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Not taking "not possible" for an answer

8/14/2012

1 Comment

 
My whole life I was always the child who wanted to do something more when you told me "no." My parents must have really loved that quality about me, along with my uncanny love to ask the question "why?" If my parents told me to do something one way, I always needed an explanation as to why. Always. And if I asked them to do something and they said "no, it's not possible," it sounded more like a challenge than an answer to me.

This wonderful quality is also what has motivated me to be the person to defy the "odds" of Lyme. It's a rather accepted thing on the chronic Lyme community that this disease is permanent. Once you've had it for years you will then treat it for years & after you hit remission you will walk a delicate line of living a normal life, and not relapsing. To me, that's the worst news ever. I'm 24, I'd like my old life back please & thank you. I don't want to live forever on 15 supplements a day & 9 hours of sleep a night or else i risk being back to more rounds of treatment. That sounds about equivalent to torture. Sure it's nice to eat this organic, holistic, gluten free life now but in reality at my age once I leave home I'm not going to be eating like this. Literally as late as this January my daily meals were taco bell, 5 slices of pizza, burgers, and everything else terrible. What can I say I am a girl who loves to eat. Offer me a good Buttermilk pie and I might marry you on the spot. I want to stuff my face with pizza at 3am, gossiping with my girlfriends, & carelessly enjoying life. Not looking at the ticking clock when I need to drink my next protein über healthy green smoothie.

So you catch the drift. While I'm all down for this alternative mind body spirit healing lifestyle right now, I have no intentions of doing this jig for life. But those who don't are also those who are on round 6 of treatment. So neither option sounds glamorous. That's why I decided I'm ultimately done listening to negativity. I'm not taking no for an answer. I'm trusting God & my wonderful doctor that I'll be the rare statistic who gets well FOR GOOD. Not just for the now. And I encourage everyone reading this to also develop that mentality. Don't read negative blogs, I promise that isn't going to help your well being. I decided long ago that I can't take that kind of negativity and expect it to effect me positivity. Because it won't.

I'm here to tell you that although there is no "cure" for Lyme (and my whole heart is into organizations for finding a cure), that you have to remind yourself you WON'T be that statistic. No ifs ands or buts about it. 
First of all, trust your doctor. If you don't, then find one you do. 
Secondly, follow your gut instinct. If something doesn't feel right, call up your doctor to discuss it. I know I sing high praises about my Doctor but honestly, he rocks. If I ever have a concern he is on it 100%. Which gives me the faith I need. 
Thirdly, realize Lyme comes with many co-infections so you have to address them ALL. If you aren't better then dig deeper to see what else is going astray. Most the time there's a hidden infection or adrenal issue etc which is holding you back.
And lastly, don't ever lose hope. Worst thing you can do is think "this is it." It's definitely not IT. 

I pray I can fast forward 6 months & feel wonderful, and then be that positive story for you guys to read & share. Because so far all I've read are kind of bleak sad stories which don't give anyone much hope. But I have a hunch God gave me my fighting personality to use it for my greater good & hopefully influence others to see past the negativity surrounding it. 

Xoxo,
Christina 

1 Comment

Inanna House: First In-Patient Lyme care Facility

8/10/2012

11 Comments

 
DISCLAIMER: I do not run Inanna House, and have no direct affiliation with them. If you would like to contact those who run Inanna House directly please go to: www.inannahouse.org

I have received comments & emails asking for admissions, so before you read further know this is just an informative post. Again, I have no affiliation with Inanna House.

I count my blessings a million times over. I could not imagine enduring what I have & what I will endure in the future without my parents. They make me every meal when I am lifeless, make sure I get all my meds, & give me constant 100% support. I'm one of the few who have this quiet peaceful retreat to recover in with a family that loves me & have gone into debt to afford my care.

For all of this I thank God. With my birthday being Sunday I reflected back on gifts I received. All materialistic items that are great, but I can live without them. "Health is true wealth, not pieces of gold & silver."

This brings me to my point about an amazing project that's being created by Mara Williams called the Inanna House. This will be the first non profit in patient Lyme treatment facility. People who need medical care the most for this fatal disease will now be able to receive it. I took the highlights from the fundraising website & condensed it below to get a better understanding. The Inanna House plans to be in locations across the US, but the first will be in Sonoma County, California.


  • A Retreat Style Center with 24 Private Rooms with Baths for In-patient stay, built on 14-15 Acres of viable land.

  • 24 Hour Care and monitoring as patients undergo individualized treatment plans, incorporating all worlds of medicine to acheive optimal re-integration and healing, which would address each aspect of the individual: Mind, Body, and Sprit.

  • The Center will incorporate Green Energy to make it as self-sustainable as possible.

  • An In-House Organic Garden big enough to feed all residents and provide patients with a necessary "Clean, Alkaline Diet" to aid them in their recovery.

  • A $20 Million Dollar Endowment Fund for individuals who can't pay for treatment but desperately need it.

  • Fees that are on a sliding scale basis, and a "Give Back" Program so that those who have received treatment and recovered have the opportunity to come back and help give patients who are currently being treated hope, guidance, and support.

  • A Program specifically designed to help care-takers understand exactly what their loved ones are going through, and how Lyme disease and its co-infections are effecting them. This program will also give specific instructions so that care-takers will also know how they can help their loved ones recover.

  • Inanna house will train physicians properly for them to become Lyme Literate doctors.

Donation Page to Share: http://www.indiegogo.com/InannaHouse

To learn more about what other amazing features and specific therapies the center intends on offering, please visit their website at:

http://www.inannahouse.org/our-vision.html


Currently there is fundraising going on for this project with 22 days left to reach the $20,000 goal. As I looked around at all this stuff I had received, I knew in my heart I had to return what I could & instead of gifts ask for family & friends to donate that money to this cause. This fundraising is fixed which means if they don't reach the $20,000 goal, all the money will be returned to the donors. I really hope everyone of you can at least take a look at the site to read about how amazing it is, and share with friends. You can choose to contribute, or just by simply passing it along you are doing so much.

This is near & dear to my heart and I hope Mara Williams dream will come alive. It will be a huge step for patients everywhere. Such a vision & blessing to help those who need it the most.

Thanks friends! :)

Xoxo,
Christina
11 Comments

Bartonella Series Therapy System

8/7/2012

0 Comments

 
In a moment of clarity I wanted to talk about the course of treatment I chose. It's not conventional. I didn't feel the right decision for me was to take loads of antibiotics with how fragile I am. It comes with a lot of risks & past experience has showed me my stomach has 0 tolerance for it.

The general idea of homeopathy with this system works much like a vaccine. I will be taking different doses of dead Bartonella bacteria. Each dose is a different strength. This will illicit an immune response in my body which will create antibodies against the Bartonella & my own immune system/body will do the killing. In conventional medicine the antibiotics kill the disease, but in this case it will naturally do what my body can not do by itself. By tricking my body into thinking there is much more Bartonella in my system than there truly is, it will go into hyper work mode building specialized antibodies to kill the active infection. 

It's pretty different from anything I've ever done but my doc has had wonderful success so my hope lied in the fact God knew what he was doing when he led me to this man to heal me. 

I take one vial every 3 days & the box says I will have the hardest time between doses 2 & 4. Here's to praying it's all wonderful by a miracle :) I'll update as much as I can for those of you who are following along. Thank you for the kind words & continued prayers. This particular treatment is the toughest hurdle yet so I'm laying all my fears at God's feet.

Xoxo,
Christina 

0 Comments

Last 2 Weeks

8/6/2012

0 Comments

 
This post will be pretty short & sweet. Last week I had an IV for 4 days which was amazing. I was really dehydrated & feeling beyond miserable. It pulled me out of my funk. But then it was followed by a pretty intense herx. 

Somewhere in between all this was my birthday, which I thank god I felt good for. I was sick all night before my birthday but woke up feeling wonderful. Really thankful god gave me that day with my family. Looking forward to 24 being a great year, and celebrating 25 somewhere fabulous :)

I'll be posting about treatment soon, thanks to everyone for the kind words of encouragement & prayers along the way :)

Xoxo
Christina 

0 Comments

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