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Update on Bartonella treatment

1/13/2013

5 Comments

 
This is a bit out of order but I wanted to do an updated post on how I am doing post Bartonella treatment. I did 2 rounds of the Bartonella Series & it's still up in the air if we will go back later to address a third round. 
Anyways, before my Bartonella treatment I got horrible rashes all over my body from heat. Then I got really sick afterwards. This would come from the sun, the shower & even my heating pad (imagine that). This is what my wonderful rash looked like:

Picture
Picture
It's not cute, but I said I wouldn't hide anything on here so there it is. It was tough day in & day out. I can now say that the last 3 months I have been BART RASH FREE! It's truly a visual testament to me that I know it's gone. I don't think I would have believed it otherwise. Symptom wise it's a tough call. I jumped right into Lyme treatment so currently this is making me pretty sick. It's hard to separate symptom from herx. They are all jumbled together.
One thing I can say however is that I feel improved from August (when I began Bartonella treatment). I can't put my finger on how specifically, but just an aura of feeling better. I truly feel like that burden has been mostly lifted. If things come back though we will certainly add in a 3rd round down the road.

So I hope this update was informative & helpful to someone. There is so much negativity with my posts now from Lyme treatment that I wanted to post SOMETHING happy for a change. :)

Xoxo,
Christina

5 Comments

2012 has changed my life... A humbling look at a year with Lyme disease

1/2/2013

7 Comments

 
Ahhh and just like that it's 2013. Time flies. I have always known that, but I never thought time could fly when you are house-bound and bed-bound. Well folks, I'm here to tell you it does. I literally have no idea where time goes. It's not like I do anything substantial on a daily basis so it's certainly a mystery to me!

Either way, I did something fun this last year that I wanted to share. I did the photo a day challenge. Essentially I took a photo to represent what happened that day, and repeated this for all 356 days since January 1st. What might you ask could i have taken photos of? Well, I took pictures that basically chronicles my last year and included captions for each of them. For example if I started a new medication, got an IV, celebrated a birthday, had a friend visit, bought something new, made a new craft, saw a beautiful sunset, etc. The list could go on and on. I then sat down on December 29th and took the next 3 days to put each photo into a photo book from Shutterfly, in order, with dates & captions. Tedious is an understatement. But as I did that all my emotions came rushing in. "Remember the time this happened..." or "Wow I can't believe I got through this." It was a mix of great happiness & sadness. I re-lived a funny moment & it brought me joy, but I also remembered tough times I went through that only a picture could really take me back to. When I first moved home in January those first 3 months were hands down the most challenging & dark months of my life. I can't even put into words the hell that I lived physically & emotionally. So many experiences I never thought I would have. But at the end of those bad memories are quick reminders of where I am today... Such an unbelievably happier place.

My photo collection brought great realization to me. For starters I realized how my health has improved. Honestly & truly in February I hit a low point where I didnt know if I would make it. I weighed 86 pounds, I was unbelievably sick, my organs were all in immense pain and failing, & I wasn't sure every day if I would even have a next. And now here I am by the grace of God, alive. I'm no where near healthy, but I can say I feel better. It almost brings me to tears when I truly reflect on how far I have come. It amazes me that when I wanted to give up on myself I had people who loved me who just wouldn't let that happen.

Things aren't perfect yet obviously, this is a slow but steady work in progress. As time goes on I discover more long term problems that Lyme has left me with. I learned that besides the Lyme I have residual damage done to my body that will need to be repaired. I stand here today fully aware that I may have years of work to 'fix' myself so to speak...to get me back to who I was before this disease swooped in & took my well being. Its daunting, but I don't feel defeated. If I could get through what I have so far I know I can get through anything.

Lastly, this year has shown me who I am deep down inside. I used to be very lost in many ways, and I mean that in a broad term. It's easy to get upset over petty things, get pulled into hasty drama & put stock into materialistic things only. Vanity is something we all have, but only once you lose your health do you realize how little all that matters. I got much closer to God & much stronger in my faith. I love deeper, I value the little things so much more, and I appreciate life in a way I can't put into words. When you're so close to giving up a losing battle, and you can pull yourself out of that to find life again, it's a hell of a feeling. A feeling you might not know until you live it yourself.

This photo book will forever serve as my humbling reminder of what happened in 2012. I recommend this project to anyone for the coming year, it's a great reminder of the ups & downs of life. It will keep you grounded & it will also keep you feeling enormously blessed. When I look at the good times & good pictures I am instantly reminded how lucky I am. It's easy to forget that sometimes, but I find this was a great way to take me back in time. I plan to keep this up throughout 2013 & see what this year has to bring!

I hope everyone has a HEALTHY and blessed 2013. Here's to one step closer to a new life.

Xoxo,
Christina
7 Comments

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