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Protomyxzoa Rheumatica (FL 1953) - Fry Labs Protozoa/Fungal Infection

5/5/2014

237 Comments

 
The second Co-Infection I have has easily the most elusive of them all. Protomyxzoa Rheumatics was discovered by Dr. Fry in his laboratory, and just recently got its official name a few years ago. It's a rather newly discovered co-infection, but I use the word new loosely. It's been around for a long time, but has only been gaining research the last say 10 years or so. To this day Dr. Fry has yet to find what we call a "cure" to this bug. This is a protozoa, and is actually a close relative of Malaria. It can be transmitted by Tick and Mosquito both.

It's incredibly hard to treat for a few reasons. For starters this protozoa lives in the blood stream and gets its strength from fats. So every single meal you eat that contains any form of fat what-so-ever is feeding this little guy to get even stronger. That's problem #1. The second problem is that a classic tell tale sign of Protomyxzoa is its ability to make mass amounts of biofilm in a very small amount of time. If you are not familiar with biofilm here is a quick rundown of it. Biofilms are formed when bacteria enclose themselves in a sticky polysaccharide. Once this polysaccharide is formed the bacteria can no longer leave and when new bacteria are produced they stay within the polysaccharide layer. This layer, which is the biofilm, is highly protective for the organisms within it. In fact, it is considered a fact that many bacteria could not survive in the environment outside of biofilms. Basically, the biofilm is like a safe haven for these bugs to hide in. When lots of biofilms form in the body you can get very thick sludgy blood and have coagulation issues. If I stand for longer than 10 minutes my legs get purple-ish and spotted looking. And when I'm cold I always have that splotchy look all over my skin. The reason for that is biofilms that have created coagulation issues and in turn my blood circulation isn't so great.

But I digress.. The trouble with biofilm is not just that it helps these organisms multiply, it's that it also houses other bugs as well. In my case I also have Lyme and Bartonella, so under the biofilm is trapped all 3 of my infections. That's what makes getting rid of them all completely a difficult task to do. The Protomyxoa by nature seems to help all other offending pathogens get a protective shelter. Basically it takes whatever you have and gives it this superpower.

And lastly, the final hurdle in treating this is the fact that there isn't a clear cut drug (traditional or herbal) that kills it the best. Many doctors (including Dr. Fry) uses anti-malarial meds, anti-protozoans, and anti-parasitics, and some doctors use Artemesinin which is a potent herb used to treat Malaria. However, these meds don't do much good if they cant get past the biofilm, or if you continue to feed it fats so it can get stronger and resist being killed off.

It's really kind of insane if you sit down and think about how smart a small tiny organism can be, and the fact that it can evade the human body the way it does. Totally baffles me when I really sit down and think about it. But, this post wasn't meant to be horribly depressing, I hoped it would be educational. There is very little information out there about Protomyxzoa on the internet, and not that many doctors know about it or know how to treat it. But, that's not to say it can not be done. I don't like to hear the word Can't being said to me, because it just fuels me to prove it wrong. I don't believe that it's impossible to cure Protomyxzoa. I believe that it will be a hell of a fight once I start to break down biofilm because God only knows what is going on in there. Once I take away the shield so many of these bacteria are comfortable hiding in I know my body will go into major fight mode, which means I will go into major struggle mode. But nothing scares me at this point. My neurological issues refuse to budge and this is the only thing I haven't got around to treating so it seems very likely that it's the culprit.

I believe the way to approach this Protozoa is a 3 step process. 1. No fat diet (STRICT) 2. Spend a month or two building up on powerful biofilm dissolvers 3. Hit it with pulsed doses of Artemesinin and other meds like Ivermectin, Albendazole, et al.

I have spent hours upon hours reading and journaling everything I could find out about Protomyxzoa. I read Dr. Klinghardt's lecture notes on it, I read Dr. Fry's info on it, and I read up on every treatment protocol I could find. I also spent time finding any patients I could who got into remission or had their symptoms dramatically improve. I think I have about 10 pages of just notes that I scribbled down as I learned new things. I wanted to know my enemy before I went into battle and I wanted to feel 100% positive and ready for it. With that being said I plan to go into attack mode in the next few weeks. I am waiting to speak with my Doctor about a few more things and I will certainly be keeping this updated in the Treatment Tab on what I'm doing, etc.

Oh and PS Happy Lyme Awareness month everyone!

xoxo,
Christina
UPDATE: 5/5/2016

Hi Everyone! It's been 2 years since I have written this post and I have since learned and compiled more information about Protomyxzoa from Dr. Fry himself. It seems he has found a working combination of meds to knock out the Protomyxzoa very recently, and most of his patients respond very well to this method.

Although protomyzoa is a protozoa in nature, Dr. Fry discovered that it also has strong "fungal like" characteristics. He was treating his patients with Doxycycline because although that is an antibiotic (not an anti-parasitic or anti-malarial which I spoke of above), it seemed to work better. The reason why is because Doxycycline works well for organisms that have fungal like properties. The true breakthrough however was rather recently when Dr. Fry learned that Doxycycline in COMBINATION with an anti-fungal called Lamisil was as absolute wonder together. He had a patient who was on Doxy for a few months & got put in Lamisil for an unrelated fungal infection. Within a week this patient took off in terms of symptom alleviation and after a few months was completely well. He studied this theory in depth and since then has had massive success with every patient he put on this specific treatment combo. I do not know the dosage of this, or the frequency, because that is not info that he could give out. However, his enthusiasm for the success of this combo was palpable.

I wanted to share this info as soon as I could, but I myself has not tried this treatment yet. I do not do well with doxy, so at this point it will be a bit of a work around to see what I can or can't do. However, I feel very hopeful because until now there wasn't a huge amount of enthusiasm in terms of treatment for Protomyxzoa Rheumatica.

As always, the low-fat diet is still key, and so are biofilm dissolvers to help the drugs penetrate to the organism. I will continue to update this page with new information as I get any, and if you have tried this treatment yourself and would like to share with others about your success (or lack of success) please comment below! This post has become like a thread where we all speak to one another in the comment section, so definitely chime in if you have anything to add or any questions!

-Christina

237 Comments
Camden
7/13/2014 04:37:15 pm

Would you post what you learned from other protomyxzoa patients about what has worked? I've studied Klinghard, done the ivermectin. He would advise pamoate next (biltricide done already)...but is anyone getting this done and over? My biofilm attack cratered last week and I'm just thinking I don't need a second week of vomiting on the way to work. Fragile day...I'm on doxy, flagyl, clarithromycin, fluconazole already for borrelia and fungus. Either way...you are an inspiration. I've done 4 malaria and 2 babesia treatments thus far. The biggest "dent" in it came from Malarone, but it bounces right back and is expensive to sustain. Can't get the mepron, alas.

Reply
Christina
7/13/2014 04:47:04 pm

Camden,
Hi there! Wow you have been through the ringer yourself with all of this treatment. It's tough, especially the biofilm dissolvers they really release everything and my body can't hardly handle it either.
Have you tried Albenza? That's a powerful one that many people got relief from, as well as Artemesinin. It's a powerful herb that has shown in vivo to be active against Protomyxoa.
The really important thing with this bug which I learned from patients who got well was that you have to be strict no fat what so ever. Feeding the bugs is what gives them the strength to come back. And also, to not treat until you have done quite an extensive biofilm treatment which you stay on during the course of it. The Protomyxzoa can't have food or a place to hide and multiple if you want to successfully rid the body of it.
You seem like you are on a ton right now, so i don't want to overwhelm you, but those two things were KEY for those who got into remission.
There are pills you can take that will bind fat, which you take with every meal. So if you can't do a no fat diet that's your next best bet because it binds the fat before the Protomyxzoa can gobble it up to get strength.
But those two things are what is key here, if you want to talk more in length please email me [email protected] :)

Reply
Margot
7/11/2016 11:51:59 am

I am being treated by Dr. Fry and have the PR and fungus as well. He told me that Lamasil doesn't work well for everyone, so not sure why he would tell you Doxy and Lamasil are the panacea. He told me about this "one" patient as well, but on subsequent appointments was not nearly as enthusiastic. Anyway, he has been prescribing Lamasil for a very few months only, so it is premature to tout it as effective. I hope it will be the miracle cure we all hope for and commend Dr. Fry for his pioneering research.

Julie Beine
11/22/2020 04:41:16 pm

I’ve been sick for years now, Bartonella, Babesia, mast cell, neurological borrolious, and possibly more coinfections from this Chronic Lyme. I pray every nearly minute of every day for God to send a cure for this horrific disease from the pit of hell. If in anyway you can share how I can get into remission I would greatly appreciate it. God Bless you 🙏

Christina
5/5/2016 04:35:56 pm

Hi there, just wanted to let you know I posted an update to this post that might be of interest to you! - Christina

Reply
Elaine Mackle
12/27/2019 02:48:47 am

Have you been watching the news on Disulfiram?
No one seems to be taking into account the biofilms and the fl1953.
They also going very slow because of the kick back.
First they say it treats Borrelia and then found it cleared babesia and now they think Bartonella.
No one is mentioning the biofilm .
To me it seems this Disulfiram breaks up biofilm and there is a release of fungal . What can share about Disulfiram.? Why they do not say it is a biofilm buster First and then that is how it can possibly be attacking the Lyme.
How many people do not have lyme but do have the FRY BUG / fungus?

Lori C (@BeatLyme)
9/13/2014 09:07:10 am

I have been diagnosed with Protomyoxzoa and was personally treated by Dr. Fry for 2 1/2 years. I concur that it is extremely hard to treat and even go into any length of remission. I have been on evert cocktail of oral antibiotics and herbal supplements to treat this horrific bug/disease. My periods of remission were short lived and when I released they seemed to get worse and worse.

Not to be a Debbie Downer by any means, sorry. Just stating my own bodies fight against this bug. I eventually left the care of Dr. Fry because he couldn't get me in a healthy state for reasons I wish not to state. Anyway, found a new practice that uses an integrative approach and has found ways to bust open even the toughest of biofilms. I am nervous to find out what else lives in these biofilms but fight them.

One thing I can say from experience is that oral antibiotics cannot adequately break apart the PR biofilm even with a low fat to no fat diet (been there done that). Going down the road of IV antibiotics along with a ton other IV treatments, diet change, and supplements. Not sure how it will work, but not giving up.

God bless,
Lori

Reply
Christina
9/13/2014 09:26:53 am

Lori,
Wow, what a long and wild ride you have had. I truly feel like coinfections can be harder to treat than Lyme itself (at least that was my experience)
Can I ask what treatment you are planning on doing this time around? Definitely biofilm dissolving is sooo crucial. But it makes me nervous at the same time. If you would like to email me I would love to chat! [email protected]

- Christina

Reply
Lori C (@BeatLyme)
9/13/2014 06:45:26 pm

christina,
I will send you an email tomorrow. We can talk details there is a lot that i will be doing and taking It has been a wild ride and I think it is about to get a bit more wild. Excited but nervous at the same time. I start this Monday.

Lori
Lori

Jane Claflin
1/30/2019 01:05:50 am

Can anyone email me, it's January 2019. I have this and not getting better. Please ladies I'd like to chat. [email protected]

Leo
7/18/2016 07:40:15 pm

Lori,

Please let us know how you've fared ... if you are still on this journey. And blessings to you if you are already in to new endeavors.

I've been after Lyme for 8 years. Just been treating protomyxzoa, which I thought was Babesia, for 3 months. Making slow progress ...

Reply
Susan
8/30/2016 07:38:44 pm

Dear Lori, Could you email me personally? My email is [email protected]. Your new ideas about biofilm busting I would like to run by my doctor. Also, have you tried an antifungals, yet? Many thanks, Susan

Reply
Grace
6/26/2017 08:37:55 pm

Dr Fry is leaving the practice. Can you privately e-mail me who you see in the whole phoenix area...We have driven far to see him, but now we are moving there...to one of the suburbs. Grace

Reply
Robert Krisztin
9/25/2018 12:16:54 pm

Hello,

I wonder if there is any test to show the presence of Protomyxzoa?

My symptoms are very likely to be Protomyxzoa attack.

What is the latest information; what should I take against it?

HT
11/3/2018 06:03:05 pm

I have been seeing Dr Sobel that Dr Fry referred me to after he left practice to go into further research. Dr Sobel continues with my drug treatment and listens to my concerns at each check in. Can you let me know who you see so maybe I can make contact with them and see if there is further medical support?

Donald
11/15/2018 04:40:16 pm

HT
can you please share the contact info of dr soebel?
there are several soebels in phoenix

Donald
11/15/2018 04:55:08 pm

Hi Grace,

Did you ever find a substitute for Dr Fry?

Michelle link
10/31/2018 03:46:21 pm

If you have a Dr in Phoenix area getting into biofilms, I would love some help! I have Funneliformis, Lyme, co infections, valley fever. Sickly and relapsing on and off. Any help appreciated.

Reply
Jane Claflin
1/30/2019 01:08:16 am

Please email me in have it too and very ill. [email protected]

Kelly
3/14/2019 06:11:26 pm

Who is your doctor? I have funneliformis, rickettsii, q fever, Lyme, biofilm and an unknown fungal infection

theresa nelson
11/21/2014 04:15:48 am

I habe this plus bartinella and klebsiella in my bladder. I see Ruth Kriz in Washington DC. Very expensive sine insurance does pay much. The Hexheimer reaction are the worst. Found supplements to assist body in detox. Thank you for this!!!!♡♡♡♡

Reply
sara l
12/6/2014 08:59:04 am

Theresa-
Are you seeing Ruth Kriz for IC?
What detox symptoms are you having?
Do you feel the treatments are working?
I have an appt. with her in 3 months.
Thank you for any info you can provide.

Reply
Theresa Nelson
12/10/2014 01:14:20 pm

Ruth is treating me for Lyme disease, Bartonella and Protozoa.: Plus, the I.C. has it's own bacteria: was Enterococcus and Klebsiella is showing up now. Someone in her office did not give her the test with Klebsiella and it went untreated for a year. Now I had to start all over again. Yes please see her. I'm a chronic patient meaning I was treated by Paul Fugazzotto, MD before they knew it was caused by Lyme and I went into remission. With him I was on antibiotics for 26 months. Hope I answered your question. Luck and Love, Theresa

Julie Ramsey
8/12/2018 10:42:10 pm

Theresa Nelson

I came across this blog. How are you today after seeing Kriz??

Reply
sarale
12/11/2014 04:32:44 am


Theresa-

Thank you for your reply.

I've had IC and muscle pain for 5+ years now. IC is treated (ha-ha) by diet. I couldn't tolerate Elmiron and Atarax.

I recently had a negative Elisa test. Which thanks to the internet, I now know this means nothing.

Years ago I took Bactrim for acne and it helped. I recently asked for another prescription. I took one pill and my IC flared. My bladder felt terrible and I was in the bathroom every 5 minutes. My muscles were really sore and I had a difficult time moving. After reading different IC and Lymes websites, I wonder if this was a herxheimer reaction, from one pill! Is this what detox was like for you? If so, how long did it last? I'm wondering if I should look into getting disability during treatment.

I have to say, I was healthy, no muscle pain and had never even had a bladder infection before I was diagnosed with IC. I wonder why a majority of the medical community isn't doing broth cultures and testing for parasites or protozoa in IC patients. It seems unconscionable.

Thanks again and Best Wishes.

Reply
Allen Nuzik
12/23/2015 01:10:01 pm

Hi-I think I have fl1953(UFO like objects on blue blood stain). I have been seeing Dr. Fry. I am on doxycycline and plaquenil. Nothing is happening. Can you tell me who you are seeing?
Am getting desperate. Thank You

Reply
Christina
1/1/2016 10:59:18 pm

Hi Allen! Dr Fry is the foremost doctor on this bug unfortunately I don't know of anyone else who knows more than him at the present time. If I ever do get helpful info I will absolutely contact you to pass it along
- Christina

Reply
CAT
3/10/2016 04:26:21 pm

Dr Fry is the one who discovered it, he may have sole rights to it as well. He has his own labs to study it and his lab is for the help of diagnosing his OWN patients. So I believe he has the rights to it ;)

CAT
3/10/2016 04:21:10 pm

Hi, If you need help, please email me, I can try to help you if you wish? Just email me :)

Reply
Christina
5/5/2016 04:37:05 pm

Hi Cat and Allen! just wanted to let you know I posted an update to this post that might be of interest to you! - Christina

Leo
7/18/2016 07:42:32 pm

Hi CAT,

I'd love to speak to a patient of Dr. Fry's. My doctor is clueless about FL and is following my suggestions based on readings I take to him. Ivermectin/anthelmintics/low fat/biofilm busters. We've done all of this orally, and some IVs in the past 3 months. I wonder if you have anything else to recomend?

Allen Nuzik
7/18/2016 09:21:17 pm

Ok Cat I need help. Thanks, Allen

Jane Claflin
1/30/2019 01:10:17 am

Need help ,please email me. [email protected]

Louise
7/8/2019 07:50:43 pm

Cat, I would like very much to hear from you and what you believe has helped you with these infections. Thanks, Louise

Antonio
1/27/2016 03:24:38 am

As far as the protocol(s) suggested for FL1953, they're all well and good, and, really, a lot of what's incorporated into some of them should be a part of everyone's treatment plans.

The one problem, at least for some of us, is the need for a low fat diet, being that it's just not a possibility, due to other conditions (namely, the gut-related variety - fungal overgrowth, dysbiosis, leaky gut, et cetera).

As much as I would like to take a break from living off of the healthy fats coconut oil, ghee, which are absolutely sickening, if you eat tablespoons daily, and the animal protein, I can't.

I react to even the entry level things like carrots, avocado, or string beans. Things like rice, legumes, etc.

The fact that it's brought about chemical sensitivities, with the help of gene defects affecting my methylation cycle, that does not help.

I'm trying to work on general supplementation as well as methylation supplementation, healing up my gut, all while also trying to treat for Lyme/co, so that some day I might be able to tackle this and any other parasites properly.

I'm trying now, yeah, but, from the way it sounds, a low fat diet is almost mandatory, so I wonder how effective any of my efforts in regards to this would be.

I also wonder if I have a chance at healing from the others, with this affecting me, and with all of them having a synergy in my body.

Will my immune system, even with the help of the products I'm taking, which are nowhere near sufficient in my opinion, nowhere near where I'd like to be as far as treatment, but all my budget will afford.. I wonder if I'll even be able to get one issue out of the way to work on the rest?

Methylation, keeping up vitamins and minerals, and a proper diet as well as healing my gut, those things come first. Little hard though, when you react to nearly everything you put in your mouth to the point of being ruined for the day due to sensitivities, or when the food worsens your condition (candida or possibly this FL1953).

How am I supposed to treat, when I can't even feed my body enough to stay alive? XD

Anyway.. I am ranting now.. apologies. I should just delete most of this..

Reply
Christina
5/5/2016 04:37:33 pm

Hi Antonio! I just wanted to let you know I posted an update to this post that might be of interest to you! - Christina

Reply
dave
7/10/2016 05:36:15 pm

Hi Antonio. I'm in the same exact situation as you. If you happen to catch this and want to connect, shoot me an email. It might be of huge help to both of us to share info. Its david a wiacek (all one word) at gmail. Best wishes

Reply
Grace
6/26/2017 08:44:41 pm

I have been a patient of Dr Fry for years. Before I was mosly bedridden with exhaustion and chills and sweats..I got very much better on high fat diet as so many functional docs prescribe. I do not believe Doc Fry has yet studied nutrition..He put me on Vegan at first and high starch and I got worse and worse..Never Vegan for me...I also take warfarin and the greens and warfarin do not do well...I cannot imagine how he came up with low fat. I went on Dukan low fat for weight and dried up completely, felt old, looked old, was old...We have to find what works for us...Grace

Reply
Antonio
1/27/2016 03:27:30 am

I know, I need a doctor, or doctors! Can't afford any of the literate ones, and we all know how good those other are! lol

Anyway, best wishes to all.

Reply
Julie link
5/28/2016 01:18:24 am

Thank you for this article and update. I am about to begin a Lamisil and lumbrokinase regime while continuing my 4 month protocol of IV Rocephin. Bracing for impact! Also hoping it will take down the hours per day of convulsive episodes. Lord willing, I will get better.

Take care, Julie

Reply
Susan Lowry
5/28/2016 07:30:48 pm

Hi. You have made quite the discovery with Dr. Fry! You have given me hope. I know that you said Lamasil....would Diflucan work? Thank you so much for your response....Susan

Reply
Christina
5/29/2016 07:03:52 am

Hi susan! It has to be Lamasil, it's really specific to that. However you don't have to do doxy, you can substitute Lumbrokinase in its place if you don't tolerate doxy well. I'm glad that it has given you a bit of hope! Wishing you the best

Reply
Susan
5/29/2016 03:17:54 pm

Thank you so much, Christina. That is really interesting that Diflucan does not touch it. I am very very sick with 1953 and Bartonella....I have not been able to begin treatment, yet. You are very kind to respond...Susan

Margot
8/20/2016 10:31:29 pm

Diflucan DOES touch it, as well as other anti-fungals, but it has a worse heart side effect profile.

Margot
8/21/2016 11:48:26 pm

Also, I just want to add that Dr. Fry has never suggested to me that Doxy could be substituted with Lumbrokinase. He has told me their actions are completely different. He is very committed to the Doxy and seems to view Lumbrokinase as more experimental. We asked several times which brand of Lumbrokinase to use and how much and never got an answer. But he has says Lumbrokinase is a biofilm buster. Who are you getting you information from? Are you a patient of Dr. Fry?

Beth Pickthorn
12/27/2016 09:21:13 pm

Hi.... I am a patient of Dr. Fry's. I have been since 2009. I have been in treatment with antibiotics, antimalaria's and antifungals for years. I was one of his first ones that he saw that diflucan helped me, and also sent me into a horrible herx with fungal meningitis. I rotate the three: Zith, Malarone, and Diflucan. It keeps me 'normal'. I did the low fat for years, now I don't. He knows I am not doing it as much now.... :o) I love seeing him, he understands it all. He will let more info out when the time is right. I haven't minded being a 'lab rat' of sorts with his learning what is being used.

Margot
8/20/2016 10:29:45 pm

Diflucan works, but it has more heart effects, which is why Fry prefers Lamasil. It is not because Lamasil is the better drug for this fungus. There are many drugs even stronger than Diflucan, Amphotericin B being one, but Fry will not use them because they can be more liver toxic. Fry is very conservative, which is why we trust him. Also, it is important to know that the body develops resistance to anti-fungals quickly, so they need to be alternated.

Reply
Susan
8/20/2016 11:23:02 pm

Dear Margot, Thank you for your response. This is a bit confusing. My doctor is in regular contact with Dr. Fry and lamasil is supposedly the specific drug. Yes, ampho b is strong and diflucan is fungi static. The anole drugs hinder the HPA axis. Did Dr. Fry tell you otherwise? I want to be doing the correct procedure and my doctor said that Fry was specific and did not mention rotation. Many thanks, Susan

Margot
8/21/2016 11:44:33 pm

Dr. Fry has only been prescribing Lamasil for a very short time. In fact, as you pointed out, he has known about this fungus for only a short time. He told us he was conferring with Dr. Zachrisan (sp?) in Virginia/Maryland, and that is what she uses with good effect. So that is what he is trying. Maybe there are other reasons he is using Lamasil and not Diflucan, but outpr understanding was that he uses Lamasil because she is using it and also because it is safer. He said he would not use some of the other anti-fun gals because they are too strong, not that they wouldn't work. He really seems to try to go easy on his patients and not blow them up. What he did not tell us is how long a patient would need to be on Lamasil, but he has said patients on Doxy, Plaquenil, Ivermectin, whatever, seem to need them for life, that when they stop, their symptoms return. When asked directly about his patients' experience with Lamasil, he says it works for some, not for others. What I have read about these anti-fun gals is that the body quickly develops resistance and that they need to be alternated. I think your doctor should ask Dr. Fry what length of time he recommends patients staying on Lamasil. I knew of another doctor's patient who got Diflucan and felt great for a couple of months, then crashed. I am waiting to see if this happens with Fry's patients on Lamasil. I just do not find any evidence in the literature for its long-term efficacy with anything and plenty for the fungus developing resistance. Seems to me if resistance is potentially a problem, then you'd want to hit it hard initially. But I am not a doctor and not treating patients. It's just that sometimes I feel I am not getting a straight answer from Fry on these questions. He is very much on the frontier, and God bless him, but that makes us all Guinea pigs, which is a little unsettling.

Susan
8/22/2016 01:03:47 pm

Dear Margot,
No, I am not a patient of Dr. Fry. He is a friend/cohort/fellow researcher with my doctor. Fry sent my doctor a text telling him about lamasil. Antifungal so work different ways and certain ones target certain fungi. Diflucan is an azole. It inhibits the synthesis of ergo sterol (sterol in fungal membrane). The problem with azoles is that they can inhibit the human body from synthesizing cortisol and cause adrenal issues. Lamasil inhibits ergosterol in a different phase of production, thus not bothering human cortisol. Echinocandins inhibit a different target altogether by inhibiting the synthesis of fungal cell wall polysaccharides.....a new mode of action. The polyenes like ampho b attach to ergosterol and explode the cell, an even different mechanism, the problem is that it also randomly binds to cholesterol in human cells, thus causing real problems killing so many mammalian cells. I hope this helps.
How do you know Dr. Fry? Is he your doctor? Thank you for all of your ideas< Susan

Ja
1/27/2017 07:51:49 am

My sister is a Dr Fry patient. She's been on numerous drug regimens . Her infection is highly resistant. Among others, she has been on doxy and lamisil. She is now on doxy and diflucan. She seems to make progress, then plateaus. Good luck.

Reply
Susan
6/1/2016 06:08:04 pm

Hi Christina, I am taking the lamasil and suffering from stomach pain and nausea.....My doctor does not know if this is a herx or a drug reaction....any ideas? Many thanks....anyone else having these issues?

Reply
Christina
6/1/2016 06:22:37 pm

My guess would be herx.. Do you have Candida? If you have Candida in your gut it could certainly make you herx with mainly tummy symptoms. Perhaps not so much Protomyxzoa herx but it's an anti fungal so a herx from Candida is my guess. Have you tried taking activated charcoal to bind the toxins in your stomach? That might give you relief in stomach symptoms. I'm so sorry!

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Susan
6/1/2016 08:26:56 pm

Yes, I have always had a candida problem....How do you take charcoal when you have taken the medication just moments before? My stomach seems to be a very weak link....I wonder if Protomyxzoa 1953 causes stomach issues...thus it could be a Protomyxzoa 1953 Herx, too....

Reply
Christina
6/1/2016 08:32:20 pm

You can take charcoal 2 hours after Lamasil I believe. So not right after but you can keep up with it by taking it between doses & it might help you out. I've also heard that probiotics can soak up gut toxins that die off from Candida. I've noticed that kefir can be soothing if that's the case for me. I understand that, my stomach is my biggest weak link too & creates a lot of problems with things as well.

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Susan
6/9/2016 01:35:44 pm

Hi there. I have continued on the lamasil. The stomach issue is better. the head is clearer, etc. The one probem I am experiencing is burning in my veins! Two hours after taking my dose my veins hurt and a delicate red lacy pattern especially on my arms shows up. Any ideas? It is knocking out the fungus for sure. Many thanks, Susan

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Christina
6/9/2016 11:30:37 pm

Thanks for the update Susan! Are you taking Boluoke with the Lamisil and at what dose? I'm glad your stomach issues improved, but goodness the burning in the veins does not sound fun... I assume to too is a die off reaction, since the protomyxzoa is located IN the red blood cells it makes sense that you are also reacting in a herx that targets the veins and blood cells. Hmm. Have you tried the charcoal to soak up toxins? Is it a new symptom? It might cycle through like the stomach issues did (hopefully)

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Leo
7/11/2016 08:24:27 pm

Hi Susan,

Thanks for the Lamisil information. Incidentally, I am on it for candida, on Ivermectin for FL and with the addition of Septra I am (TMI - warning) passing huge amounts of what looks like yeast from my intestines but may just as well be FL biofilm. What dose of Lamisil are you on for the protomyxzoa?

Leo

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Susan
8/20/2016 11:27:56 pm

Dear Leo,
That would be great if it was biofilm! Did "it" happen with the ivermectin? Would alibis not work as well? My doctor seems to believe that Fry has found that it takes lamasil and doxy and/or bolouke to break this up, now....no need for ivermectin? Are you a patient of Dr. Fry? As stated before,.....I just want to get this right.
Thank you, Susan

Susan
8/21/2016 12:27:50 am

Oops! I meant to say alinia.....computer thought otherwise!

Amber
6/16/2016 05:39:04 pm

Hi Christina,
I am really interested to see how you decide to treat protomyxzoa and what the outcome is! Thank you for all the information on this page. I was dx with protomyxzoa from Fry labs as well. I have not treated for it yet. My neurologist wants to put me on Ivermectin/ strolmectol ...2pills 2 times a day for 6 weeks. I have lyme, bartonella, babesia, mycoplasma as well. I am really neurologic and loosing my ability to walk but not sure which bacteria or parasite is causing so much neurologic damage. I decided to start Bee Venom therapy 5 months ago...have had alot of herxing and up and downs...its a 2 year protocol. I think I am going to wait a couple more months before considering doing the ivermectin. I just want to see where I can get with Bee venom.

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Amber
6/16/2016 05:40:44 pm

Have you started your treatment for the protomyxzoa yet?

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Amber
6/16/2016 06:21:41 pm

Also I used to be on high dose cholestyramine and it absorbed all my fat intake and I felt horriible. I do better on high fat diets. So i am wondering if I dont get enough fat in my diet the bugs start eating my body fat or even my mylen sheath? And that does more damage. If there could be a way to kill them with out stopping eating fat?

Christina
6/16/2016 07:44:56 pm

Hi there! I will keep you posted if I get on this treatment, but above you can see Susan is currently on it, so she might be able to chat with you more about it. I think if you give yourself a chance with the Bee Venom then you will know if you feel comfortable to switch to another plan or not. It really is a personal thing and I believe you will know when one treatment feels like its at a plateau, etc.

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Christina
6/16/2016 07:46:59 pm

As far as the diet goes, I think you need to do what works for you. I am someone who needs more fat because I have a low body weight and I cant do low fat or else I shrivel away... When you say you feel bad on low far what do you mean? Some people will say that low fat makes them feel bad because the bugs are being starved and therefore they are dying and what you experience is a herx so its actually a good thing. But I don't know exactly what you mean by feeling badly.

Christina
7/18/2016 07:49:33 pm

Christina,

Could you elaborate on how the Bee Venom helped your protomyxzoa symptoms. Bee products, like propolis, do wonders for my PR symptoms.I've just been looking for the right time to do bee venom. Maybe now is it.

Susan
6/16/2016 10:34:05 pm

Okay. The Lamasil stomach issues went away in time. I just was on half a pill and now that the herx is over I am going up again. I also take it with oatmeal and quinoa for more food in my stomach. It does work....Thank you Christina.

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Christina
6/18/2016 11:23:10 pm

Thank you for the update & also the tip to take it with something like oatmeal! That will be helpful to others as well :) thanks susan!

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Amber
6/17/2016 03:59:05 pm

Hi Christina,
So When I was on high dose CSM (cholestyramine) ,taking is 4 doses a day ...it was absorbing all my fats and some nutrients. So feeling bad was ...feeling really weak and sick to my stomach a bit...loosing weight. I have a hard time gaining weight as well. Last year I was at 115 lbs and still loosing I thought I was going to vanish. However herxing for me is different. With a herx i feel my neck stiffen, back stiffen, muscles tense, body aches all over, liver pain, sometimes brain fog, and worsening of my symptoms. And it can vary from a big herx with lots of these things to a small herx with just some body aches and worse walking.

But my curiosity with fats is that...I am wondering if it is good to eat high fat not just so that "we dont waste away" but also so the bugs dont eat at our bodies to get the fat...like myelin sheath. I dont know how neurologically affected you are but for me - now I have a hard time walking, my autonomic nervous system is compromised, bladder problems and vision too. It looks very much like MS for me.
Now with the Bee venom I have been gaining weight which is great and some of my numbness and neuropathy is going.

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Christina
6/18/2016 11:25:36 pm

Yes you sound much like me then! Low fat is not cut out for every body type & some people do badly on it (like us)! Dr fry said in our cases to keep up with the fats and attack otherwise. I tried it many times and while it helps others there will be cases like ours which we have to listen to our body and what it's saying.
You have a really great point about the lack of fat possibly attacking the myelin sheath. If we already are low in body fat and body weight it would be detrimental in that sense I agree! I look forward to hearing how the bee venom works for you as you continue, it sounds incredible l!

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Susan
7/14/2016 02:51:05 pm

Dear Christina, I am on Lamasil 250 mg. a day and may go up because my hands have started peeling again....the gloves for the IV treatment are kept on just long enought to trigger this. My labs are great. I started doxy....lots of herxing....fatigue, crying, hopelessness, etc. THEN, relief. No pounding heart when I went to bed, no seizure like activity in bed....I went from 200 mg. of Doxy to 300 mg of Doxy IV...stomach issues came on board. I added Boluke/lumbrokinase.....OH MY! All symptoms flaring within one pill...by the third pill really going to town. What dose does Dr. Fry use in Boluke? Many thanks, Susan

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Christina
7/17/2016 02:15:51 am

Hi Susan! Oh my, you are certainly killing off a lot of bugs with everything you're doing. Especially doing doxy and lamasil and boluke! Often times fry will just let people do Lamisil with either boluke or Doxy. So both together seems kind of intense, and is probably why you are herxing so much! I'm unsure what the dose is for the boluke but I do think it's high, somewhere around 4-6 caps a day. I've never been able to tolerate more than 1 max so I think you need to follow your body and don't overdo it!

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Susan
7/17/2016 02:40:07 pm

I am going to go to 200 mg of Doxy to save my stomach. My Boluke dose is 20 mg/300,000 iu. Is that the normal dose percapsule? I am at only one? My doctor is saying to do 2 in the a.m. upon arising. We are probably going to go up on the Lamasil a tad. I read several studies that gave 1000 mg. daily because it did not work as well for systemic yeast because it goes to the extremeties. Anyway....I would go up a 1/4 tab....instead of the 1/2 tab the doctor said to do. Baby steps. The hands peeling show you that I am right on the verge ....do not have enough antifungal support. Do you know the dose of lamasil or doxy that Dr. Fry recommends? Many thanks and I will keep you all posted. Susan

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Julie Horney link
7/17/2016 03:08:02 pm

My LLMD was told in a phone call to Dr. Fry to use 250 mg Lamisil and increase to 6-8 Boluoke. I cannot get above 1 of each (i.e. can't increase the B without I crease convulsive spells and night terrors!).

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Susan
7/17/2016 03:16:40 pm

Dear Julie, Was the Boluke the same dosage as mine? 20mg/300,000? I know about those horrible dreams ...terrors....crazy thoughts that are not your own and it did bring my seizures back. I have got to try and go up, though. Do you know how much Doxy? I will need to raise my lamasil...still having some fungal issues. Also, FULL MOON.....things just get worse, it seems. Do you suffer likewise? Susan

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Jennie
7/24/2016 10:06:46 am

I just wanted to share my experience. I was referred to Dr Fry in 2012 after two years of mystery illness that left me disabled and a diagnosis with Valley Fever, an invasive fungal infection. First, Fry doesn't take insurance and it was extremely expensive for me to receive care and testing. He found that I had an "abnormally extreme" case of protomyxzoa rheumatica. He ignored the Valley Fever completely (my primary care doctor began treating me for it and it is supposedly gone after 6 months of high dose diflucan). Fry's communication skills are awful. He explained very little, told me my blood work showed a disease I'd never heard of that he believed was the source of all my seizures and migraines and disability, then prescribed a low fat diet and antibiotics. Within a month, I was hospitalized with c-diff and almsot died. Literally. They thought I wouldn't survive. So I had to stop all treatment and fight an antibiotic resistant strain of c-diff which had been caused by the anitbiotics and antifungals. After three years in bed and sick as heck, I flew to Florida for a fecal transplant wh couch finally stopped the c-diff last summer.

We moved away from Arizona. Even when I was in Fry's care, he wouldn't answer many questions and was not at all a thorough Doctor. It was one of my most negative experiences ever with a medical practitioner and verged on negligence. When I was hospitalized for the c-diff, some of my prescitpions for the PR treatment needed to be refilled, and he insisted that I make an appointment so I could be seen before he would refill. I was too sick to do so and that's when I stopped seeing him altogether. Then after our move, he will not work with or even have conversations with my current doctors to consult about a disease that only he knows about! And to retest, I have to pay out of pocket, but then my doctors can't do anything with with information. His office says I can fly to Arizona and make an appointment to be seen. I've never had a specialist NOT consult with my doctors from out of state.

I still have some health problems, specially with digestion, pain, dizziness, extreme fatigue. But the seizures, paralysis, passing out, weight loss and almsot everything the Dr Fry said was PR have almost utterly gone away.

For the past three years I've used herbs and supplements to fight the PR and c-diff. I was careful not to take many of the herbals internally because of c-diff. I used oregano, cinnamon, lemongrass, and Melissa essential oils rubbed on my feet and spine every single day. Garlic and grapefruit seed extract internally. Natokinese enzymes, other digestive enzymes, coconut oil, colloidal silver, ASEA, and lots of exercise, hot baths, and soaking in steam rooms and saunas. Dr Fry said that without aggressive treatment I would be very ill forever and perhaps develop Pakrinsons, MS, lupus. While I'm still suffering some symptoms that elude my doctors and which may be PR, I've regained most of my health WITHOUT his treatment.

When I have the money I want to retest and see for myself if indeed I still have any signs of his yucky biofilm bug in my blood, or if my natural treatments have totally killed it.

In all, his methods are awful, his patient relationships are dangerously negligent, and he is dealing with a new disease that he doesn't even understand yet. It may not be responsible for the problems that he thinks it's responsible for and he doesn't know how to treat it, and he's impossible to work with.

Jennie

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Sharon
11/30/2016 11:59:43 am

Hi Jennie,
I am also likely dealing with PR, but have been managing my disease as Lyme, since I have that diagnosis. It continues to be up and down for me, especially since I recently stopped all antibiotics and have started to work with herbs, further changes in diet, and mineral supplements (iodine and boron in particular). I wanted to suggest, if you don't already, that you do enemas. I have been passing "rope worm" with coffee enemas for almost a year, that are likely PR related. When I treat with oral MMS Protocol 1000 and/or do MMS enemas (10-20 activated drops/L in 1-2 litres filtered boiled and cooled water, served warm), I also release a lot of fecal pellets, that are often at the end of ropes, sometimes throughout them, and also alone). With MMS I also see "floaty bits with veinage" about the size of a dime, that appear to be related as well, and sometimes can be seen as part of one of the fecal pellets. Over 9 months, clearing material from throughout my system (small intestine I think as colonoscopy was clean), has helped a lot and given me a constant visual of what is going on, and how much biofilm is produced (The rope worms are not worms - likely biofilm, but they certainly hide other nasties - releases can cause a temporary spike in symptoms). Good luck.

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Beth Pickthorn
12/27/2016 09:31:26 pm

Sorry that you had this experience with Dr. Fry. I have been a patient of his since 2009 and love him. He sits there and we discuss all treatments he's doing, new updates, what all is happening, etc. He even has taken me to his office to see power points that he has worked on for conferences. He is a brainy type of guy... sometimes I get lost in the tech'y talk, but I trust him completely. My dad and aunt died of ALS and he is doing studies on how left untreated, that it will trigger ALS, MS, Parkinsons, etc. I will stay close to his treatments always.

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Pete
6/21/2017 02:31:45 pm

It is not fair to accuse Dr. Fry of "negligence" due to your C-diff problems. You seem quite smart and educated, so why not read up a bit about C-diff to see how it develops? True, it usually rears its ugly head after an antibiotic treatment, but that does not mean that antibiotics are the cause! They are not. Antibiotics only reveal that the infection is there, and now that antibiotics have wiped out most of the probiotics, C-diff spreads. I had the exact same issue happen to me after a treatment with Amoxicillin. Millions gets amox prescribed, but only some of us end up fighting for our life. I cannot blame what happened to me on my doctor or Amoxicillin, only on the fact that I had it before and no one knew about it. People even get it in hospitals and die from it, so it is not an easy bug and it happens to any type of patient regardless of who their doctor is even when they are under 24-7 care.
I managed to fight off C-diff with my own protocol, but had to try three different times and it was far from easy.

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Jennie
1/3/2018 10:34:27 pm

You know absolutely nothing about c-diff. It’s a super bacteria born and bred in hospitals. Antibiotics do indeed cause 99.999% of cases in the US. It doesn’t exist in a healthy gut. At all. Dr Frye was nehlugsnt from beginning to end. And I Alamo’s lost my life as a result. He’s very nice, very smart. But I almost died in his care.

Bev
4/16/2023 09:23:58 am

I know your post is very old but I want to say I agree with you about Dr. Fry. He was very willing to give me antibiotics for whatever imaginary infections I might possibly have but totally unwilling to actually test me to know what I had, if anything. He said it was a conflict of interest for him to prescribe tests from his own lab but he would not prescribe from any other lab because they were not as good. He told me to get my GP to prescribe, which of course she would not do. Now there is no such thing as protomyxzoa rheumatica, so what are we to believe? Is the fungus, funnilimormis, capable of causing sickness? He has shut down and it is no wonder. He was charging ten dollars a minute for online consultations, to basically provide a prescription pad for whatever drug you thought might help you.

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Susan
8/13/2016 08:43:55 pm

Dear Chritina, What helps you with bartonella?

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Christina
8/14/2016 12:34:18 am

Susan,
I used the Deseret Biologicals Bartonella series therapy treatment and it worked incredibly well! Gentle in terms of no side effects outside of Herxing & very potent to kick Bartonella.

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Joe K
11/9/2019 03:05:11 am

Susan, I'm using DesBio products now and totally agree with Christina. Their products are not affected by food or pharmaceuticals. You can take the tinctures in water, sipping during the day or three times a day in drops. My Naturapath put me on these for Lyme, Bartonella & Babesia and she has stated it usually takes one to two years.

Susan
8/20/2016 07:26:42 pm

Well, the doctor has raised my lamasil to two 250mg. tablets a day. I was still having the fungal hand peeling and when he put me on clindamycin for tooth surgery I got a yeast infection. Also, we measured my levels of candida and I still had a goodly amount even with one lamasil. I feel pretty badly. The crying and the heart pounding are worse. POTS is flairing and internal jitteriness is pretty bad. He told me that dr. Fry said that the patients have a rough time for about a month then feel better. I certainly hope this is a herx. The internal jitters/nervousness is bad. Susan

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Christina
8/20/2016 10:49:11 pm

Hi Susan! Did you feel worst post tooth surgery? Can I ask what you had done? I ask because that may be playing a role in how you currently feel.. Email me if you want to chat more in depth! [email protected]

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Susan
8/20/2016 11:15:25 pm

Thank you for your concern, Christina. I had four root canals removed and they were quite infected. My bodywork person says that my entire cranium has opened up. It has been four weeks in two days that I had them pulled. The clindamycin given IV set off more candida and bowel problems. The doctor upped the lamasil and wow is it tough. I received an email from someone....I think on your site and they stated that Dr. Fry could use any of the antifungals but he chose lamasil. My doctor felt after talking with Fry that lamasil is the only one he has seen work....

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Susan
8/22/2016 12:48:13 pm

Dear Christina, I tried to email you at [email protected] and it said that it was not a correct email? Trying to reach you....many thanks, Susan

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Susan
8/22/2016 05:24:15 pm

I had been reading about biofilm busters today. We know that the matrix off biofilms is polysaccharides and minerals like magnesium iron etc....why dr. Fry does not want people on magnesium supplements and why our bodies are usually anemic...our body's withholds iron to keep it away from the bugs. QUESTION....Why don't we use some kind of EDTA OR DMPS combination with other things to break down the mineral aspect of our bioilms? Bolouke is a fibrinolytic and does not attack minerals....an ideas would be helpful. Thank you, Susan

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Susan
8/23/2016 07:25:06 pm

Big news! I will also try to keep this message grammatically correct ....I just got my husband's test back from fry labs. He is positive for Protozoa 1953. The AMAZING thing is that it has been renamed...."funneliformis mosseae" because it shares 99.09% DNA sequencing with that fungi. Only 0.91% is "unknown" and maybe that is where the Protozoa comes in? Anyhow my doctor told me it had been renamed......fungus.....mostly s fungus. Fungi and Protozoa share "ergosterol" in their cell walls.....mammals do not. Lamasil lowers the synthesis of ergosterol. Diflucan does also but it alters the cortisol mechanism in humans thus you crash....low cortisol. All very interesting and "hot off the press". My test six months ago did not have all this in formation. Next time I will tell you the bacteria they found by PCR in my root canals....scary....but more information....

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Camille
8/31/2016 11:56:27 pm

Is funneliformis mosseae the same as Protomyxzoa Rheumatica (FL 1953)? I just got my labs back, and I have funneliformis mosseae. Dr is recommending ivermectin and albenza.

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Heather Hermann
9/15/2016 11:31:23 am

Yes. They have renamed it. I just saw Dr Fry a few days ago. They have now discovered 7 different strains of the protozoa. That's why one medicine doesn't work for everyone.

Susan
9/15/2016 12:12:06 pm

That is the one my husband has and is the major one of mine. Both of mine are from the glom us family.....one is mosseae and one is versiforme. I was told to take Lamisil and doxy...working up on bolouke.....herx is awful and Dr. Fry told my doctor that it can go on for several months. Does anyone have weird lumps with this? I know it is a prodigious biofilm maker and also loves fat. Lymphatic stasis is a problem, too....ANY IDEAS?

Kari
11/12/2016 12:38:57 am

Susan did you n hubby do the protozoa DNA test at Fry labs for $2800 or which tests? How is trtmt going? I tested significant for FL1953 in 2012 so would like to get further testing for this. Thanks for your input!

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Susan
8/30/2016 07:33:04 pm

I want to correct my previous post. I do not know if all Protozoa rheumatic a are the same as my husband's test. Mine had two types of fungi the same as my husband's being the strongest....66%...the other 44% was a match for another type of fungus. It mat seem that this protozoan test for Protozoa 1953 is showing more and more fungal isolates. I wish someone who understood all this could explain it to me. I am treating with Lamisil and doxy and just one bolouke pill. I have a rash on my arm that has improved, still have thrush, skin peeling on my hands has improved....does anyone have these symptoms? Also, I have lumps that grew very quickly in my arms, belly, and legs with weight gain. Has anyone suffered from these lymphatic blockages with this Protozoa/fungus? Christina, I hope that you have some ideas.....thanks, Susan

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Susan
9/15/2016 12:14:47 pm

Dear Heather, I am on Lamisil, doxy, bolouke. Does Dr. Fry have any other ideas? Especially for busting the biofilm? Many thanks, Susan

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Larry link
1/5/2017 04:52:22 pm

Susan
Did the bee venom help the neurological problems, I have alot of the same issues. I use a cane or walker, going to get a wheelchair, my walking comes and goes with the wind. Also a new patient of Dr. Fry.
Larry

Johanna
11/17/2016 11:19:06 am

Susan, you must do lymphatic massage. Message me and I can send you the information. They usually do a full body 90 minute massage and it's incredible.

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mary
9/21/2016 09:07:13 pm

Hi, I've read a lot of these comments. I have IC (decades) and have just started the testing with Ruth Kriz' office, including Fry Labs.

I have one question: Is anyone getting better?

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bob trussell
9/24/2016 04:38:35 pm

That's a good question Mary. Sooner or later its got to be about outcomes.

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Bob Trussell
9/24/2016 04:37:51 pm

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Mary
9/24/2016 06:02:43 pm

Well as someone who's struggled for so long I pursued many varied treatments, doctors, protocols. 11 doctors later Dr Hanno diagnosed me with a hydro dissension which helped for awhile. Dr Nochimson and a rotation diet really pinpointed my triggers and I've lived manageably, with horrible episodes of pain and/or a UTI on top of it.
So I've done the whole try anything/search everywhere/pursue all leads thing and I'm not doing it anymore. My life was about this and I didn't want it to be anymore. But things have changed dramatically with this here internet thing and I'm back in the game.
But I'm not trying anything only what's actually worked.

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lawrance
11/14/2016 11:57:11 pm

any one with Saccharomyces cerevisiae in the Pan-Eukaryotic (Protozoa / Fungi) DNA Sequencing in the fry labs test?
what does it means?

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Pete
6/21/2017 02:40:11 pm

It is the fungus used to make beer and maybe few other things. Hard to believe you are infected with it without doing those things that increase the risk - taking S. boullardii supplement or exposure to Saccharomyces some other way, or have depressed immune system... but it does seem hard to treat. You can easily find a lot of info about it and treatment options on the net.

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Johanna
11/17/2016 11:22:29 am

Well guys and girls, I'm new to this website. I see Dr. Fry and was recently diagnosed with Lyme and apparently a previous exposure to Epstein Barr and West Nile virus. Currently in doxy 100mg. And a ton of supplements. Not sure where to go from here. I visited a terrible neurologist who was very unhelpful. Any recommendations in Scottsdale?

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Margot
12/27/2016 10:48:32 pm

Saw Dr. Fry in December. He has stopped Lamasil and is now using Diflucan. He says the thinking about Glomus is that it behaves like Valley Fever and he is he treating accordingly. That's our latest and greatest. He still is the only one to make a dent in our child's illness, though. Happy New Year to all.

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Issie
1/2/2017 12:13:39 am

I'm a patient. My last visit to him was Dec 2016. I've been doing lots of herbs from Supreme Nutrition, essential oils, stevia and coconut products. I did a trial of Doxy again. Before, when I was so sick, 3 pills a week caused me issues. This time 2 pills a day for a full month - gave me no herxing. He wonders if he would even find it in my blood now. I had a significant amount when I first tested. I've been doing many cleanses of different organs, along with some parasite cleanses and herbs for h pylori. Using a lot of probiotics, rotating strains. I'm using a lot of curcurmin, ginger, tumeric, cinamon, long pepper and coconut milk with stevia in coffee - thats my morning start. I did the low fat, vegan diet for years and reversed Chronic Kidney Disease a full step. Now I'm more fat, mostly vegan, no dairy and no grains.

I too have the fungus, it was found in a thyroid biopsy. So much of what I'm doing addresses fungus/mold. A lot of my attention has gone to mold detox as I had a very bad and extended toxic mold exposure. It really set me back. Appears my efforts have tamed my PR too. You need to get as chemical free as possible. Read labels on everything. You will be surprised how as you cleanse you will notice things that should have already been detected. I have gotten more sensitive to offenders. This is a good thing.

I also have Mast Cell Activation Syndrome (MCAS) and HyperPOTS. So dealing with various, very complex issues. I'm better in so many ways......but still not completely there yet.

Really trying to address the mold since it is now in multiple places/organs causing tumors. This is different than PR. A separate issue.

Issie

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Leo
3/17/2017 12:14:31 pm

Issie, we've got a lot of the same issues. Mold, the fungus (I suppose you mean funneliformis) - especially bothersome thyroid issues, MCAS.

Would you care to chat? We may be helpful to one another.

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Hayley
1/3/2017 01:00:01 am

I'm curious about everyone's experience. Seeing Dr. Fry is new to me. I'm new to this theory & would love to know more.

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ANGELA
1/11/2017 06:45:31 pm

PLEASE HELP. FRY LAB JUST DISCOVERED FUNGUS IN BLOODWORK, NEED ADVISE.

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Beverly Hennager
3/18/2017 03:57:14 pm

I quit treating lyme and PR in 2014. I had been on the low fat diet (vegetarian) but started eating fat again which may have been a big mistake. The only symptoms I have now are daily headaches and fatigue. I should begin treating the PR again. What got me into remission was ivermectin, liposomal ETDA (degrades the biofilm) and the low fat vegetarian diet, helped along with prickly pear cactus (binds with fat). I was very sick for 8 years and Dr. Fry extensive biofilm in a blood smear. When I allowed the fat back into my life again I went overboard, gaining 30 pounds. I can't say that is the reason I have lost stamina because that seemed to coincide with lyme and never came back, but it is pretty back these days. I feel like I could faint sometimes.

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Margot
3/18/2017 04:41:10 pm

Has anyone been prescribed the Diflucan Dr. Fry is now using instead of Lamasil for the fungus? How are you doing? Do you find the change from Lamasil to Diflucan beneficial? Is anyone getting better?

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C Richardson
3/24/2017 03:43:49 am

Having success with Xylitol on candida and biofilms. 1/4 tsp increments. Diflucan 400mg keeps most symptoms at bay. Gotta figure out how to attack the Bart. I've seen good suggestions here so I am subbing to the comments. Do others have the painless hard subcutaneous nodules? Would like to know all spp. of fungus that have been positively identified in anyone.

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Brett
3/29/2017 11:04:21 am

Things that affect protomyxzoa and biofilm from all the data I have collected.

Doxycycline
Roxithromycin or biaxin
Albendazole (taken with oil or fat important)
Alinia
Ivermectin
Lamisil
Stevia
Nattokinase (most effective biofilm,taken on empty stomach)
Lumbrokinase (biofilm)
Serrapeptase
Cryptolepsis
Alpha lipoic acid (biofilm)
Edta
Clove
Oregano oil

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Brian
4/4/2017 02:01:12 am

Hello. I have had Protomyxzoa Rheumatica since June of 2010 and saw Dr. Fry for about 3 years. I am worse now than I was then. Was hoping to speak to someone that could point me and my IL doctor in the right direction for treatment. I also have a Chiari I Malformation, so the head symptoms actually hit me for a double whammy. It is so bad that I am on long term disability now. I tried the McDougall Diet for 3 years and saw Dr. Fry from 2010 to 2013 trying various antibiotics but it never killed this bug. I have to take Alprazolam at 3.5MG a day for the head pain. I haven't really seen anyone talk about how bad the head pain is and how it literally never goes away, or head pressure, or head feeling like it wants to float away like a balloon. So maybe that stuff is tying the PR and Chiari I together. I don't know. I'm in IL now instead of AZ and am looking for how to treat this thing. I've read through a lot of the posts here and on other sites. How do I get my LLMD in IL on board with a treatment for what I actually have? Is Fry talking to any out of state doctors anymore? What is a good, effective protocol that is safe to take with 3.5MG of alprazolam each day? Would be great if this even got one reply. I wish all of you the best. I am doing pretty awful these days and wonder how much worse my symptoms are going to get...

Brian

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Sharon
4/4/2017 11:11:19 am

Brian, I also have a lot of head symptoms but am convinced my exposure was food-borne and also have significant symptoms around my liver and through my rib cage. I think it is progressing from Lyme (LLMD clinical diagnosis) to Lupus. I have made good progress using alternative treatments including enemas (1L boiled warm water rinse followed by 2L coffee enema held 6-10 min), borax supplementation (3x1/16 tsp per day), 2% nascent iodine (start slow and beware fluorine/chlorine/bromine detox), herbs: Bab-2 (start slow) then Cryptolepsis, ATP slow release oregano 2x3/d (eventually the creature encapsulates it, but very effective initially), and most significantly, MMS Protocol 1000 then 2000, and dermal application MMS 10 drops/DMSO maybe 1 cm cubed (beware mildly burns the skin particularly in infection areas). With the MMS, if you have intestinal infection (which you may be completely unaware of), you will see rope worms, and little fuzzy bits with veinage expelled. I've expelled hundreds of both and am slowly improving. Long haul - good luck.

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Sharon
4/4/2017 02:32:38 pm

Sorry, the nascent iodine I have ramped up to 6 drops per day. It is much stronger/bioavailable than Lugol's. Also important is chelation - this disease seems to have a significant atherosclerotic component. I am taking chelators NAC, garlic, and vitamin C, sometimes EDTA, and mixing EDTA (1/16 tsp) in both my daily water rinse and coffee enema regime. The coffee enemas are very good for toxin elimination as well. It is my go-to on bad days. Without MMS I was up and down like a yoyo. With it, I am much more stable. Note though that MMS and antioxidants (coffee, vit C, NAC etc) need to be separated, ideally by 2h each side as they counteract. I try to take antioxidants first thing in the morning, and late at night. Enemas also late night. I also take probiotics and am increasing gelatin intake for gut healing. Probiotics at 2x180B (3x60)/day first and last thing. And biofilm reducers - serrapeptase mostly lately. I'm gluten and sugar free. Gluten removal reversed my abnormal ANA results. Sugar very important. Low fat I think helps too, but am improving without managing it. If you decide to do enemas - they give an excellent visual on the situation, for me at least, with big expels preceded by flares in symptoms, consider a mineral supplement as well. I'm seeing both an LLMD and ILADs trained naturopath - highly recommend a naturopath if you don't have one.

Jessica M.
4/24/2017 11:17:07 pm

I was referred to Dr. Fry last May with positive Lyme results. He ran his own labs and I didn't come back positive for Lyme, but have shown positive on other Lyme tests since then. I paid the outrageous fee for the specialized testing & altho there was not a 100% accurate finding he still gave me the diagnosis of the Funneliformis Mosseae. I was on 100mg of Doxcy on a vegan diet for 6 months along with Steroid injections. It took me a long time to tolerate the 100mg and just never found relief totally in the 6 months of treatment. He told me that I needed to be on antibiotics for life more than likely and I just didn't want to accept that. I sought out another Lyme disease Doctor "Dr. Mcneil" in Carefree, Az. He himself had Lyme disease and has also treated a friend of mine with Lyme disease which she is now in remission. His protocol I've been on since January. Weekly high dose vitamin C Iv's with glutathione pushes. He also had me start a low dose of Naltrexone as of December. I have gone off all pain meds since December. My chronic pain is gone. I'm still battling fatigue & neurologic issues but I'm way better than I was last year. Also, this doctor tested my CD57. Has anyone else found any accurate correlation with that test and the severity of the Lyme disease affecting the Immune system? The first time that lab was drawn in December it was 60, after months of the IV therapy and LDN we thought I may be in remission and retested the CD57 but it was lower than before and now is at 50. This is such a confusing disease. I read about people going into wheelchairs...and am afraid of not knowing if I don't try specific treatments that I may end up that way?

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[email protected]
4/27/2017 07:48:12 pm

I got the positive "funneliformis mosseae"results back but from what i understand from the lab, this is different than the protozoa...am very confused even with the lab explanation. So I'm going to have my doctor call Dr. Fry for treatment ideas. I'm not sure my doctor will understand this either though. Will report back anything I find out.

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Sheelister
5/3/2017 01:36:38 pm

New on forum today. I see a naturopath who swears by Dr. Fry. Just found funneliformis mosseae in my blood test. She has prescribed sporanox. Waiting to take it until I check with oncologist, since I will begin immunotherapy for melanoma soon. Could be compounded side effects from both! Will keep you posted.

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Issie
5/6/2017 03:21:06 am

The below is a post I made on another forum. I no longer here to Doxy. I attribute my success to lots of herbals mostly from Supreme Nutrition. Also addressing a new finding of APS with a positive Lupus Anticoagulant (too thick blood). Using herbals to thin blood. Other helps have been enzymes, things to up acetylcholine and calcium channel blockers. Im doing so much better. Was thinking to try the antifungal - but on second thought - my herbs seem to be working with less risk. He wanted my list today.

https://www.ncbi.nlm.nih.gov/pubmed/28411089
Dr Fry, Doctor/bioscientist - who found Protomyzoa Rehumatica - now has determined it's a type of mold/fungus. (We found it in my thyroid biopsy.) He just got a peer reviewed paper in Pubmed. He has determined that with us, who have issues with it, there is a genetic flaw and we don't have a certain protein to break this mold down. It can cause tumors, cancer, atherosclerosis and a host of other issues. He is going to stop seeing patients and go into lab only, for now, to try to develop a protein for us to use so our immune system will keep it in check. It will probably be a number of years before that will be available.

I asked him what in the meantime. He said to keep with my herbs. I seem to have it under control. But we are going to see if an antifungal may help more. He has found using an antifungal along with Doxycycoline gives his best results.

Exciting times ahead. I stick to what I've been saying forever --- Genetics/Epigenetics, autoimmune and inflammation. If we could get that "fixed" we'd be "Healed".

Issie

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Lee Mayhall
5/7/2017 02:37:51 pm

Issie,
Can you share the herbal protocol you have been using? Thank you!

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Issie
5/7/2017 09:31:05 pm

It's been a long process. I did a whole lot of cleanses both for parasites (though I don't think I had any) and mold. I had a mold exposure, even after having been sick for many years with POTS, MCAS and some other autoimmune things. I did part of Dr Shoemaker protocol and part of my own. I had a very knowledgeable guide helping me through the evironmental mold detox (thanks Brian) and used VCStest.Com to monitor myself. I cleaned up what I used as far as chemicals, soaps, etc. Even so far as changing my makeup to cleaner ingredients. I was mostly vegan - but found I did better adding back meat occasionally. (I seemed to get too weak and lose muscle without it.) I also, added in coconut oil in the form of coconut milk in my coffee (coconut has been found to kill yeast and it seemed to help with my brain fog). Stevia has been found to help with Lyme and I use it as my sweetner source and use it pretty often. A lot of what Ive done was after being very strict on the low fat vegan diet. I was religious about it for 3 years. I also did Doxycycoline in this time period. But only tolerated 3 pills of it a week. I had bad herx issues. (The last two rounds of Doxycycoline I did was 2 pills a day for a full 30 days with absolutely no herxing.) I use turmeric, ginger, cinnamon in my coffee with coconut milk and stevia every morning. I call it my thia coffee. I used curcurmin in higher doses in smoothies a few times a week. I also rotated between many of the herbs from Supreme Nutrition. About 4 to 5 different ones as I felt I needed them. (Their website gives detailed information as to what each herb has been used for in history. When you read it you will get a sense of whether or not you need it.) I order it from a really great guy off eBay his store name is jankdc. I used the coconut charcoal from this company along with D Earth to assist in my detox and as binders. Using good probiitics has been important. Getting gut ecology and digestion optimal. Also using enzymes to break down biofilm and assist in inflammation. I use a few other supplements too. I addressed my Methylation mutations and got that going in the right direction. I'm so much better but still not completely well - but much more functional. Having more of a life now. It's a long road......but it looks like we may be on it awhile and will need to figure out the best way to live with our organisms within as we may not be able to completely get rid of them. But, with the progress I've made - I feel very hopeful and excited.

Issie

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Erica Anderheggen
8/25/2019 02:44:50 pm

My daughter sounds like you
Id like to be in touch
Best
Erica

Debbie
5/9/2017 10:30:52 pm

Hi. I'm new to all of this. My 16 year old was just diagnosed with this by the Fry DNA sequencing. Would any of you be able to help me understand her test results? I can see that she has this but I don't know how. As it is or what she is up against. She's been in treatment for Lyme and bartonella for over 6 months. Thanks so much. My email is [email protected]

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Issie
5/11/2017 04:52:34 pm

I wonder how it will go for those of us who will be X - Fry patients. We will be looking for docs to continue our care. No guarantee that the new docs taking his practice will be on board with the known treatments. It seems so up in the air at this point. I'm glad I'm doing good on my alternative treatments. Hope I keep going in a positive direction. He was my primary and now I'm without one.

Issie

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Nicole
5/12/2017 04:48:03 pm

I was just diagnosed with FM by Dr Fry and he put me on doxy and lamasil. I am nervous to start this combo bc it doesn't seem anyone has come back with solid success. I worry the drugs may cause more harm than good, and that I still would not be cured of FM. At this point in Dr Fry's studies, has anyone had success lately? Thanks.

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Clint Richardson
5/12/2017 05:50:40 pm

This thing laughed in the face of Lamasil so my doc doubled the dose!

I fired him and switched to Fluconazole 400mg per day and I will bet many of you will have to also. Nitazoxanide or Tinidazole also hits this thing.

Doxy and Fluconazole works better but eventually you will likely have to add a macrolide and Rifampin down the road after finishing the doxy. I've been on Fluconazole for close to a year now.



Thank you Dr. Fry for making your work available to us on the Freaky Fungus Thingy. Youre a brave soul.

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Issie
5/12/2017 07:32:38 pm

How much Diflucan are you taking a day? I was less afraid of it than Lamisil when I looked up both drugs. I asked for this script over the other one. Are you doing it with Doxy too?

Yes, Dr Fry has been a brave soul. I have gotten so many answers while under his care. I appreciate his dedication to what he believes in. This could be such a huge discovery for health. I'm hoping he continues with his passion to discover. I for one will miss him being my doctor.

Issie

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Allen Nuzik
5/12/2017 09:38:55 pm

Hello Clint. I have PR and have been a patient of Dr. Fry for 2 1/2 years and nothing is happening. Can you please tell me where you got the medications you are currently taking? Am desperate. Allen

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Issie
5/12/2017 11:14:24 pm

Allen, do mold cleanses. Read up on that. Dr. Fry will be working until end of June 2017. He did write the scripts for me. Just not sure what the new docs that take his place will say. I'm sort of afraid to start something and then not be able to continue it. And.....like I said before...I'm doing so much better. I'm not sure I even need to do the med. I did it with herbals. I also think the coconut fat in full fat coconut milk and stevia may have helped. I know Dr Fry feels magnesium is an issue, but for me it seems there are issues with my calcium channel receptors and I started having soft tissue calcification and needed to add back magnesium. It helps keep calcium where it needs to be as does Vit K along with Vit D. I don't do it daily, but I don't exclude it completely now. I hope it doesn't make things worse as for the mold/protozoa - but I now feel better with my routine.

Issie

Beth
5/12/2017 11:22:40 pm

I've been a patient of Dr Fry since 2007 and will MISS him as a friend and dr. I moved away from Scottsdale a few years ago but still go back to him. Was suppose to see him a month ago and had to cancel. Now rescheduled for next week.

Hate that someone hadn't called me to tell me that he was retiring from seeing us by the end of the month!

I have been one of his lab rats all this time and I haven't minded it. I believe I was one of the first ones that he put on Diflucan. I've had fungal meningitis once when living in AZ and hospitalized for 4 days.
I have rotated Zith, Diflucan and Malarone and have done great.

I'm hoping he will have papers and directions of sorts for us to take to someone else to treat us? And I'm wondering if he'll stay in touch with some of us to see how the progress is going? It would help his research actually.

Fry labs is on Twitter and you can follow them, but they do not post too many secrets. I knew of the DNA that he was working on and was hoping he wouldn't go full time with it! Ugh. But yes it will help us in the long run maybe... if we can find someone else to treat us or believe us. I'll update in a week or so on what he says on Monday when I see him. It will be so weird not seeing him anymore! He became a friend too!

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Issie
5/13/2017 12:13:45 am

I'm one of his lab rats too. I've been with him about 5 years now. I had a thyroid biopsy and insisted they take a vial for him to test. Got that needle jabbed at least 10 times in my thyroid for his biopsy in addition to my own docs 5 vials. There is where we found the mold, not really the protozoa. I took those jabs for all of us - I guess. From there they found it in a prostate biopsy and also what was pulled from a heart bypass. So it can clog arteries, veins and get into organs. If he can figure out what protein we need to be able to break this down and get our immune system to recognize it.......so much could be helped.

Issie

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Brett
5/12/2017 11:55:56 pm

So what is everyone's symptoms? A mix of lyme and bartonella symptoms? Any night sweats, anxiety and muscle twitching? Dr Ann Corson once wrote a good piece on the protozoa. Sometimes I feel that the constant renaming of the organism means different infections. See below Dr Corson link.

https://www.google.com/url?sa=t&source=web&rct=j&url=http://protomyxzoa.org/wp-content/uploads/2013/05/Protomyxzoa_rheumatica.pdf&ved=0ahUKEwjB4Jnc--vTAhVDQiYKHc6VCpwQFggcMAA&usg=AFQjCNGH69dfuUy5BGCcqXzFRsGZ3d_4_A&sig2=XiKJwbpnerfSj8h67eR0Lw

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Margot
5/13/2017 01:08:53 am

Plus, what kind of responsible Doctor ups and leaves his patients, long-time patients, in the lurch like that without even sending a letter? No plans for their continued care. Not professional. Beginning to question his sanity as well.

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Issie
5/13/2017 01:23:56 am

I KNOW! I'm very upset with him and how he did it. I feel abandoned. But I sensed he was about to retire the last few times I was in there. He dropped subtle hints to me. Everything is in limbo at this point.Maybe the new docs will pick up where he left us and we will have decent care. I'm hoping so. I know of the doc that bought his practice and he is well liked around here and is well known. But it's not known if he will see patients in this office or not.

Issie

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Clint Richardson (YouTube: ClintFromNYtoVA) link
5/13/2017 08:18:08 pm

Again I detail what I have done in my videos and in my blog
www.FascinatingTimeToBeAlive.Blogspot.com

800mg loading dose Fluconazole then 400 mg daily.

I get my meds from online Indian Pharmacy. If you contact me I can tell you where to get if for less if you do not have insurance or a willing doctor.

Here's a preview of some of what is to come, but I am not going to answer any more questions here.

I don't want to clog up L.O.L.'s blog. Dig a little and you will find me, its not that hard to do.

Follow my work and you will find the answers. More coming out soon.

Yes I take it with Doxy 200mg twice daily and Biaxin 500 mg twice daily. I am rotating anthelmintics and DEC. I will be adding Rifampin in the future.

I am also on Augmentin until the end of the month but for something else.

Magnesium is essential. A pinch of Epsom Salt in each liter of water helps inflammation. Less is more. FIND your tolerance.

5000mg Flax seed oil daily. 4000mg Modified Citrus Pectin. 4000mg Monolaurin. Eat everything coconut and coconut oil, good for skin also but messy.

The 'bugs' eat your manganese and deplete your zinc and copper. If you starve yourself of minerals you get sicker and thing begin to fail in your system. Plus they move on to their second favorite mineral anyways and so on.

No sugar, no bread, no processed foods or quick carbs.

Boost your minerals and gut flora with resistant starches and powdered vegetables

I am treating myself and winning. Half the stuff on the internet is wrong and it all depends on your coinfections.

If you cant afford the Fluconazole get Xylitol which I call the poor man's Fluconazole. BUILD your tolerance.



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Sarah Hodges
7/25/2018 02:51:32 am

Please can you let me know how I can contact you. I would like to hear more about your treatment regime. I have interstitial cystitis.
Many thanks. Sarah

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Issie
5/13/2017 10:00:07 pm

Clint, thanks for the info. I'll look for your blog. Good to know I'm not the only one finding everything coconut to be of help. It seems to help my brain fog issues too. I found being low fat, detrimental to my brain in a big way. I don't do other type oils - except olive occasionally and it has so many medicinal properties if properly processed. Having been off magnesium for so long - wasn't good either. Things started showing up in a bad way. I'm sleeping better now with it on board. I know Dr Fry feels the protozoa uses these minerals to "be well and prosper", but them using mine up and me not having enough made me feel so bad and u wasn't "prospering".

Since we probably will not completely conquer this issue - we have to learn to co-exist in the best, most tolerable way. Keep them/it down, and try to get our immune system to work properly. I feel inflammation is a huge problem. I find using Turneric, ginger and cinnamon in my coffee and lots of stevia and coconut milk - to be a good start to my day. Helps my pain, my brain, and gets me going in a positive direction.

My herbals seem to be doing me good. I'm not sure I want to add the medicines to that. I no longer herx with anything. I may try the xylitol. I did use it to address MARCONS. Associated with mold exposure in the sinus. I made my own nasal spray with it and silver. Worked great. But they changed formula - make sure you get it from birch tree source - not corn.

"Turn the page" ....on to the next chapter.

Issie

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Issie
5/14/2017 11:38:42 am

I was just rereading all the comments here. I'm doing alternative things that would address and kill cancer. Latest research on cancer is a mold/fungus may cause it. This mold/fungus that Fry has found in us, he said, can cause vascular tumors. This has been what is found in my thyroid. I'm using alot of essential oils and rubbing them all over the thyroid area.

As mentioned by others doing parasite cleanses, detox and general attention to microbiome I think is key. Work on anything and everything connected to a mold issue. Clean up diet, soaps, lotions, makeup. Go as organic and clean as possible. Our bodies can't handle toxic chemicals. For us women - we lick our lips and our lipstick. If you don't change anything else - this we ingest. I've found a couple of companies I really like, if anyone is interested. I'm also gluten free and mostly completely grain free. It's amazing how that has helped with pain. I've also found eliminating night shades of great benefit.

We probably all have issues with liver and kidney detox and doing cleanses to support them is helpful. Lemon juice in water with stevia daily - is something I do here.

We are basically the guinea pigs who are helping figure this out. I know this has been with me a long time. And if it's a genetic flaw, it was with at least one of my parents. They lived a long life, but were suffering with some of the same issues I have. If we can figure out the epigenetic tweak we need to turn this around - would be nice for future generations. But we could possibly pass this on. Dr Fry has found this in people who have zero symptoms. It is in the body, but not everyone has a problem with it. Only those of us with compromised immune systems and maybe --- as his new discovery --- we are missing a protein to break it down and our immune system recognize it. I've added 2 types enzyme combos to help with this. Good results occurring. (Repair by Enzymedica and Vascuzyme by Empirical Labs). I'm also finding taking herbs to thin my blood and increase blood flows - very valuable.

Some of the other Lyme docs attribute calcium as the mineral of concern, not magnesium. Since I have MCAS and POTS - I find my meds that have calcium channel blocking effects to be very helpful. Magnesium also has this affect.

Also increasing acetylcholine is proving very good. If these things deplete maganese, as one other commenter said here - this may be why this is helping. It takes maganese to help with choline. If we don't have enough, we can get brain dysfunction.

I'm not thinking we can count on Fry to be in touch with us - at all. He signed a 5 year non compete clause. Means we won't hear from him if we are his patient. Not knowing who the new docs coming into his practice will be or if they will even address this -----leaves us in limbo. It's just good other docs around the country have taken up his cause. And at least some of us will be followed and managed. It's all up in the air here in AZ. I'm glad my own protocol has worked for me. I feel bad for those who are trusting these two meds and it may not be available to you later. It's soooooo frustrating.


Issie

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Andrea Smith Banks link
5/15/2017 05:56:14 pm

My book HEALTH & POWER just came out, about Lyme and how I found the TRUTH TOOLS to take my HEALTH back and my POWER back, by learning how to answer my own questions. I got Lyme at the age of 2, and am now 72, and never felt better. I was on Doxy etc. for 5 yrs. with Dr. Fry to no avail. Dr. Horowitz' second book is great, but you still need to read about the TRUTH TOOLS, and take back your health decisions using them. Book available on www.amazon.com now for $14.88 paperback. I feel better than I ever did before, because the TRUTH set me free.

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Issie
5/15/2017 06:30:29 pm

Another forum asked me to list what I'm using. I've been doing major detox for about 3 years now after environmental mold exposure. Since we don't have Dr Fry any more maybe some of my alternative things, that have helped me, will help others. This could be wayyyy wrong for some of you. Educate yourself on things before attempting to "cure" yourself.

I also have done parasite cleanses with both meds and herbals and use D Earth and Takesumi coconut charcoal to aid detox and binding. (I now do 2 cleanses a year and start 2 days before full moon.)

I distill my water and use Himalayan salt to add my minerals back. I drink about a gallon of water a day.

I mostly use Supreme Nutrition products as my herbs. I’ll list them, but this won’t be right for everyone. Some of these have mold and parasite clearing actions. Others for thinning blood.
Supreme Nutrition products:
Bodyguard
Hemoguard
Reishi
Scutellaria
LuRong – a form of glucosamine helps pain

I use enzymes to help with inflammation and to thin blood – also helps breakdown biofilm:
Serrapeptase
Repair by Enzymedica
Vascuzyme by Empirical Labs

Fish oils and DHA from plant source also helps not only with pain – but brain function.

Things to help with acetylcholine:
Huperzine A in am
CDP Choline in pm
Gota kola in am
Pregnenolone 10 MG – can be upped to 30 MG if needed – I do better on lower
Cruciferous vegetables with DIM in am – Life Extension

I take some other vitamins and minerals – but not daily. D3, MethylFolate, magnesium, zinc.

Another help for energy and general sense of well being:
Jiaogulan – I use Majestic herbs brand

I also use Milk Thistle and drink lemon water to help with liver function and parsley to help with kidney function and that also has Luteloin that helps with allergies.

I rotate things and give breaks as necessary. You can build a tolerance and they will stop working.

I also address known methylation issues. But have been able to get off alot of these as I must have things working better and don’t seem to need them. (Molybedum, yucca, methyl B12, Methyl Folate, P5P, R5P)

I add turmeric, ginger and cinnamon to my coffee with lots of full fat coconut milk and stevia. This helps pain, helps manage protozoa and parasites, can kill cancer, helps manage mold/bacteria and taste good. I intermittent fast with this as my morning source of energy. It will get you through the morning.

I maintain thyroid health with Kelp and selenium.

Blood sugar balance – occasionally GTF chromium.

Rotate nightly probiotics:
iFlora
Prescription Assist

I try to use alternative treatments first. But there are times when medicines are necessary. I don’t use all of these at once. But rotate between them and I don’t use everything every day.

There have been many more trials on things that didn’t work out. These are the things that seem to work for me, at this moment in time. Things change and will become unnecessary. Pay attention to your body and decide if you are having a herx or a full out allergy. Sometimes, it gets worse before it gets better. Don’t throw away things – you may come back to them later.

I usully don’t list what I use as what works for me may be wayyyyyy wrong for someone else. But, here it is – maybe it will give some other alternatives.
Supreme Nutrition has a very good write up of their products. You can read and get a sense what is right for you. Try to not use more than 5 herbs at a time. Have to be careful with what you combine. I order from a guy on eBay – his store name is jankdc.

Issie

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Issie
1/30/2019 01:18:02 am

Treating CIRS and Lyme has been a huge help. But it's an on going process. I'm in the very hard to treat catagory.

Taking enzymes has been very helpful. I hardly take any supplements now. But have to continuously treat MARCONS and Lyme and use antifungal herbs.

Better.....but still have a long way to go. Dr. Smith is still who I see. Any one come up with a different approach?

Issie

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Issie
5/15/2017 08:25:46 pm

I was able to get a direct link to Supreme Nutrition on eBay - guy I order from.

http://stores.ebay.com/jankdc/Supreme-Nutrition-/_i.html?_fsub=15816830018

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Margot
5/17/2017 02:30:05 pm

I am at Mayo in Rochester right now. The Infectious Diseases doctor believes all of the above is bunk. Fry bunk, chronic Lyme bunk, CD57 bunk, fungus bunk, mold bunk, etc. . . I believe he used the word "objective" findings sorely lacking. Anyway, I was expecting this so was not surprised or offended. I am just tired of spending hours and years and a fortune on all these rabbit holes that lead nowhere and actually make me sicker. Look at this thread. It is all over the board. Is no one weary of this? Who has time for this? Who is getting well? Sorry to be a Debbie Downer, but how many people do you know who have gotten well on these treatments? Granted, a few, but maybe they would have been the ones to get well on most any treatment. I am doing Mayo just to get another perspective and team approach. Will keep you posted. But I say either Fry will come up with a cure that will win him the Nobel prize, or he will disappear into the woodwork because his patient failures are catching up with him and he knows it. I have to say his lack of professionalism with regard to his "guinea pigs" does not bode well in my opinion. Godspeed, all.

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Issie
5/17/2017 02:47:01 pm

What does he think of the peer reviewed Pubmed articles? Some docs are taking it seriously.

Let us know what you find. I got a lot of my DXs at Mayo and was glad I did it.

Issie

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Beth
5/22/2017 12:21:49 pm

I agree Margot.... I like Dr. Fry and consider him a friend, but either he will be the savior of it all or go disappear and go a different direction with his lab. I hope he will have the finds we need.

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Issie
5/18/2017 11:47:29 pm

https://www.ncbi.nlm.nih.gov/pubmed/28411089

Here's the new peer reviewed paper that Dr Fry and other docs had published. It's a PubMed article and those go through some pretty strict "looking" at.

I've been loyal to Dr Fry for many years now. Stood up for him and his cause and tried to follow his guidelines, to the best of my ability. I have gotten better in many ways. I learned a lot as to what was going on with my body and where some of the dysfunction is.

If he is right about what he has found and what he believes - it could change the whole health field and help a lot of people. I know for so long he told us it was a protozoa but as science advances, enlighteness happens, and it appears to be a different sort of organism - but maybe not exactly what he thought. Pretty brave of him to reassess his assessments. (Look at how upset we are to lose him.) He is taking a lot of "heat and questioning " ------What if he is right???? It will be huge.

We all will retire at some point in our life. I'm not liking the "way" he is doing it. But I do hope he succeeds in his life journey and quest for knowledge. Hopefully we will all benefit from what he learns. I wish him well. Time to turn the page and start the next chapter.

Issie

Reply
Beth
5/19/2017 12:53:10 am

Issie:
I just saw Dr Fry this week. I've been his faithful patient and friend for a long time. He's never pushed me to have his tests, and has treated me for all these years from my first Lyme tests in 1999. We have treated for the protozoa.
Now with this fungal thing, it goes together with everything I've experienced, including a fungal meningitis a few years back.
This week he wanted to test my blood from Sonora labs first with a fungel blood test to see if I had it in my blood. This was to be before doing his sequencing test through Fry labs.
I said...what happens if it comes back negative? He assured me it wouldn't. Well today they called and I was negative. I'm numb as to what this means. His nurse said that he figured the DIFLUCAN I had taken a few weeks ago altered the results. I'm not so sure?

Um not sure what to do now. He had wanted me to add the foxy to my zith and DIFLUCAN. I might not do that?

I have loved going to him and trust him completely but I now need to reevaluate my choices.
He always takes me back to his office to see and hear new things he's working on, and he did give me his card with his new email for the lab......I might need to use it with a few honest to goodness questions.......
I'm going to call the office again tomorrow to see if I can't talk to him though......
Not sure how I'm going to proceed.
18 years ago was diagnosed with Lyme, 3 bands, and babesiosis. Saw Dr Horowitz and the whole nine yards of iv drugs and treatment.

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Issie
5/19/2017 02:10:18 am

Beth, I'm so torn in how I feel. I think what I've done with him has helped. I'm grateful for what I've learned. I think time will help uncover things and he may turn out to be a very noted "pioneer" in this field. But it's still so new in the game. This is really a whole new direction. I'm not sure what to think. Can a mold/fungus form biofilm? It for sure can be in the biofilm, as can virus and protozoa. But is the biofilm a protection rather than something bad - is it encapsulating it to protect us? I have so many questions and no concrete answers. But then again - Dr Fry may have those same questions. I know it's in my thyroid. It's proven and I've had it a long time. I also have more tumors forming. Why?????? There is so much more we need to know. If this can truly cause vascular tumors and that's what I have going on --- it needs to stop. But I do feel I'm doing good on my herbal and enzyme routine. I just ran across a paper from an Applied Kinesiologist doc who tested some of the very herbs I had discovered myself to help. Here's his letter. He spoke with Dr Fry and tested them on some of his patients.

http://www.michaellebowitzdc.com/newsletters/News259August2013.htm

So, we may can do it with herbs, detox, and trying to eat clean and as organic as possible. Some things Dr Fry told me to do - I couldn't completely stick to. But I have mostly and I know I'm better for it. This doc did say that the patients had bad response to oils - even good ones like coconut and butter. So rethinking having as much. I went several weeks without the coconut milk and having added it back....seems I'm having more allergies. May just be environmental. AZ is having a lot of dust storms this time of year.

I'm to see him next week. Hope he will give me a card to. I feel somewhat abandoned by him though. Not sure what the next chapter will bring. And you are right - he never pushed me to do anything. He made suggestions and you either did them or not. He maybe wasn't so happy with me when I didnt.....but, all is good in the end - I guess. Hate being in limbo land. I'm just glad I'm so much better.

What is foxy? I'm not sure what that is? Kind a scary adding stuff with him not going to be around to monitor.

Issie

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Berh
5/19/2017 02:31:25 am

Hi....foxy should be Doxy! Dumb spell ck.
Its late and texting this on phone. Sorry!
You will find out good news when going next week dealing with who we should see after he leaves in June or July. I best leave it at that for now!
I want to believe in him, just torn now with today's news....
Tomorrow might think clearer!

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Issie
5/19/2017 02:53:39 am

Beth, what type fungus did he check you for at the lab? I thought his stain is what made this show up. Was he looking for an additional fungus? That's the whole thing with his lab - he has the stain - others don't. I have heard of it showing up in live blood analysis and the person who read it knew what it was. Haven't heard from her in awhile. She was doing her treatments all natural with an Amish doc. She took magnesium and ate butter. She dropped off the forum and last I heard was doing good. She also had POTS - lIke me.

Let us know what you learn. Maybe the Diflucan did kill that one. Im a bit confused, like you about it though.

My hubby sees him too. We both have our well checks next week. Probably our last visit to him. Sad.....

Issie

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Beth
5/22/2017 12:33:08 pm

Issie.... Hope to hear from you this week about your visits and what is told to you.
I'm not sure what fungus test it was. He said my insurance would pay for it, so to do this one first for me, then would do his sequencing test. When at the Sonora lab, they had to call his office back to find out exactly what test it was before drawing. I want to find out the test and have his office send me the results so I know the exact name of it.

I didn't take that much diflucan that it shouldn't have wiped it out of my blood. Still wondering what and why on that one.

And still wondering if I will keep treating this all. He wrote out all the rx for doxy, zith and diflucan which I haven't filled yet. I also always take B12 shots and had him fill that one too. Also an allergy pill that he recommends for herxes.
You will find out that the office will stay open with all of our records there. I'll let him tell you about it all.

I'm almost wondering if I want to forget the fact I used to think I had lyme or babs, and now protozoan, and just live my life. I have osteo arthritis and finding a lot pain from joints is my only 'thing' right now.

I'm just not sure what I will do. I want to keep up with what he is doing in his lab, but maybe I'll lay low and just do some natural things and wait for confirmation when he does discover something further.... so many unanswered questions. I do not want to start the game of going to other doctors and going through tons of tests again. I'm not into all the money spent and not finding anything. It's a catch 22 for sure.

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Issie
5/19/2017 11:38:11 am

Two things make me rethink coconut oil/milk. This article on those type fats creating an inflammatory response in MS.

https://overcomingms.org/further-evidence-supporting-the-crucial-role-played-by-dietary-fatty-acids-in-autoimmunity/

And the doc mentioned above - saying how even good fats did affect things.

But I do know that coconut and caprylic acid is very good for yeast issues. But that's yeast and not mold. It may behave differently.

Issie

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Margot
5/19/2017 02:04:18 pm

I do not agree with the Infectious Diseases Doctor here at Mayo, just sharing he thinks Fry is not legitimate in his claims. As for the Pub Med article, all of the co-authors are with Fry labs, with the exception of two, both cardiologists in Phoenix, one retired. As for the publication, I cannot find it, but I think it may be published in the UK. Can anyone else identify it, as my on-line skills may not be up to snuff. It is not all that difficult to get into PubMed. PubMed is only a repository of articles and studies published by medical journals of all makes and models. It is the credibility of the journal that matters, so it really would be helpful to know this journal. I actually found some of Fry's treatments to be useful, but he also was evasive on a lot of questions. Also, he said 20 percent of the population acquires this organism, which sounds absurd on the face of it. One of the things the doctor at Mayo doesn't like about him is that he has his own lab producing all these findings. I believe that is OK because it may be the fastest way for him to get his research done. However, it does mean he is lacking scientific oversight. I believe it is important to have Mavericks working on the cutting edge, so I applaud him. Just not sure he is chasing rainbows.

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Issie
5/20/2017 01:56:57 am

Learning anything helpful at Mayo? I'm assuming your visit is over as they don't work on the weekends. Unless you had to stay over for the next week.

I've found Dr Fry to not be real open about things and I figured it was a smart move on his part. If you aren't positive sure --- you get people, like us, spreading it around and not getting it exactly right and then you have a problem. He will put it out there when he has more concrete answers. I'm just glad he shared what he did, he could have waited, and none of us would be better. And some of us are.

I'm hopeful that he is on to something. And I don't consider myself very gullible. Regardless, I'm better for having had him in "my world". We invite people in or we dont. When we "hire, per se" our docs we are inviting them in to our world. We put our lives in their hands, (a certain measure - however much we allow - and they have to earn our trust). We are still the masters of our own bodies and what happens to them. So we do need to have a knowledge of how it functions and an understanding of what our DXs mean. If it makes sense and it fits in our puzzle --- the light bulb moment happens. If it doesn't make sense, the puzzle piece doesn't fit --- then you haven't found your puzzle piece and it's time to move on to the next clue. Time will tell, how the picture emerges and how clear it is. Science keeps advancing.

Issie

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Beth
5/22/2017 12:43:42 pm

Yes, I have been better for having him in my world too. Not gullible, and very cautious here.
His findings with ALS have kept me close to him through the years too as my dad and aunt died of the dreadful disease.
I have faith that he will keep doing positive things, but it is an uphill battle for him in the medical community. He does need to keep his ducks in a row and in hiding until the right time.

He said something about grants and extra financing coming in soon too. And he did say something about Mayo and ASU on board with various things. Whether that is on board with his findings or on board with some of his new blood testing abilities, I don't know. He said something about another large lab buying into one of his new testing protocols, so they are doing so many various things within the lab itself.
I hate to say too much on what he said, as some of it might not be for public..... but I do agree with Issie that we need to find what works for us, and move on if it's not what we want. I hated Dr. Horowitz's treatment and would never do that type of aggressive treatment ever again, thus... I moved on from his thinking and all.

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Issie
5/20/2017 02:03:41 am

This is what I found on the publishing company. Looks like it publishes for some pretty good journals.

https://en.m.wikipedia.org/wiki/Wikipedia:Elsevier_ScienceDirect

Issie

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Brian
5/21/2017 08:02:07 pm

Have any of you tried or heard of LDN (Low Dose Naltrexone)? Take 1 4.5 MG pill before bed, once per day. Not sure if it works to treat FL1953, but worth a shot maybe. My doctor is trying it with me. There are a lot of benefits to taking it and apparently the low dose does not interact with anything unless you are taking an opiate for pain relief. Check this out: http://www.lowdosenaltrexone.org/
I have to wait til next week to start but maybe it will help. Ask a doctor about it or find a doctor this is familiar with LDN treatment.

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Issie
5/21/2017 09:00:09 pm

Yes, I got Dr Fry to let me try it. It helped pain and sleep. Can cause some pretty vivid dreams. But after a few weeks caused me to get depression. My sister has severe CFS and is in a good many of the studies for it. She tried it too with the same outcome. But I have heard of many that it works great for. It is worth a try. Start out really low and work up very slowly.

Issie

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Issie
5/21/2017 10:56:54 pm

Brian, I was looking at an earlier post if yours. With Chairi - have you looked into Ehlers Danlos and POTS? I have both and maybe that's contributing to your head pain. There are docs on east coast and New York that do stablization surgery if it's bad. Many have found help with that. I wear a brace on my neck to sleep. It has helped with the head pressure and headaches. I also have to sleep with a lot of pillows under me - semi reclined. With both of those things - that helps. You have to support your body with EDS.

Issie

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Julie link
5/22/2017 01:05:06 pm

After not being able to tolerate 1.75 mg LDN when actively treating Lyme and FL1953, I can now take .5 mg successfully. Most folks start at a lower dose and stop at the level at which they receive the most benefits. The biggest benefit for me has been to lower fibro pain about 2 points on a 1-10 scale. NOTHING has done that for me. It also appears to have improved my ability to tolerate various treatments. Win - win!

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Issie
5/22/2017 09:39:06 pm

I got good news today......my brain menigioma is shrinking. The mold that was found in my thyroid biopsy was said to cause tumors. I wonder if that's what caused my brain tumor. Will be interesting to see if the multiple thyroid tumors I have are shrinking too. Will find out next month. Will hold my herbal and detox course. Thinges are looking up. Yayyyyyyy!!!!!!

Issie

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Issie
5/23/2017 06:54:12 pm

Saw Dr Fry today. The way he is leaving is not how he planned it to be. He hoped the docs would be in there to work with him and they are the ones not doing that.

He has new info that will be posted on his website in about 2 weeks on what he is working on. It will take a lot of questions out of people's minds. He will still be able to talk to other doctors about us, just not to us directly.

I asked if he knew the protein we are deficient in and where the genetic flaw is. He said he does.....but can't talk about it right now. He will be devoting his time to figuring this out to help as many as he can. He is trying to make technology and information available to all docs. Sounds great actually. They will be able to test for all type molds, fungi, bacteria etc.

Was a nice visit. Will see him one more time before he is gone. After June 30 - we won't be able to discuss our health with him directly. But he will be available to our docs. The guy buying the practice is a well known, well liked doc in the area. You have probably seen him on T.V. He will not be the doc taking us over though.

It's a next chapter for everyone.

Issie

Reply
Beth
5/23/2017 10:43:17 pm

Glad you found out a few things today Issie.
Yes, keep watching the Fry Lab website, and follow them on Twitter too.
He is suppose to have a PA that he will train in the next month, at least that was as of last week what he and his staff said. Hope he can follow through with that yet. And the Dr. that I was told is taking over is the father of the TV dr. ?? They said it was the older one, in his 70's. If you were told different, then that's pretty weird.... who knows?
The gals in the office assured me that they weren't going anywhere and that our charts and all would stay there and be seen by the new internal medicine older father Dr. He and Dr. Fry had been good friends and he had been treating some of Dr. Fry's patients when needed already from my understanding from other patients from other forums. Hope it can be him? He might understand it all better.

Within the next 10 years there should be a remedy to this. I asked if it would be worth it for me, as I would be 70 then, and he assured me that yes it would be worth it. Bone marrow transplant or pills, or some sort of method that they are working on... sounded like a few avenues of things they were working on.
You'll have to ask the staff when you go back which doctor they meant? I need to call them tomorrow on my blood test that was done that sadly came back negative.
Interesting times!

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Issie
5/24/2017 12:04:37 am

He's the one that bought it, not the doc that will be working there. The one who will be working there has about 4 years of practice. There will also be the nurse practitioner, you spoke of.

BTW, I asked him if he read the forums and what we say. He said never. I told him - he should as some of us have really stuck up for him. I had to this week with my new neuro at Barrow. They think we are crazy. But he said he would try to keep an open mind. A Pub med paper helped. He did know of Protomyxzoa Rehumatica - not sure he knows it reclassified as a mold and not a protozoa. But all will learn with time.

Hope your positive blood marker isn't serious. BTW, I'm only several years younger than you. I haven't given up kicking yet........

Issie

Crosswind
9/3/2017 07:42:49 pm

ISSIE-- "Protomyxzoa Rheumatica was reclassified as a mold and not a protozoa"..? For real?? I haven't seen Dr Fry in a few years, since my diagnosis followup. I wasn't sure what to believe. I actually rebelled and kept eating good Fats, since I was being treated for Mold Biotoxin Illness by another doctor and then Dr Fry for this Protomyzoa Rheumatica. I had to pick one diet and I could NOT tolerate the antibiotic erythromycin or doxy (gave me back spasm & joint pain). My ND didn't even believe his "parasite" finding or protocol. So, i was on my own. I have Not gotten better. I actually get worse when i eat too LOW of a Fat diet. After recently meeting a lady who was diagnosed by Dr. Fry with this "parasite" thing, doing VERY well on a LOW Fat diet and VERY Fit, and anti-parasite drug, i just made an appointment with his Nurse Practitioner. She is taking his former patients. I will ask her about all this. Wow.

Crosswind
9/3/2017 07:49:57 pm

Also, since seeing Dr. Fry, my ND put me on LDN this year, which DOES help greatly! with my anxiety and cooling my temperature down. I was always sweating and overheated even when it was not hot to everyone else around me. Felt like constant inflammation. (awful when you live in hot Phoenix, AZ with summers 100-110+). My ND first gave me Nystatin before putting me on LDN, then another dose of Diflucan. I definitely felt improvement in energy & overall well-being after starting Nystatin, which is prescribed for candida and mold illness. I hope he figures out what this thing is (protozoa or fungus) and fast.

Issie
5/24/2017 01:42:41 am

Something I discovered - the hard way - I can NOT take anything from an algae. The vegan DHA was, as was Chlorella (made me throw up.) Dr Fry mentioned to me, today, that it could potentially be an issue --- I had already figured that out.

Issie

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Brian
5/25/2017 11:11:22 pm

Hello. It's me again. I am about 4 days in and am curing myself. I will touch back again when it is done. I am using a combination of two things, not so easy for all to do... In fact, some people will outright reject the methodology, but it literally requires a break / correction of one's belief system. So...the two things.

1. Watch "The Secret" every single day, no matter what and do the activities mentioned in the video. "The Secret" can be found on Hulu and please trust me in knowing that the material provided within it is real and ancient. Again, do the activities mentioned in "The Secret" every single day, without exception, and also watch the whole movie every day because otherwise you will forget the material within in the short space of one day.

2. Second, read ALL of the material in this hyperlink. Again, it is real, and it works, but it requires the tearing down of your belief system. http://www.sacred-texts.com/nth/qm/index.htm

Love you all. May you all be healed. Staying in an Attitude of Gratitude makes a gigantic difference.

--Brian

Reply
Pete
6/21/2017 04:02:49 pm

Four days is not nearly enough to be able to claim that you are "curing yourself". It has now been almost a month, can you still confirm that "mind over matter" approach worked?
There is always an improvement with this type of stuff. It is called "placebo effect"; positive thinking and so on can certainly help in many things, but when one's body is overwhelmed with incredibly toxic, destructive microbes, help only comes from a carefully chosen method (meds, herbs, energy, etc) which is specifically targeting the cause.
Good luck!

Reply
Issie
6/5/2017 08:57:36 pm


Okay, just back from seeing Dr Fry for the last time before he retires from seeing patients. :( He feels this mold/fungus is what's creating most of my issues. It is similar to Valley Fever and goes everywhere into every organ. He is treating with Doxycycoline and Diflucan.

His research has found that magnesium, most B vitamins (including Methyl Folate --- only safe one is B12), and Fish Oils feed it. May be why I have more thyroid tumors, as I had started using those things. He said to be careful of minerals too. But didn't tell me to stop taking zinc or chromium - so hope those are okay. Only use a few times a week.

He feels I didn't herx with the Doxy the last time because of the magnesium. It's obvious I have issues. Feet were purple in his office and he pointed this out to me. Brain fog is awful. He said I'm not getting good enough blood flow or oxygen. So making changes. He really feels being as close to vegan is better. But I felt like adding meat back a few times a week gave me more muscle strength.
So there's the update.
Issie

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Debbie Lynch
8/10/2018 02:05:38 pm

Hi
Does anyone know who Dr Frys patients are being referred to and do they have our medical records? I haven’t seen him since early 2017 and crashing hard with symptoms again.
Help

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Issie
8/10/2018 10:42:50 pm

The only one who has our records is the guy who took over his office. Though he works for Molan who bought it. So, guessing our records are his. Good to get your own copy for future. We are all so complex and need these for other docs later. I've had so many puzzle pieces come together in last few years.

Going low oxalyte, low lectin and low amylose proving to be a benefit.

Issie

Julie link
6/25/2017 11:39:59 pm

Looks like there IS evidence as published in a medical journal, for funneliformis mosseae in the blood and it is not good; it could contribute to the formulation of plaques in the arteries..

https://www.ncbi.nlm.nih.gov/pubmed/28411089

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Leo
6/26/2017 12:01:10 pm

Hi people,

Just want to add my experience ...

I've been on dapsone (50 mg ./ day I can tolerate well, 100 becomes too much) and have improved considerably over the last few months. Also found that the cytomegalovirus has been an issue, especially when my immune system comes down. So have been on valganciclovir for that.

The FL / PR / fungus is still an issue. Especially with the gut, stomach acid, and air hunger (which is more than tolerable now). I also have a very stubborn sinus infection that could be the FL biofil that has not responded to a year of intense oral abx, FL protocols, etc. I am now back to treating it topically with EDTA, herbals, ozone, etc.

I would be interested to find out if anyone else has had success with Dapsone for FL?

Also what type of digestive symptoms do you attribute to FL?

I'm also recycling ivermectin after a long gap. How often did you take Ivermectin?

Thanks,
:ep

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Wylder
10/26/2018 12:41:27 am

Cipro will help with the sinus infection, certain cognitive issues and skin infection conditions. I had Lyme disease for over 35 years and my test are now clear now. But due to genetic and immune system issues I obtained a fungal infection in my blood which causes plaque buildup in blood vessels. Flucanazole and asprin helps control fungal infection. I also, acquired another type infection in my spinal fluid; which I found Cipro works great for. The Cipro, I use to knock down the spinal infection, it also cleared up a never ending Sinus Infection I had for over 20 years. It also helped knock down minor skin cysts, cherry moles and minor cognitive issues I could never get rid of. I have only took it twice; each time for a month. I really should take it for about three months to completely kill off the infection. The infection starts returning between 4-6 months after the one month regiment of Cipro. Cipro kills the bacteria the causes the sinus infection. But I noticed Cipro can cause some temporary shooting nerve pain issues while taking it. Taking Cipro long tern can cause actual nerve damage, especially in women from what I have seen personally in the medical field. I would take it for 90 days to hopefully get rid of this darn sinus infection permanently but I'm still looking for a doctor. I have not seen anyone since Dr. Fry Retired. If you can, try Cipro for a month and see if you sinus infection goes away. But remember you might have some temporary on and off shooting never pain while taking it. The pain can be very intense at the moment it actually occurs,

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Issie
6/27/2017 10:09:46 am

I'm taking a new approach. I'm seeing a Naturopath here in Phoenix. Her name is Dr Jennifer Smith. Sadly she doesn't take insurance. But I feel it is a stone I need to turn over. She is a Shoemaker and Klinghardt trained doctor. I'm doing a lot of new type testing and hope to have that back this week. She was very thorough and easy to talk to. Trying some new herbs and a new medicine that is not only for parasites but is antiviral too. I have 6 months to try to clear this mold/fungus out of my thyroid before my endo doc wants to do more. I now have 7 tumors - found to have this mold in the biopsy. She also changed my diet to low amolyse diet. Can't be a vegan as easily on it. But I had found I needed a little meat for strength. Vegetable protein just wasn't breaking down well enough for me. I'm still mostly vegan though. No grains or root vegetables -except onion and garlic. No bananas. And try to be dairy free.

Issie

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Issie
6/27/2017 02:25:35 pm

If you decide to see Dr Smith - mention me as a referral. I told her I'd be talking about my visits with her.

Issie

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Sharon
6/27/2017 10:47:08 pm

Have you read this article? http://www.health-science-spirit.com/borax.htm I am making very good progress with Borax and Nascent Iodine supplementation, along with vitamin and mineral replacement, and herbs - antifungal and anti-inflammatory.

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Issie
6/28/2017 12:02:11 am

Sharon, thanks for this article. I had forgotten about Borax. I even have some. Can you tell us what exactly you are using and dosages?

Issie

Sharon
6/28/2017 08:05:05 am

I'm taking laundry grade Borax 1/16 tsp 3x a day before meals mixed with 3 x 2 drops to 3 x 3 drops "Magnascent" iodine (I drop it when I feel my thyroid involved). No iodine after dinner as it can cause sleeplessness but you could do a 4th dose borax to 1/4 tsp total per day. Currently every second day with quite a few other vitamins and herbs. On the other day, I do up to 50 drops MMS (usually about 30) at (up to) 4 drops per hour, with supplements at bedtime. Critical to this is coffee enemas daily in the evening, and chelation (calcium disodium EDTA sublingual and in the enema, NAC, vit C, and garlic supplementation). Vit D supplementation to med-high end normal range bloodwork important too. Could send more by email. Cryptolepsis important among herbs. Another as well - something in the homemade concoction I made recently to replace a commercial mix I can't get anymore.

Issie
6/28/2017 09:42:11 am

Thanks for all the info. I tried MMS, it set me back so far and took me forever to recover from. Wasn't a good experiment for me.

I will look into the other things you mentioned. Especially going back on my boron. I have some Luguol too. So maybe need to get that back out.

I'm on a few tintures for Babs. Not the one you mentioned. She is starting me out with one drop of each. She also really believes in Alinia. Trying to find a way to get it cheaper. It is very expensive. It is an anti parasitic and anti viral. The girl who works there said it would work faster than herbs to help clear things. Hoping to not need more than 3 to 6 months of it.

I've had 3 docs now agree that the antifungal Diflucan may be a good idea. Along with Doxycycoline. It is what they usually use for Valley Fever and this organism acts like that in your body. So will probably give it a go.

Issie

Sharon
6/28/2017 07:28:10 pm

MMS initially sent me into an extreme roller coaster, but gradually the mountains turned into hills and have kept evening out. It MUST be combined with coffee enemas though - at least in my case. You will know within a couple of weeks if it applies to you - you will pass things and it will change everything. You would come to see a pattern between flares and expels. I pass two different kinds of structures; one won't come out without MMS. The other comes out with the coffee enemas but I had the sense the fungus was just regrowing for every structure expelled until I really focused on a broad spectrum anti-fungal regime.

Sharon
6/28/2017 11:35:17 pm

One note of caution: If you decide to try iodine (which works with borax, as well as selenium, and I also take a multimineral, multivitamin, Vits AEDC), start very slowly. Iodine receptors also accept fluorine, chlorine, and bromine related compounds, which are released when iodine is supplemented - these are highly toxic and there are a whole host of detox symptoms that can display including depression - I went up too fast (to 9 drops in less than 2 weeks) and experienced the darkest day of my whole exerience. Note that nascent iodine is much more biologically active than Lugol's - my 6-9 drops 400mg iodine per day would be much more of Lugol's which is only about 10% bioavailable. I do not know how bioavailable nascent is, but certainly moreso. I also noticed all kinds of breast symptoms and some thyroid symptoms with iodine supplementation - replenishing deficiences I think. I also lost my cycle for 6 months which I read was typical. Now back and lighter, less cramping.

MLS
2/12/2019 05:39:01 pm

Sharon, How are you now? I did very very well on MMS worked up to 45 drops added in DMSO and crashed hard! I'm excited to hear how you are?

Sharon
2/13/2019 01:17:27 am

MLS - I'm well into recovery, but still working very consistently at it. I can sense the issue clearing from the core outwards and distally. I'm hopeful I will recover fully on this regime. I've only used DMSO topically.

Kari
6/28/2017 07:52:29 am

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Brett
6/28/2017 04:11:15 pm

http://protomyxzoa.org/wp-content/uploads/2013/05/Protomyxzoa_rheumatica.pdf

Many should read this old treatment data from years ago. Alinia is recommended and sometimes Ivermectin or Albendazole. She also likes bab-2, a-bab, cryptolesis and coptis. Plus she really likes Serrapeptase and Nattokinase over lumbrokinase.

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Issie
6/28/2017 04:29:59 pm

Excellent find! !! So much of this is what my new Naturopthic doctor put me on. I had found Supreme Nutrition products already and credit them with how good I am now. I feel I'm on the right path now. Confirms that Dr Smith knows her stuff.

Issie

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Sharon
6/28/2017 07:30:40 pm

I also prefer nattokinase and serrapeptase to BFM-1 and Boluke. Of these nattokinase is testing best with my naturopath.

Brett
6/28/2017 04:32:38 pm

Ha ha. I posted this about halfway up the page but I guess it was ignored.

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Issie
6/28/2017 05:15:57 pm

More likely - got lost in the middle. I posted Dr Frys Pubmed paper and it was missed too - it got reposted. That's okay, if we get the most important things noticed by repeating ourselves - that's just fine and dandy - with me.

I feel like a lot of where I am is by my own digging and reaching out to others. Dr Fry offered diet and Doxy and now Diflucan. But I think these other supporters are going to be very helpful and beneficial. So far, my 5th day on Alinia and no herxing. Started Doxy and Diflucan today and so far nothing. We will see. I'm using Takesumi and D Earth as binders.

Issie

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Leo
7/13/2017 04:09:23 pm

I am wondering if anyone with FL has/is experiencing significant gut symptoms due to it? Especiall SIBO. Kindly share your experience.

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Allen Nuzik
7/13/2017 04:42:10 pm

Leo. Have lyme, babesia, and FM. Nausea started about 2 months ago. Don't know where it came from. Blood test normal. It sucks.

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Sharon
7/13/2017 08:23:24 pm

I had some suspected SIBO. My LLND suggested Glutamine Complex PLG-U Powder by Physica Energetics (this has glutamine plus a few other potentially helpful ingredients including licorice, marshmallow, and aloe for gut healing). I also increased my probiotics to 180B 2x / day (using 60B capsules from Custom Probiotics), and do daily coffee enemas as well - these have been really helpful for me. I got through the SIBO symptoms pretty quickly.

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Tina
7/27/2017 02:11:37 pm

Please everyone share the name/location of the doctor that is treating you. I have been treated for many years with Dr. Fry
for Protomyxzoa Rheumatica....had bulls eye rash but neg. Western Blot when I originally saw Dr. Fry. But had positive PCR for Protomyxzoa Rheumatica and that is what he has been treating.
Now he retired and my new family doc ran two separate lyme DNA (pcr) tests from two separate labs.
Both came back positive for lyme and two coinfections( bartonella and babesia). Now do not know what to think and where to go for treatment. Is Protomyxzoa just another lyme co-infection all along?
Patients are saying that Dr. Fry told them Protomyxoa is really a fungus.....could you share how he determined this because I am confused. I thought it was a protozoan. I never had this conversation with him. Thank you all for any help, especially who is treating you (any state) now that he is retired. I am looking for a doctor that treats lyme and its coinfections, including PR....(fungus?).Best of luck and thank you all.

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Issie
7/27/2017 04:19:17 pm

Dr Jennifer Smith is my new doc. She is Lyme literate, mold literate etc. I'm extremely excited to have found her. She is in Scottsdale, AZ. Tell her I recommended her.

I was a patient of Dr Fry for 5 years. I feel like I'm making headway with her. She does not take insurance though. But I'm getting answers I didn't have before.

Issie

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Issie
7/27/2017 04:35:36 pm

http://lifestreamwellnessclinic.com/dr-jennifer-l-smith-nmd/

Dr Jennifer Smith

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Tina
7/28/2017 07:26:06 pm

Issie, thank you for the name of a comprehensive doctor who treats Lyme.
I have seen Dr. Fry since '09.....and in '11 showed him a bulls-eye rash at my waist-line for which he prescribed Valtrex.(?) He was treating me since '09 for Protomyxzoa Rheumatica , but sometimes to a hammer everything is a nail.
Because my Western Blot was negative, he did not DNA test or treat for Lyme. I continued to get sicker...and when he retired, I saw a new family doc who took one look at me and said "You have Lyme".
Now I find out by DNA testing that I had Lyme disease and several coinfections. Turns out Protomyxzoa is just another Lyme co-infection and not the sole cause of CFS like Dr. Fry said. I am now in the late stage of CNS Lyme, and I suggest anyone else with a similar experience get tested immediately by DNA (PCR) for Lyme.
IGenex bills Medicare ,but DNA Connections will not. Lyme is a clinical diagnosis, and I am not an expert, but get proper care if you had a negative Western Blot and continue to get sicker.

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Issie
7/28/2017 10:23:01 pm

@Tina, who is your new primary and do they take insurance? My husband also saw Dr Fry, he needs a doc. We need one for more general things that takes insurance. Tell me about them.

I love this doc I'm seeing for what we are addressing. I test positive for CIRS and MARCONS. I think this is a huge part of my puzzle. I also had co-infections and What Dr Fry was calling Protomyxaoa Rehumatica. Now it's a mold/fungus. It makes sense. I have 5 genetic markers for inability to throw off biotoxins and mold. The Shoemaker testing has turned up a lot of unexplained and now answered things. 3 years ago, I had a toxic mold exposure and did get Dr Fry to let me try the binder - that I didn't tolerate well. So I never pursued it further. Wish I had.

I'll ask about the DNA testing for Lyme. I had the bulls eye and my Western blot was negative. Yet we thought it was a false negative. So have been doing a lot of the things for it. Had Erhlichia as a positive or at least exposed. It's suspected that I have Babesia. The herbal I'm using for it is causing a herx.

There is a diet change and a new approach and direction. I'm encouraged.

Issie

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Donna
8/30/2017 02:35:57 pm

Hi all – Firstly, I'm so thankful for this thread and everyone's input!

I was a patient of Dr fry's starting in 2006. In 2007 he did the stain/slide and found significant amounts of PR on my RBCs. A little later he obviously also found biofilm. In four years I treated with multiple antibiotics and plaquenil until I had to move back to Wisconsin in 2010. I have more autoimmunity now, including type 1 diabetes, which Dr fry predicted would happen when I left ( he knew I would not be able to find someone to treat PR). On my own I have tried ivermectin, Alinia, and I'm currently on Doxy for a recent bull's-eye rash. Since pharmaceuticals are a challenge to acquire, for those of us with limited means and stinky insurance, and since we now know this is fungal, I'm wondering if anyone has tried Cumanda (by Nutramedix)? I noticed it's actually listed as one of Ann Corson's preferred antimicrobials, obviously before she knew this was fungal. But according to Cowden, its a potent broad spectrum antifungal.

Secondly, I am moving back to Arizona - for good - in the next month. I am in desperate need of a good doc/DO/NP...for help treating PR and a myriad of other bugs (have had abysmal WBC's since my 20s and the infections just keep piling up).

Please feel free to email me privately if you are uncomfortable posting in a public forum.

Thanks in advance!

[email protected]

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Beth
8/30/2017 06:07:53 pm

Hi Donna....
So interesting that you now have Type 1. When I saw Dr. Fry in May of this year we talked about it. He said all of 'this'... disease.... is vascular and of course it's all related. I asked him about my little 4 yr old granddaughter that was just diagnosed with Type 1 in March and my youngest daughter (32 at the time) that was diagnosed two years ago with Type 1.
I am going to be lost without Dr. Fry too.... as I used to live just miles from him, and now in Montana but would fly down to see him. I might still go to his replacement and give the new guy a try, as my records and all are still there. Otherwise, I'm on my 'own' with this treatment too. I'm interested in why he told you about maybe getting Type 1.... Thanks! [email protected] if you want to do it that way too....

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Tina
8/30/2017 09:05:18 pm

Donna, did your blood smear state "many coccobacilli in
rings adherent to RBCs...suggesstive of Hemobartonella or
Mycoplasma". My Fry lab stain showed this too, but it does not state PR... Dr. Fry told me the stain showed PR. I have been diagnosed with mycoplasma and bartonella since his retirement, as well as Lyme.
The last that I asked there is no replacement for Dr. Fry at his office, so if you find someone to treat you for PR, please tell us.
Besides, now that PR has been "discovered" to be a root fungus,
I am confused what this means. How is it that this was just discovered......I have been seeing Dr. Fry for many years and assumed that Fry Labs had outside checks and collaboration on PR. Now I hear alot of chatter on the internet about this "new" discovery that PR has a 99% DNA match to a plant fungus. I am not sure this fungus, Funneliformis Mosseae, causes pathology in humans.
Maybe someone's family doctor can call Dr. Fry and ask him to put a letter of explanation on Fry Lab's web site. Beth, exactly what did Dr. Fry tell you? Did he confirm this finding that PR is really Funnelformis Mosseae, and did he recommend treating it with antifungals? So, what about all the anti-malarials and antibiotics we have been taking? What does any of this mean?

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Beth
8/30/2017 10:14:04 pm

Dr. Fry to me that yes, the PR is really a fungal type of thing. I am now on Doxy, with Diflucan, with some Zithromax. Before that I was just on the Zith, Diflucan and Malarone rotation. I've seen Dr. Fry since 2007 and was one of the first ones that Diflucan 'worked' on, as it put me into a fungal meningitis and ended up in Scottsdale Healthcare on Shea for 4 days!. But this last time I saw him, he wanted to do a general fungal test with Sonora Labs, in which I did. I asked him... what happens if it's negative? He said, no, it wouldn't be. (he was doing this test to save me from doing his expensive test). But... before leaving AZ, the test came back negative to everyone's surprise. He thought that it might have been because of the diflucan I had been taking. I left with one of his test kits, but haven't sent it in. We're treating it as if I do have the fungal thing.

I might go one time to the dr that took over for him, just to see if they will keep on treating it all. It sounded like they would.

Did you all get a letter from him stating his plans and retirement and who was taking over for him? I did.... the end of May. Dr. Art Mollen is taking his place.

Dr. Fry is working on finding the missing DNA protein that needs to be in us to fight off these things. He said in the next 10 years it will be perfected. I said... well, it might not help me and laughed. He said of course it would help me. I'm not sure if I should disclose what all it was about, but rest assured that he is trying hard to find how to treat us and make us 'whole' again. It might be years down the road though.

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Tina
8/31/2017 02:57:43 am

Beth, thank you for sharing.The only diagnosis I was ever given was Protomyxzoa. I was never offered an anti-fungal even when I continued to worsen, so I can't comment from experience. I never had a conversation about PR being a fungus with Dr. Fry.
So, the explanation on his Fry Lab website that I think would be useful is not who is taking over his practice, but rather, some solid guidance on exactly what Protomyxzoa really is, even if it is not what he originally thought, and recommendations as to treatment guidelines with antifungals, if indeed that is what has been helping others.
I think it's nice he is researching the "missing protein", but I have patiently waited for a published paper, or anything, documenting Protomyxzoa. I had many convincing conversations from Dr. Fry,
and spent nearly a decade in treatment for this protozoal
infection. It brings me no comfort to now learn about all this confusing information. Remember that folks are reporting that Dr. Fry told them PR is matched by DNA to a "plant fungus". Can anyone refer me to any literature that states Funnelformis Mosseae causes disease in humans? And if not, then why take an antifungal? Did Dr. Fry say PR has fungal characteristics, or did he say PR matched by DNA to Funnelformis Mosseae? This is confusing.




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Issie
10/13/2017 12:38:05 am

Well, here is an update. I called Dr Frys office to see if Vicki and Lisa were still there and to see if new doc is following up with protocol for Dr Frys patients. The answer is a big NO. They are not still there and the front desk person didn't know and didn't think he was doing Dr Frys protocol.

So, I called the lab. I said Vicki and Lisa are not there and they were going to help with knowing our case and getting us help when we needed it. The person said, I know - they are not there. And they are referring to another doctor group who does his testing. So basically, what we thought would happen there in that office - did.

Now on to the update. I found out for positive that I have CIRS and MARCONS. We tested my house to see if I had a mold issue with my numbers looking like I had active exposure. I don't have an issue in my house. Sooooooo, only conclusion I can come to - it has to be internal. So Fry is likely correct in saying we have internal mold and it's making us sick.

One of my resistant antibiotics was Doxy. So no wonder it did nothing for me and I didn't herx. I had 7 resistant antibiotics. I also have the bad genetics and inability to throw off mold or biotoxins.

I'm using a Shoemaker trained doc, and she just got some training from Klinghardt. She is in Scottsdale and her name is Jennifer Smith. She is a naturopath - but doesn't take insurance.

Issie

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Beth
10/19/2017 09:36:17 pm

When I called the office, I was told completely different things.
I asked who took over the office and they said it's a Dr. Steven Perez. I asked if he would see all of 'us' like Dr. Fry did. They said it depended on what we were seen for. I said lyme and protozoan etc.

They then said that Dr. Perez would not see lyme patients and that it would depend on what all was wrong with me with protozoa etc. I asked if he would treat the same. But received the same answer as it would depend on the findings once I was seen by Dr. Perez.

They then said, that they were referring out for lyme. I asked to who?
It's a lady doctor in N. Scottsdale. Her name is Suzanne Lasala Wood at Sunset Clinic Family Medicine. So I called them. Yes, they take all lyme patients that Dr. Fry was seeing. Great.
Next question they asked me was if I had insurance. Yes, I said. Great.... they do co-pays with insurance and to make sure I bring my card when I come.

I made an appointment to see her on Nov 6th. I'll let you know what I think and find out. But I'm looking forward to having another regular doctor that takes insurance that can treat me. I'm not into all the natural herbal things and have done great on a few antibiotics, anti fungal, etc.

I could get all my records sent over there, but can pretty much tell her the last 18 years worth in a nutshell.

Has anyone else been told about this lady doctor and wonder why they didn't tell you about her as a referral.

When I talked to the gal at the Sunset clinic she seemed thrilled that they were seeing lyme patients. I kind of joked that does she realize what she's getting herself into with all of us from Dr. Fry? They seemed to say they were enjoying it.

We shall see. Here's her address and phone numbers:
7609 E Pinnacle Peak, Ste 9
Scottsdale, AZ 85255
(480) 267-9111

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Marc
10/26/2018 12:56:55 am

How did your appointment go with Suzanne Lasala Wood at Sunset Clinic Family Medicine last year. I use to see Dr. Fry and I need that will prescribe treatment regiment that works for me. Does she really treat Lyme Patients and is she any good at it?

Sharon
10/13/2017 11:41:02 pm

If you are looking for mold exposure, check your dishwasher and washing machine. We found black yeast thriving (sporulating) on a spot on the bottom of our cutlery rack that we knew was there for atleast 9 months, in a dishwasher run daily. What we found was Exophiala dermatitidis, a potentially fatal black yeast.

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Clint Richardson
11/20/2017 07:51:06 pm

Recent Dr. Fry, Neil Nathan on mold, and more....

Recent quotes from Dr. Fry excerpted below. Article includes observations from Neil Nathan, MD on mold and more.

https://www.betterhealthguy.com/tfim2017

"...Steve Fry, MD spoke on "Genetic Evidence of Biofilm Eukaryotes in Inflammatory and Autoimmune Disease by Next-Generation Sequencing" and shared:

•Prokaryotes are bacteria.
•Fungus participate in biofilms as well.
•Autoimmune diseases are a big business.
•Of the top 5 drops, 4 of them are for Rheumatoid Arthritis.
•Toxoplasmosis is found in some cases of RA.
•Fungal antibodies are observed in RA as well.
•Most believe that CFS/FMS are viral and bacterial.
•Some patients developed CFS after a Giardia outbreak.
•Some research shows that protozoa may be the underlying factor in MS.
•Plaquenil is a drug of choice for Lupus.
•CCSVI results when eukaryotes create biofilm communities obstructing blood flow in the arteries and veins; possibly also releasing toxins.
•We can only culture about 2% of all bacteria known today.
• Protomyxzoa rheumatica is an organism whose identification is credited to Dr. Fry's work. When they recently looked at this organism compared to 56 million sequences in the international database, the closest is Adriana peritocrescens.
•There are 30,000-200,000 protozoans in the environment.
• Funneliformis mosseae is one of the organisms they see in chronically-ill individuals; formerly referred to as Glomus mosseae.
•PCR testing is no longer used as it is often negative. They use sequencing.
• Doxycycline has fungal antibiofilm activity; research is emerging.
•Saccharomyces cerevisiae is found in osteoarthritis frequently.
•CFS patients may show Funneliformis mosseae and Saccharomyces cerevisiae which are both fungal issues.
• There is some observation that clearing fungus may then unlayer H. Pylori.
•In one case of ALS, they identified several different marine organisms.
•There is a very tight cluster of microbial patterns in ALS vs. CFS/MS and normal controls.
• Perkinsus is a shellfish parasite that has been identified in some sicker CFS patients as well as Spumella which is an algae.
•In ALS, they see alphaproteobacteria, deltaproteobacteria, Clostridium, and Flavobacterium. It may be eukaryotic in nature and may be a vascular disease as some patients have short-lasting improvement with angioplasty.
• Most common organisms identified with their DNA sequencing in chronically ill patients include: Funneliformis mosseae , Perkinsus, Hydrurus foetidus, Spumella, Saccharomyces cerevisiae, and Toxoplasmosis.
•Saccharomyces cerevisiae can become pathogenic.
•His approach is to identify the organisms, use clinical experience, explore genetic resistance markers, implement an antibiofilm approach, and consider host immune factors. This would include agents that are antibiofilm, antifungal, antiprotozoal, and antialgal.
• Clarithryomycin may be an antifungal synergizer.
• Ivermectin has antifungal properties and is generally a safe medication; though can have some elevated liver enzymes. "

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vanesa
5/24/2020 06:56:32 pm

this is extremely important info that needs further research so we can finally get our health back thankyou

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Leo
12/14/2017 03:21:36 pm

Hi all,

I have not been tested for FL/protomyxzoa due to not having the finances. It way may be the likely culprit, since I've treated everything else. I say I've taken enough antipathogens to kill a small tribe of horses ... lol. Including all the antifl drugs ... difulcan, trebinefine, ivermectin, albendazole, metronidazole, ...

A question so I can get clarity clinaclly. When you start eating fats again ... how soon before your symptoms come back.

With the FL biofilm in nasal passages ... all protomyxzoa patients must have CIRS a la Shoemaker too. Reduced MSH, disregulated HPA axis, leaky gut, ...

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Leo
12/18/2017 09:50:34 am

Hi all,

Just want to ask my question again. if you have an answer, please provide it:

A question so I can get clarity clinaclly. When you start eating fats again ... how soon before your symptoms come back?

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Issie
12/18/2017 11:11:39 am

I still eat fats. I didn't stay vegan. But if I eat meat, it's organic. I do think limiting meat is good. I reversed kidney damage by being vegan for over 3 years. I try to only do once or twice a week.

I always kept including full fat coconut milk. I felt like I needed it for brain function.

Since I seem to be improving, thinking how I'm doing it is okay.

I did find that fish oils in concentrated pill form, was not good. It made me gain weight. Also Shoemaker doesn't advise it if you are over weight. Some with mold take it because it helps inflammation. But I did find an article where concentrated fish oils would feed mold.

Also, there is debate amongst practitioners as to whether magnesium or calcium feeds it and Lyme. So I don't supplement those either.

I'm am adhering pretty strict to low amylose and anti inflammatory diets. Mostly vegan, with quality occasional meat and fish with a few organic eggs. I can't do keto or paleo. Can't do that much protein, kidneys won't like it. I did find that beans are inflammatory to me and I stay off grains - mostly. On low amylose - there are no root vegetables or bananas. I also limit my sugar - and find some fruits too sweet.

Issie

Issie
12/15/2017 10:10:33 am

http://www.prohealth.com/library/showarticle.cfm?libid=30111

Good article

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Leo
12/15/2017 10:27:56 am

I believe people with protomyxzoa all have CIRS by default. Think of the biofilm community in our noses, that's "worse" than marcons.

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Issie
12/15/2017 10:40:19 am

I was just talking to my naturopath about the biofilms. She said key to breaking them down is enzymes. Especially Lumberkinanse. Some are using high amounts. It will thin your blood - so be careful with it.

Issie

Issie
12/15/2017 10:13:01 am

Thought I'd pass along my test results. There had been 5 thyroid tumors, now only 3 measurable. And largest one, that was biopsied and found to have mold in it, is .5 smaller. Doing all the herbs and detox has helped. Yayyyyyy!!! So excited!

Issie

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Leo
1/8/2018 11:08:27 am

Hi,

I wonder has anybody with confirmed protoxzoma had CIRS testing done. Specifically, low MSH in the abscence of marcons. Biofilm forming organisms in the sinuses lead to horrible symptoms. The toxins they produce poson the hypothalamus, all hormonal regulation goes haywire, mucosal immunity is down, a cytokine storm typically with low Tregs and an overactive th17 system which exasperates chronic inflammation. All of these, I believe, are at play and exasperates protoxzoma symptomology.

I've used enzymes and heparin to thin the blood and get rid of biofilm. All the steps in the CIRS protocol repetitively. And oral abx ad infinutim. With ivermectin and antiparasitics. Even with months of VIP spray my MSH has remained low (currently at 13).

Other measures to regulate hypothalamus fn provide relief but are no where close to the regulation that a high level of MSH will provide. I'd be happy to share my experience with those undergooing the same things.

I think if we could pull our resources from our experiences all of us will be better off.

Kindly let me know if you have had MSH and others CIRS testing done, what the results were, and anything that has helped specifically the CIRS biomarkers in the presence of protoxyzoma no mold and post-Lyme (i.e after borrelia is eradicated). I am especially interested in what the lab results for MSH was and symptoms were, especially if your MARCONs culture came back negative.

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Issie
1/8/2018 12:40:26 pm

Yes, I've written about my having CIRS above. But I also have MARCONS. I have low MSH - but can't do treatment yet because of MARCONS. We had hoped I could go on VIP, but repeat test says I still have the staph. So treating it with something different now. I still have symptoms of Lyme and my C3a Is still high. So don't think that's under control either. We are trying to thin my blood and disolve biofilm with increasing Lumberkinaise. I just got positive markers for issues with too thick blood - specifically - high Factor 8 and vwf Collagen Binding act. This can be connected to the biofilms, protoxymyzoa, Lyme and CIRS. But a tendency for blood clots and stroke run in my family. Genetically, I have the very undesirable genes in connection to CIRS too. Shows inability to throw off biotoxins and mold. I think this will be a long struggle for me. Would like to hear more what you have done to help you over all - in more detail.

Issie

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Issie
1/8/2018 12:43:38 pm

Leo, you can go to Health Rising forums and can message me on a Private message, if you like. There are several of us talking about this there. Some have written a blog about their success with treatment there.

Issie

Reply
Leo
2/20/2018 10:00:39 pm

Hi all,

Ive been getting artesunate ivs (which take only 10 mins) and they are helping. Sinus better, mood and energy definately better, more stable overal, my neurological symptoms are better, still some fatigue and agitation in the evening - and this is only day 2. I dont know how much of the symptom resolution will last.

Is anybody else seeing good results with any treatment? Discussed here or not. Flucanazole & oral antibiotics were not doing it for me. Dapsone may have been helping, but I had a bad episode of hemolytic anemia - with my toes turning all black.

Do share whats been working for you - I got an appointment with my llmd this thursday and would like to bring it to his attention.

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Judith
7/25/2018 04:27:38 am

WHAT WE REALLY NEED.
You don't need to depend on the government for your health solution. Stand up and do something about your health, help yourself.
I'm writing this and you're reading this because I took a bold step, I contacted Dr O for my herpes cure and now I'm a happy woman so you too can be free. Here is his contact: [email protected]

Reply
Issie
8/10/2018 04:39:51 pm

I don't think any of us are seeking who took over his practice. I see a naturopath named Jennifer Smith. She has been treating me for Lyme and CIRS and what we do for that addresses the mold/fungus Dr Fry found. Of his protocol I still do Diflucan off and on. But high doses of Lumber kinase has been found to clear the biofilms and what's in them.

I called his lab and the doctors that follow his protocol closely are the Sobel brothers. They have a family practice and take insurance. My naturopath doesn't take insurance. But I've made a lot of improvement with her.

Issie

Reply
Judith
8/13/2018 01:53:15 am

If you really think the medical sector can cure you of herpes virus, then you lie, they wont help you, go seek herbal cure for your herpes virus, here is the email of the herbal doctor that cured me, [email protected].

Reply
Issie
1/30/2019 01:09:04 am

.

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CS
4/17/2019 02:45:08 pm

Hello All:

I JUST started TX for PR/FM/FL1953 two weeks ago.

I have been ill for over a decade and acquired Lyme, Bartonella, Malaria, Zika, Powassan and an unknown fungus and substantial biofilms from a tainted blood product. I also have Adrenal Failure, so my treatment is complicated.

Does anyone out there have Adrenal Failure that has PR??

I have very intense pain now due to bursitis all over my body.

Has anyone been diagnosed with Bursitis that has PR??

I am on Doxycycline, Itraconazole, Serrapeptase, Lumbrokinase, Curcumin, Monolaurin and Welchol to fight the PR.

At day 14 the HERX started, at day 19 a powerful inflammatory response started. I assume this was when the biofilms started busting open.

It is going to be a long painful ride for me.

Is anyone in current treatment for PR - Protomyxzoa rhuematica??

I would like to know what you are experiencing.

FYI AFTER you test and find you are positive for PR, Your Dr. can contact Fry Labs, as mine did to get a treatment protocol from Dr. Fry. He does do telephone consults WITH YOUR DR. I do not know how long he will be doing this or how often he does it.

My Dr. had other patients that also tested positive, so it was a combined call.

And, if you go to Fry Labs website, there is an email for general enquiries.

If we all share credible information, people can learn what to expect.

Remember, medicine is dynamic. Each patient has their own tx protocol based on their current health, coinfections and comorbidities.

Reply
CS
4/18/2019 12:05:03 am

Hello All:

I JUST started TX for PR/FM/FL1953 two weeks ago.

I have been ill for over a decade and acquired Lyme, Bartonella, Malaria, Zika, Powassan and an unknown fungus and substantial biofilms from a tainted blood product. I also have Adrenal Failure, so my treatment is complicated.

Does anyone out there have Adrenal Failure that has PR??

I have very intense pain now due to bursitis all over my body.

Has anyone been diagnosed with Bursitis that has PR??

I am on Doxycycline, Itraconazole, Serrapeptase, Lumbrokinase, Curcumin, Monolaurin and Welchol to fight the PR.

At day 14 the HERX started, at day 19 a powerful inflammatory response started. I assume this was when the biofilms started busting open.

It is going to be a long painful ride for me.

Is anyone in current treatment for PR - Protomyxzoa rhuematica??

I would like to know what you are experiencing.

FYI AFTER you test and find you are positive for PR, Your Dr. can contact Fry Labs, as mine did to get a treatment protocol from Dr. Fry. He does do telephone consults WITH YOUR DR. I do not know how long he will be doing this or how often he does it.

My Dr. had other patients that also tested positive, so it was a combined call.

And, if you go to Fry Labs website, there is an email for general enquiries.

If we all share credible information, people can learn what to expect.

Remember, medicine is dynamic. Each patient has their own tx protocol based on their current health, coinfections and comorbidities.

Reply
Joe K
11/9/2019 02:39:44 am

I had a reading from a ZYTO ELITE in May of 2018 which showed I'd been infected with Lyme plus Borrella and Babesia (deepest). I've been using a number of holistic therapies and the ones I using now are from DesBio & in Nov 2018 I started regular daily PEMF (Pulse Electro Magnetic Field) sessions with a Sentient Light ELEMENT. The maker, Larry Langdon had late stage Lyme and co-infections and was able to cure himself with a machine he build. The model he offers now is more powerful and comes with a lifetime warranty. Cost is $3,500. for the model with two coils ($350 less for one coil) two coils can be used at the same time thus packing a bigger punch to those little creatures. I've been making good progress with the ELEMENT and last week had another ZYTO reading which showed Babesia is a deep infection but the population is down (seems to be now going after the deep ones in my central nerves system). I'm not sure but I think this means the Babesia that's being killed live deeper as the easy ones to eliminate have been killed. My symptoms go back over 20 years and might prove to be close to 30 years. I was in very bad shape but never went to an allopathic doctor as all that I read did not induce me to go that way. I did first try MMS but after 40 days of being on the protocol, I started to vomit at the smell of the MMS. After that I went to Stephen Harrod Buhner method which was doing some good work but in reading one of Buhner's books he stated that his way doesn't cure anyone of Lyme but allows them to live with it, I decided to look or a better way. Next up was extensive research into PEMF. And yes, the use of these machines does cure Lyme and co-infections but it does take time, dedication to using it daily and walking that line of few Herxheimers or too many Herxheimers. The main thing is I can be assured it's killing those things indiscriminately, the pulses do go through bodily matter and the Lyme have a hard time not being exposed. At present I'm spitting up a lot of Biofilm due to both methods > PEMF ELEMENT & DesBio Comprehensive DETOX series, the BORRELIA BABESIA Symptom Relief two box set plus the Co-InfXn & MycoCombo tinctures. (Everything that's listed from DesBio is in tinctures. Protomyxzoa came up on my last ZYTO for the first time. This is how I found this blog and why I'm posting to it because I've never researched Protomyxzoa before. I don't know why it's the first reading that it's showed up but I'm thankful to know as it might carry with it the understanding of what's cause some of the sudden loss of energy and onslaught of pain with angina, anxiety and a sudden oxygen starvation which of course shuts me down. And speaking of that shutting down affect; it's becoming lighter and less severe, faster recovery time too. So, if your wanting to know more about the PEMF machine, I highly recommend the one I bought https://www.sentientlight.com/ and Larry is very open to talking with you personally. He is a busy guy but will call you back. Since he is giving back and a part of the Lyme community his machine is very low priced. I'm only saying this because I know it works. Also, I'm not receiving anything, this is only my story.
This site has a listing of known Hz Frequencies for many ailments. http://www.electroherbalism.com/Bioelectronics/FrequenciesandAnecdotes/CAFL.htm including Lyme of course. There are other sources for frequencies bu this one is free. I've been doing the PEMF for exactly one year this week.

Reply
Ph S
12/2/2019 02:01:12 am

I started one month ago a treatment which cleaned all biofilms from my blood. I observed, under microscope, all Lyme SOP and biofilms dying and decaying. During the breaking of biofilms I had a rise of spirochetes in my blood then, among the last fragments of biofilms appeared an amazing number of cristals... They were magnesium cristals, a biologist identify them. And as Dr Fry explains in his interview, magnesium is a major component of biofilm. This blood cleaning is one step... I have a serious neuro-borreliosis... If you are interested I will send you the photos and movies of my blood.

Reply
Issie
12/2/2019 02:11:03 am

What did you do to get rid of the biofilms and fungus/lyme? Only thing I know, that has been known to work is enzymes.

Reply
Issie
12/2/2019 02:16:00 am

And do you feel he is right about not using calcium and magnesium? I know of some using magnesium and not other minerals. They felt it too important. But I don't know if they got rid of their fungus and Lyme either.

Reply
donald joe
12/18/2019 10:59:28 am

i already gave up on ever getting cured of HSV2 because i have try many treatment none of them work out for me i have go to different hospital they always tell me same thing there is no cure for herpes when i came across a post about Dr ohunyom, in the net from a lady called Angela i contacted him and he reassured me with him herbal medicine which i took according to the way he instructed, that how i was cured. I doubted at first because i have been to a whole lot of reputable doctors, tried a lot of medicines but none was able to cure me. so i decided to listen to him and he commenced treatment, and under two weeks i was totally fee from #Herpes. i want to say a very big thank you to DR ohunyom for what he has done in my life. feel free to leave him a message on email [email protected] and also WhatsApp him +2349060579973..
He can still be able to help you with this herbs medicine:
1...ALS CURE/DIABETES CURE/EPILESY/HPV CURE/LUPUS/HEPATITIS/CANCER/GOUT    

Reply
Gary Lesley
1/9/2020 03:19:36 am

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Reply
Cooper B link
12/7/2020 12:41:14 am

This was a loovely blog post

Reply
scottymary
10/15/2024 01:36:45 pm

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Reply



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