A Lyme Disease Blog Sharing Support & Awareness

A Big THANK YOU!

3/12/2017

This photo is the epitome of what an "invisible illness" is. It was taken while battling through pancreatitis, right after I had my IV removed. You'd never know..

I want to sincerely thank everyone who purchased items from the Christmas Shop! Although this is long overdue, here is the confirmation that the funds were received, and I wanted to share with everyone that we raised over $500 for Global Lyme Alliance! This is a victory and accomplishment for everyone who helped by purchasing items, sharing the link, or wearing a shirt in support! I'm very grateful, and I hope to do more fun things for awareness in the future.

xoxo,
Christina

The letter of received funds from GLA. *The letter denotes the funds received 12/31/16 for tax purposes, because the sales came mostly from the 2016 calendar year. However, the check was sent in January when the shop closed

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Some Awareness & Media During The Month Of May

6/1/2016

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During May I did a few things, I spoke to a few media outlets, and if you'd like to listen/read to any of it I have attached and linked them here. I am so grateful for the platforms given to me to help spread awareness about Lyme Disease, and get the message out about to stay protected when going outdoors. I can't emphasize enough how much I don't want to make these things about me, but about the message. I always loved the saying, "Turn a mess into a message," and that's all I hope to do.

I did a morning radio show (which is linked above in video form) and it was streamed on iHeartRadio via iHeartMedia, so thank you immensely to them for giving it a large reach because friends and family all over the country could tune in to listen to it, and that was incredible. The whole interview was about 25 mins long so I had to scale it down to 10 mins to link it (if you hear any sound breaks, that's why). If you know me, then you know I'm pretty shy by nature and I don't claim to be a great public speaker. But I gave it my best go :) I'm very appreciative for the opportunity, thank you to everyone who made it possible

Another thing I did was speak with The Daily Independent newspaper, and they blew me away when they put the story on Lyme Disease front and center in full color. I was utterly shocked, and humbled, and also very grateful for their kindness. If you'd like, you can read the interview HERE.

I spoke to a third publication, The Herald Dispatch, and they also did a feature piece on Lyme Disease and prevention. However as a quick side note, the article also spoke to an Infectious Disease Doctor who says the tick must be attached for 48 hours minimum to spread Lyme Disease, and this is FALSE. I have known countless individuals (easily over 40+ patients) who had ticks attached for as little as an hour or two and got Lyme or other tick borne illnesses. That's important to note, because some facts weren't quite right (It's Geranium oil, not Gardenia oil that repels ticks), but I am still very thankful that they chose to share about Lyme Disease. You can read that story HERE.

Thank you to everyone for your support, for reading, for educating, and for sharing this journey with me.

xoxo,
Christina

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Bite Back For A Cure

8/12/2013

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I've had exciting news to talk about, but since I've had a hard time using electronics I wanted to wait until I could write a post that would do it justice.

I am partnering with the Tick-Borne Disease Alliance (TBDA) for their campaign: Bite Back For A Cure. I can't possibly be more excited about this opportunity because I love the work TBDA does for everyone in the Lyme community.

Bite Back for A Cure is a nationwide campaign that is working to bring real change to Washington. The goal is to take a message to Washington showing them just how many people all over the United States are effected by Lyme Disease & co-infections. This spans across from patients themselves, to their loved ones who are passionate about seeing a change. The campaign is Multi-dimensional, and has lots of components that will help open a discussion & bring attention about tick borne diseases to light.

I want to talk about a few of the great things happening with this campaign & also how you can help out.

John Donnally, a 24 year old Lyme sufferer will be cycling cross country to bring attention to the horrible diseases ticks can carry. He is kicking off his bike tour with a series of rides & stops in the Northeast. There are many stops along the way which will each have events held by the TBDA. They will have many different speakers & activists at these events, helping to educate the community.

This is such an utter act of selflessness, and I'm grateful that he committed to something so huge, all for the cause of helping others. This will get media to pay attention & that's ultimately where it all starts. This national tour will be huge & I am so excited for it to begin on August 18th.

If you want to follow along on John's journey or attend one of these stops, you can follow this link for more info:

TBDA Event schedule

So if you can't make it to these events, how can you help? Good news, it's SO easy! The TBDA is asking everyone to print out one of their signs from bitebackforacure.org and take a picture with it. Then, send that picture in to TBDA. When this campaign is through, they will collect all the photos & put them in a video to take to Washington. In order to make an impact our leaders need to see the faces of those effected in any way. It will really get the message across & help change happen.

And as always if you would like to donate to the campaign, visit bitebackforacure.org

This campaign will run until November & I can't wait to have you all get involved too. We know we need change & I'm thankful that The TBDA is giving us a platform to have a voice.

Also, the TBDA did a 2 part interview with me, and I wanted to share Part 1 of that interview here. Thank you so much to them for sharing my story!

Part 1 TBDA Interview

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Photos from the Lymewalk

10/17/2012

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My brother sent over a lot of beautiful pictures from the Lymewalk. The view is amazing, & enough to heal almost anyone with just a glance ;)
Oh how I love Southern California!

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Help Sponsor Me For LymeWalk 2012

9/16/2012

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Have I mentioned what an amazing and compassionate family I have? I truly couldn't do this without their constant support & help. This years LymeWalk will be Los Angeles, Ca which just so happens to be the city my older brother Steven lives in..And he agreed to walk in my name & for the name of every Lyme patient everywhere.

LymeWalk works just like Relay for Life and similar donated based walks. There is a website where he is accepting donations to walk on October 14. We have a goal set, and he needs to reach the donation goal to walk. 100% of the proceeds go to Lyme disease research for a cure. Below is a screen shot of the donation page with a little bit more info, as well as the link to the donation site.

It goes without saying that this means everything to me. I can not ask for a more loving brother & more wonderful friends & family to help me with this cause. Check out the page below :)

http://lymewalks.lymedisease.org/lyme/participantpage.asp?uid=3080&fundid=1721

http://lymewalks.lymedisease.org/lyme/participantpage.asp?uid=3080&fundid=1721

Thank you to EVERYONE for your continued prayers and support!

Xoxo,
Christina

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An Event to bring awareness to Louisville

11/29/2011

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As Christmas quickly approaches I look around and see a family who is such an amazing support & one I am beyond blessed to have. Not a lot of people can say they have parents who would go to the moon & back to make their child's life perfect. No matter how sick I have been, or how much I complain my parents have never stopped being loving & patient. While I stress about what's next, they are comforting me with the things I should be happy for today.

I realize that it's a rare breed of human beings who are selfless. Many young adults & children who are struggling with chronic Lyme do not have the parents I do backing them up. They can't afford treatment, maybe their parents refuse to take them to a specialist because of cost issues etc. I personally have spoke with many other sufferers who told me they can't find someone to treat them & have run out of money, or no one believes how sick they are & they can't get their treatment funded. It breaks my heart to see that, and how it must affect their holidays.

With this in mind, I felt its only right to thank God for all he has given me and find a way to give something to those who have nothing at all.

I am VERY pleased to announce that I will be hosting a booth during the annual Louisville holiday festival "Bardstown Road Aglow." For starters, I want to educate as many people as possible about Lyme. Bringing awareness is a huge deal, as many people ask me what Lyme disease even is. I am also collecting donations for two causes. The first is for Lyme disease research, because it is completely underfunded. The disease has a long way to go before it is fully understood, and it's much like Cancer in that we have a lot of unanswered questions. Secondly, these funds will go to helping the people who need it the most with treatment cost, doctors visits etc. Insurance is almost useless with this disease, and to fight it is extremely expensive. An average cost of $100,000-300,000 is what it adds up to be for a chronic Lyme sufferer from start to finish. The amount of care, medicine, hospital visits, etc all adds up very quickly.

My hope is I can get a lot of support from the community & my friends for this cause. I'm extremely passionate about this, as it has completely taken over my life and well being. I know how it feels & if there was simply more research done, or more knowledge, a lot of people would be in a different boat.

The link below is my page, so kindly sponsored by Tired Of Lyme. Please visit it and read about the cause. If you can make it to the event I would love to see everyone, but if you cant & would like to still donate there is an area at the bottom to do so securely with PayPal. NO amount is too small, every little bit will help the cause.

www.tiredoflyme.com/donate4lyme.html
Thank you

Christina

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A Big THANK YOU!

Some Awareness & Media During The Month Of May

Bite Back For A Cure

Photos from the Lymewalk

Help Sponsor Me For LymeWalk 2012

An Event to bring awareness to Louisville

Follow Lady Of Lyme (@ladyoflyme)

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A Big THANK YOU!

Some Awareness & Media During The Month Of May

Bite Back For A Cure

Photos from the Lymewalk

Help Sponsor Me For LymeWalk 2012

An Event to bring awareness to Louisville

Follow Lady Of Lyme (@ladyoflyme)

Categories

﻿Archives﻿

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