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And The Results Are In... Co-Infection Poll 2016

6/5/2016

8 Comments

 
Picture
And the results are in! During the month of May I thought it would be interesting to hold some polls on the blog & also on Twitter asking those with Lyme Disease which co-infections they have. There are SO many co-infections that often go hand in hand with Lyme Disease (I asked about 20), but I was curious which of those are the most common. As you can see, the web of having Lyme Disease can get so tangled when you throw in a host of other co-infections which stand in the way of total healing.

During the poll I asked patients to answer "Yes" if they have been formally diagnosed with the co-infection, and answer "Not yet, but suspected" if they have not been formally diagnosed, but strongly suspect it due to symptoms. I included that as an option because it is so hard to get conclusive testing for every last co-infection, and often times you or your Doctor may strongly suspect the presence of one before you are able to test. The dark blue represents the "Yes" responses, and the light blue on top are the "Suspected" cases.

The most commonly reported co-infection in polls across Twitter & this blog was Bartonella, followed in close second by Babesia. Thank you to everyone who voted in the polls on both platforms, I got an incredible response and had a really great sample size to work with. I hope this can also be informative to see the prevalence on a graph, and hopefully it can show the impact of how many layers "Lyme Disease" can truly have.

xoxo,
Christina

8 Comments
Bazia
6/6/2016 09:20:21 am

How accurate is the testing for co-infections? I test positive for EBV and CMV but none of the typical Lyme associated ones. I did have a positive Ispot but have heard that EBV can trigger a false positive. Any ideas?

Reply
Christina
6/25/2016 03:36:17 pm

Hi there, testing for co infections is tricky, there are quite a few labs who do them, and they each have their positive attributes. I would say, treat what you know you have now & re test for the others later on, and go from there. It can be easier to get correct positive responses of the others are treated some already.

Reply
John Michael Field link
6/19/2016 03:51:01 pm

Well, I've had Lyme 3 times now, and am suffering day-by-day, off-and-on, from symptoms after 8 years of this.
As I'm a musician AND a Lyme veteran, what choice did I have but to compose a song? Hope you enjoy it.
https://youtu.be/e4n7NKw0cDs

Reply
Christina
6/25/2016 03:34:25 pm

Thank you so much for sharing John. It's wonderful that you have put your personal struggles into the art of song 💗

Reply
Bekah E. link
6/25/2016 03:27:23 pm

Very interesting to see which co-infections are the most common. I've been reading your blog for a couple of months now and, as a fellow Lymie, I really enjoy what you do. Keep up the good work, Christina.

Reply
Christina
6/25/2016 03:32:50 pm

Bekah, thank you so much! I appreciate you reading & leaving a kind comment :)

Reply
Noel Campbell link
7/4/2016 11:43:02 pm

This is valuable research, well done.
I sometimes think that the co infections may cause far more problems than Borrelia.
Noel

Reply
Christina
7/5/2016 10:59:29 pm

Hi Noel, thank you so much! I agree with you wholeheartedly on that, for me Bartonella was the biggest fight of the two in terms of treatment and herxing.

Reply



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