Lyme Blogs
*If you would like your Lyme blog featured on the site, please share your blog with me via the 'Contact Me' tab*
A Little Bit Of Laura: A blog full of delicious recipes for eating clean on the Lyme Diet, and also a journey of recovery with Lyme Disease through the eyes of Laura
Chronically Determined: A site with many contributing bloggers who help bring a positive light to the struggles of fighting a chronic illness
Lyme Is Lame: A blog full of personal accounts of treatment, mixed in with hope, poetry & other sources of inspiration
Brighter Side Blog: A hopeful blog filled with poetry, art, and personal blogs of a wonderfully strong Lyme warrior who is persisting despite Lyme.
The Lyme Diary: If you are looking for a teen blog, Cassidy is your girl. She blogs about her experiencing dealing with Lyme through high school and as she heads off to college.
Lemons with Lyme: A patient blog full of reflection, hope, and her treatment info as she finds ways to heal
Lyme Stats: This site is dedicated to nothing but graphics about, you guessed it, Lyme Stats! It's a great visual aid to use, and chock full of information to share.
Beyond The Bite: A cooking blog! Gabriella (herself a Lyme warrior), shares so many delicious recipes that are broken down into categories for AIP, Paleo, Keto, Anti Inflammatory etc. This site is great if you need recipe inspirations on a Lyme Diet!
Body, Mind, Lyme: A positive blog which features lots of resources and information. Kerry blends patient interviews, reviews, and personal blogs all into one site.
Living Grace Blog: Kami runs a blog which is raw, honest, enlightening, and full of grace and hope. A great personal blog which highlights living a full life beyond the pain.
Spoonie Sophia: A UK based blog, written by Sophia, who shares her journey finding her way back to health
Vicki "Miss Diagnoses": This is a blog following Vicki & her multiple "Diagnoses" which is where she got the adorable name of Miss Diagnoses! She is a fantastic artist and loves to doodle & draw cartoons as well, which give her site such a unique and wonderful touch.
Chronically Determined: A site with many contributing bloggers who help bring a positive light to the struggles of fighting a chronic illness
Lyme Is Lame: A blog full of personal accounts of treatment, mixed in with hope, poetry & other sources of inspiration
Brighter Side Blog: A hopeful blog filled with poetry, art, and personal blogs of a wonderfully strong Lyme warrior who is persisting despite Lyme.
The Lyme Diary: If you are looking for a teen blog, Cassidy is your girl. She blogs about her experiencing dealing with Lyme through high school and as she heads off to college.
Lemons with Lyme: A patient blog full of reflection, hope, and her treatment info as she finds ways to heal
Lyme Stats: This site is dedicated to nothing but graphics about, you guessed it, Lyme Stats! It's a great visual aid to use, and chock full of information to share.
Beyond The Bite: A cooking blog! Gabriella (herself a Lyme warrior), shares so many delicious recipes that are broken down into categories for AIP, Paleo, Keto, Anti Inflammatory etc. This site is great if you need recipe inspirations on a Lyme Diet!
Body, Mind, Lyme: A positive blog which features lots of resources and information. Kerry blends patient interviews, reviews, and personal blogs all into one site.
Living Grace Blog: Kami runs a blog which is raw, honest, enlightening, and full of grace and hope. A great personal blog which highlights living a full life beyond the pain.
Spoonie Sophia: A UK based blog, written by Sophia, who shares her journey finding her way back to health
Vicki "Miss Diagnoses": This is a blog following Vicki & her multiple "Diagnoses" which is where she got the adorable name of Miss Diagnoses! She is a fantastic artist and loves to doodle & draw cartoons as well, which give her site such a unique and wonderful touch.
Books
Out Of The Woods by Katina Makris: This was the first book I was given to read after I was diagnosed and I credit it highly for giving me hope amongst all the fear I had about this disease. Katina's story is one of positivity and encouragement and shows you that although there are dark days, it IS possible to heal and live a full life post Lyme disease. Whether or not you are interested in holistic natural healing, this is a wonderful book to read.
Lyme Loonies: Life is either a comedy or tragedy. Lyme Loonies is a little bit of both. In the first cartoon book about Lyme disease, creator David Skidmore captures and illuminates the struggles faced by those with Lyme. The cartoons are a way of expressing hope, humor and revolt at the tug-of-war in which the Lyme community find themselves regarding diagnosis, treatment, education, funding, prevention, public apathy and a cure. Lyme Loonies is a book created in solidarity with those familiar with Lyme disease. You will laugh and maybe even cry, definitely shake your head then most likely smile. Your palm also might hit your face a little too hard a couple times, but a sense of relief will follow knowing that you are not alone.
Over The Edge by Brandilyn Collins: This is a fiction thriller story about Lyme disease, and whoa, does it take you on a ride. I started to read this book and could NOT put it down. Here is the summary pulled from the website
Janessa McNeil’s husband, Dr. Brock McNeil, a researcher and professor at Stanford University's Department of Medicine, specializes in tick-borne diseases—especially Lyme. For years he has insisted that Chronic Lyme Disease doesn't exist. Even as patients across the country are getting sicker, the committee Brock chairs is about to announce its latest findings—which will further seal the door shut for Lyme treatment.
One embittered man sets out to prove Dr. McNeil wrong by giving him a close-up view of the very disease he denies. The man infects Janessa with Lyme, then states his demand: convince her husband to publicly reverse his stand on Lyme—or their young daughter will be next.
But Janessa's marriage is already rocky. She's so sick she can hardly move or think. And her husband denies she has Lyme at all.
Welcome to the Lyme wars, Janessa.
Janessa McNeil’s husband, Dr. Brock McNeil, a researcher and professor at Stanford University's Department of Medicine, specializes in tick-borne diseases—especially Lyme. For years he has insisted that Chronic Lyme Disease doesn't exist. Even as patients across the country are getting sicker, the committee Brock chairs is about to announce its latest findings—which will further seal the door shut for Lyme treatment.
One embittered man sets out to prove Dr. McNeil wrong by giving him a close-up view of the very disease he denies. The man infects Janessa with Lyme, then states his demand: convince her husband to publicly reverse his stand on Lyme—or their young daughter will be next.
But Janessa's marriage is already rocky. She's so sick she can hardly move or think. And her husband denies she has Lyme at all.
Welcome to the Lyme wars, Janessa.
Gone In A Heartbeat by Dr Neil Spector, M.D: This is a true story of a man whose life was saved quite literally in the last minute from Lyme disease complications. The story is riveting, heartbreaking, and informative. More than that it feels like reading a thriller through all the twists and turns of Dr. Spector's story. His story from the perspective of a medical professional who went through the hoops to save his own life is really something captivating. I highly recommend this read! (Summary below)
Dr. Neil Spector, one of the nation's top oncologists, led a charmed life. He was educated at prestigious universities, trained at top medical centers, and had married the woman of his dreams. It seemed too perfect. And it was.
In 1994, it all came crashing down. He and his wife lost two unborn children. And a mysterious illness brought him to the brink of death. In his compelling memoir, "Gone in a Heartbeat," Dr. Spector describes in great detail how he was misdiagnosed and, despite being a medical insider, was often discounted by his fellow physicians.
As he recounts his own unorthodox approach to medicine and physician/patient relationships, Dr. Spector encourages readers to never surrender their power to a third party. He tells of courageous patients who served as role models, he conceded that doctors do a disservice to patients when "we treat them like statistics," and he advocates for educated patients who can make informed decisions collaboratively and not simply follow instructions.
In Dr. Spector's words: "To recognize that we are in control of our own bodies and destinies can be a powerful step toward true healing."
Readers of "Gone in a Heartbeat" will never view the medical profession the same again.
Dr. Neil Spector, one of the nation's top oncologists, led a charmed life. He was educated at prestigious universities, trained at top medical centers, and had married the woman of his dreams. It seemed too perfect. And it was.
In 1994, it all came crashing down. He and his wife lost two unborn children. And a mysterious illness brought him to the brink of death. In his compelling memoir, "Gone in a Heartbeat," Dr. Spector describes in great detail how he was misdiagnosed and, despite being a medical insider, was often discounted by his fellow physicians.
As he recounts his own unorthodox approach to medicine and physician/patient relationships, Dr. Spector encourages readers to never surrender their power to a third party. He tells of courageous patients who served as role models, he conceded that doctors do a disservice to patients when "we treat them like statistics," and he advocates for educated patients who can make informed decisions collaboratively and not simply follow instructions.
In Dr. Spector's words: "To recognize that we are in control of our own bodies and destinies can be a powerful step toward true healing."
Readers of "Gone in a Heartbeat" will never view the medical profession the same again.
Bite Me by Ally Hilfiger: This book is an autobiography that shares the story of what Ally went through to get her diagnosis of Lyme Disease and reclaim her life. This is more of a story and less of an "educational" read, and I really liked that. It was interesting to see how different everyone's story is with this disease, and it was captivating to read how HER journey unfolded. Her health deteriorated until she eventually got committed to a psych ward, which was a blessing in disguise that saved her life. If you are looking for a light read on a personal account of someone's Lyme journey, then this is the perfect read! Summary below:
Ally was at a breaking point when she woke up in a psych ward at the age of eighteen. She couldn't put a sentence together, let alone take a shower, eat a meal, or pick up a phone. What had gone wrong? In recent years, she had produced a feature film, a popular reality show for a major network, and had acted in an off-Broadway play. But now, Ally was pushed to a psychotic break after struggling since she was seven years old with physical symptoms that no doctor could explain; everything from joint pain, to night sweats, memory loss, nausea, and brain fog. A doctor in the psych ward was finally able to give her the answers her and her family had desperately been searching for, and the diagnosis that all the previous doctors had missed. She learned that she had Lyme disease-and finally had a breakthrough.
What she didn't know was that this diagnosis would lead her down some of the most excruciating years of her life before beginning her journey to recovery from eleven years of misdiagnosis and physical pain. She would need to find her courage to heal physically, mentally, and emotionally, and become the survivor she is today.
Set against the backdrop of the fast-paced fashion and entertainment industries, BITE ME shares the heartbreaking and hilarious stories that moved Ally forward on her journey from sickness to health. Its themes will be familiar to more than 300,000 Americans diagnosed with Lyme disease each year, many of whom, like Ally, wondered for years what was wrong with them. BITE ME offers readers hope and ideas for how one can transition from victim to survivor, and shares the spiritual principles and actions that have contributed to her wholeness as a human, mother, and international spokesperson against Lyme disease.
Ally was at a breaking point when she woke up in a psych ward at the age of eighteen. She couldn't put a sentence together, let alone take a shower, eat a meal, or pick up a phone. What had gone wrong? In recent years, she had produced a feature film, a popular reality show for a major network, and had acted in an off-Broadway play. But now, Ally was pushed to a psychotic break after struggling since she was seven years old with physical symptoms that no doctor could explain; everything from joint pain, to night sweats, memory loss, nausea, and brain fog. A doctor in the psych ward was finally able to give her the answers her and her family had desperately been searching for, and the diagnosis that all the previous doctors had missed. She learned that she had Lyme disease-and finally had a breakthrough.
What she didn't know was that this diagnosis would lead her down some of the most excruciating years of her life before beginning her journey to recovery from eleven years of misdiagnosis and physical pain. She would need to find her courage to heal physically, mentally, and emotionally, and become the survivor she is today.
Set against the backdrop of the fast-paced fashion and entertainment industries, BITE ME shares the heartbreaking and hilarious stories that moved Ally forward on her journey from sickness to health. Its themes will be familiar to more than 300,000 Americans diagnosed with Lyme disease each year, many of whom, like Ally, wondered for years what was wrong with them. BITE ME offers readers hope and ideas for how one can transition from victim to survivor, and shares the spiritual principles and actions that have contributed to her wholeness as a human, mother, and international spokesperson against Lyme disease.