Lady of Lyme
  • Blog
  • Shop
  • About
  • Products I Love
    • Supplements & Meds
    • Makeup & Skincare
    • Food & Diet
    • Apps & Organization
    • Gift Guides
  • Resources
    • Symptoms/Resources
    • Lyme Vocabulary
    • Printables
    • Books & Reading
  • Features
  • Testing
  • Contact
  • Treatment Info
    • DesBio Treatment Facts
    • My Treatments
    • Treatment Blog

My 1 Advice For Lyme Patients & Supporting Each Other

6/26/2013

0 Comments

 
Often times I'm asked what's the most important thing I would tell someone diagnosed with Lyme. So I wanted to take a moment to talk about that. Lyme disease is so complex, and there is always 100 tips to give and hard to settle on one. However, if I could give 1 piece of advice it would be "Never stop researching & being hungry for information."

Since there is no standard cure for Lyme disease (and so much debate on the terms of it), this means no 2 doctors will treat the same way for it. Every patient is doing something different with the same goal in mind: kill the Lyme.

As time moves on many doctors are slowly understanding the ins & outs of Lyme a bit more. This bacteria is so smart, so evasive of the immune system, and causes total body destruction. However, we still don't have an effective guaranteed way to rid the body of it. It's trial & error, until something sticks. Treatment is long because you have to do & try a lot while you piece the puzzle together. Just recently new research showed that the Lyme bacterium uses Manganese for fuel (most bacteria use iron). This was groundbreaking because going forward we know the Lyme must be starved of manganese to die. It can be a lead toward a cure.

More and more research is done constantly and I am like a sponge. I dedicate every free moment to researching & reading everything I possibly can. I constantly ask questions, I love talking to people in remission & learning from them. My inspiration has been Katina Makris, her book about healing Lyme was the first thing I read after being diagnosed, and she has helped keep my hope alive.

You have got to be obsessed with getting better. It can't be 3rd or 4th priority. You can't just take what a doctor tells you & do it like a zombie, you need to understand your treatment plan and be involved. Always ask your doctor questions, don't be afraid to ask him/her to run a test you researched, and fire him/her if something feels wrong. Remember, if you are educated to the highest degree possible, you follow your gut, and dedicate your heart to healing, you will get better.

I try to make this blog as informative as I know possible. As I get information, I will try it out & if I see results I love I always share. I think as a community of people in the same boat and we owe it to each other to share what we find successful, and most importantly we owe it to be open minded.

I've gotten a lot of criticism from people because I'm not doing long term high dose antibiotics. That is a personal choice that I won't ever force on anyone. No one has to do what I'm doing for treatment, but if it works & I see myself improving I will certainly toot it's horn & say how great it is. On the flip side I don't judge anyone for wanting to do long term antibiotics because I believe for some people that's what is right, and if they get their lives back I am thrilled. We MUST support each other in this fight. At the end of the day we all want the same things: CDC recognition & a cure.

As new research comes out from doctors now who treat Lyme by treating immune system dysfunction, go for a total body approach, I see the Lyme community start to get a bit of a division. It saddens me that instead being open minded so many are tearing each other down, or even tearing the Doctors down who treat patients like that. I just want to say that is not conducive to anyone or anything. It's so so important to always read up & analyze every different point of view & bottle that information up. Even if it offends you now or you don't agree with it, you never know if in the future it could be applied.

Long story short: be as informed as possible. Understand all your options. And always love & support your fellow Lyme warriors. I won't stop until there is a cure.

Xoxo,
Christina


0 Comments



Leave a Reply.

    Enter your email address to subscribe to new posts:


    Follow @ladyoflyme


    Follow Lady Of Lyme (@ladyoflyme)

    10.2k Followers, 618 Following, 51 Posts - Follow (@ladyoflyme)


    Categories

    All
    Crohn's
    Educational Posts & Info
    Gift Guides
    Giveaways & FREE Resources
    Health/Life Updates
    Interviews & Features
    Lyme Awareness
    Quiz & Polls
    Reflective Thoughts
    Things About Me

    RSS Feed

    Archives

    March 2022
    March 2021
    January 2021
    December 2020
    September 2020
    July 2020
    June 2020
    April 2020
    November 2019
    October 2019
    September 2019
    July 2019
    June 2019
    May 2019
    April 2019
    February 2019
    November 2018
    October 2018
    September 2018
    August 2018
    July 2018
    June 2018
    April 2018
    March 2018
    January 2018
    December 2017
    November 2017
    October 2017
    August 2017
    July 2017
    June 2017
    May 2017
    April 2017
    March 2017
    January 2017
    December 2016
    November 2016
    October 2016
    September 2016
    August 2016
    July 2016
    June 2016
    May 2016
    April 2016
    March 2016
    January 2016
    December 2015
    October 2015
    September 2015
    August 2015
    July 2015
    June 2015
    May 2015
    March 2015
    January 2015
    December 2014
    November 2014
    September 2014
    August 2014
    July 2014
    June 2014
    May 2014
    April 2014
    February 2014
    January 2014
    December 2013
    November 2013
    October 2013
    September 2013
    August 2013
    July 2013
    June 2013
    May 2013
    April 2013
    March 2013
    February 2013
    January 2013
    December 2012
    November 2012
    October 2012
    September 2012
    August 2012
    July 2012
    June 2012
    May 2012
    March 2012
    January 2012
    December 2011
    November 2011

© 2011 Lady of Lyme™. All Rights Reserved.

Terms and Conditions  - Privacy Policy
Connect with me:
Facebook
Twitter
Contact   About   Email Me


Lady of Lyme is a participant in the Amazon Services LLC Associates Program, an affiliate advertising program designed to provide a means for sites to earn advertising fees by advertising and linking to amazon.com.