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Bite Back For A Cure

8/12/2013

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I've had exciting news to talk about, but since I've had a hard time using electronics I wanted to wait until I could write a post that would do it justice.

I am partnering with the Tick-Borne Disease Alliance (TBDA) for their campaign: Bite Back For A Cure. I can't possibly be more excited about this opportunity because I love the work TBDA does for everyone in the Lyme community.

Bite Back for A Cure is a nationwide campaign that is working to bring real change to Washington. The goal is to take a message to Washington showing them just how many people all over the United States are effected by Lyme Disease & co-infections. This spans across from patients themselves, to their loved ones who are passionate about seeing a change. The campaign is Multi-dimensional, and has lots of components that will help open a discussion & bring attention about tick borne diseases to light.

I want to talk about a few of the great things happening with this campaign & also how you can help out.

John Donnally, a 24 year old Lyme sufferer will be cycling cross country to bring attention to the horrible diseases ticks can carry. He is kicking off his bike tour with a series of rides & stops in the Northeast. There are many stops along the way which will each have events held by the TBDA. They will have many different speakers & activists at these events, helping to educate the community.

This is such an utter act of selflessness, and I'm grateful that he committed to something so huge, all for the cause of helping others. This will get media to pay attention & that's ultimately where it all starts. This national tour will be huge & I am so excited for it to begin on August 18th.

If you want to follow along on John's journey or attend one of these stops, you can follow this link for more info:

TBDA Event schedule

So if you can't make it to these events, how can you help? Good news, it's SO easy! The TBDA is asking everyone to print out one of their signs from bitebackforacure.org and take a picture with it. Then, send that picture in to TBDA. When this campaign is through, they will collect all the photos & put them in a video to take to Washington. In order to make an impact our leaders need to see the faces of those effected in any way. It will really get the message across & help change happen.

And as always if you would like to donate to the campaign, visit bitebackforacure.org

This campaign will run until November & I can't wait to have you all get involved too. We know we need change & I'm thankful that The TBDA is giving us a platform to have a voice.

Also, the TBDA did a 2 part interview with me, and I wanted to share Part 1 of that interview here. Thank you so much to them for sharing my story!

Picture
Part 1 TBDA Interview

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Vision Therapy

8/8/2013

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Sorry for my lack of posting, most days for the last week I can hardly pick up my phone to do anything. Even reading a book or using my computer screen are totally out of the question. Luckily my phone has Siri so I read & write texts by using that instead of using my eyes. Yes, vision therapy has been brutal. It's 2 hours a day & it has really been testing me. When I first got the computer programs installed I was told to do one program a day, but I decided to bump it up & do both daily. I really want to see progress! Hence, why I'm more out of commission than usual.

It's hard to tell what is from the visual therapy & what is from the regular Lyme & co-infections since they both can give me fatigue, nausea, stomach aches & headaches. But all in all I am hanging in there. Slightly disconnected from the world at times, but it's for a light at the end of the tunnel.


I've been asked what eye disorders I have & what I'm treating. Lyme really likes to attack the optic nerve area (why, I'm really not sure). I know for sure I have 2 major issues, and when I am well enough to have a more thorough eye exam then we might uncover more.


But for now...



Picture
I see the world incredibly off tilt from everyone else, so vision therapy is forcing my eyes & brain to work together and move in ways it hasn't in years. It's a challenge but I hope soon I will have happy progress to share on that front.

Anyway, cutting this short to spare my headache, I hope everyone is well!

Xoxo,
Christina

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