. They say chronic disease shows you who really belongs in your life & who sticks by you. But do I really want to know? I'd like to think everyone who loves me will be in my life a year from now being completely supportive, but the reality is that rarely happens. More-so, no one wants to have honest conversation. It's almost like Lyme is a taboo subject that people dance around. When they ask "how do you feel?" they don't want the true answer, they want the quick answer. But if you are reading this & you can relate, I have a wonderful piece of advice I read today that gave me peace.

"We are never far from where we need to be. God would not have brought us to this place in life if He didn't have something for us to receive."

So in conclusion I've handed over my fears, whatever they may be, to God. Is it terrifying to know you might lose people you love? Yes. Is it terrifying to know your body will be fighting the toughest fight of your life? Yes. But you can not fear the future because if you are at this point in your life then God brought you here. The people who are still there when you go through hell & back are the people who will love you forever. And to learn such a valuable lesson at the age of 23 is something I'm extremely lucky for.

Xoxo,

Christina


4 Comments
Lourdes Doty
11/13/2015 06:45:52 pm

I'm so glad you started this blog Christina! Love your spirit and style of writing. You hit the nail right on the head about others reactions to being this sick. I'm working my protocol on my own. No doctor other than my chiropractor. And am doing mostly Stephen Buhner's protocol. Which is mainly herbal. Finding a purpose for our journey is Very important! I'm 60 and have have lyme for decades. But was only diagnosed this last spring.
Thanks for all you are doing!

Reply
Christina
12/3/2015 12:16:17 am

Aww thank you so much Lourdes, I really appreciate all your kind words so much! I have found that often times you have to take the wheels and do your own research with this disease. I have actually done a lot of my own research and made a lot of my own decisions and you really truly have to because you know your body better than any other doctor can or will. God bless you!

Reply
Ansley Cliff
10/28/2016 04:26:29 pm

I'm curious if you ever got to the bottom of why once in remission people don't want to talk about it? this part baffles me.. Just starting to read your blog.

Reply
Christina
10/31/2016 05:56:45 pm

I haven't! It was really very strange, perhaps they didn't want to keep dealing with Lyme or other patients when they felt better? Who knows! But it was a really frustrating moment for sure!

Reply



Leave a Reply.

    Enter your email address to subscribe to new posts:


    Follow @ladyoflyme


    Follow Lady Of Lyme (@ladyoflyme)

    10.2k Followers, 618 Following, 51 Posts - Follow (@ladyoflyme)


    Categories

    All
    Crohn's
    Educational Posts & Info
    Gift Guides
    Giveaways & FREE Resources
    Health/Life Updates
    Interviews & Features
    Lyme Awareness
    Quiz & Polls
    Reflective Thoughts
    Things About Me

    RSS Feed

    Archives

    March 2022
    March 2021
    January 2021
    December 2020
    September 2020
    July 2020
    June 2020
    April 2020
    November 2019
    October 2019
    September 2019
    July 2019
    June 2019
    May 2019
    April 2019
    February 2019
    November 2018
    October 2018
    September 2018
    August 2018
    July 2018
    June 2018
    April 2018
    March 2018
    January 2018
    December 2017
    November 2017
    October 2017
    August 2017
    July 2017
    June 2017
    May 2017
    April 2017
    March 2017
    January 2017
    December 2016
    November 2016
    October 2016
    September 2016
    August 2016
    July 2016
    June 2016
    May 2016
    April 2016
    March 2016
    January 2016
    December 2015
    October 2015
    September 2015
    August 2015
    July 2015
    June 2015
    May 2015
    March 2015
    January 2015
    December 2014
    November 2014
    September 2014
    August 2014
    July 2014
    June 2014
    May 2014
    April 2014
    February 2014
    January 2014
    December 2013
    November 2013
    October 2013
    September 2013
    August 2013
    July 2013
    June 2013
    May 2013
    April 2013
    March 2013
    February 2013
    January 2013
    December 2012
    November 2012
    October 2012
    September 2012
    August 2012
    July 2012
    June 2012
    May 2012
    March 2012
    January 2012
    December 2011
    November 2011

© 2011 Lady of Lyme™. All Rights Reserved.

Terms and Conditions  - Privacy Policy
Connect with me:
Facebook
Twitter
Contact   About   Email Me


Lady of Lyme is a participant in the Amazon Services LLC Associates Program, an affiliate advertising program designed to provide a means for sites to earn advertising fees by advertising and linking to amazon.com.