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Adventures In Tachychardia

5/5/2016

6 Comments

 
Hello hello, and happy Lyme Disease Awareness Month! I love this month for many reasons, one of which is getting to see all the awareness campaigns and projects all across the community. It's such a great thing to see everyone come together and find ways to share and spread information to help others protect themselves from Lyme as spring time descends. 

I am currently in what I lovingly call, "Test Result Purgatory." During the month of April I had many different tests ran and done, and right now I am patiently waiting to get all of the results, mark things on or off my list, then make sense of it all with my Doctor and formulate a plan.

Picture
I have yet to receive the official paperwork from my Holter monitor, but boy was it an adventure to wear it during those 2 weeks! When I first got it put on I thought it would be like the scenario with an umbrella, where if you take on it won't rain. I thought that once I finally got the monitor placed I would stop having my episodes and end up with no useful data. Full disclosure, that has actually happened to me countless times in the past, although it was with the short term 24-48 hour monitors. This time we went for the long haul, and I can tell you who didn't love it... my skin. I had sores and bumps each time I put an electrode pad on (allergy to the adhesive) & even though I alternated locations daily, by the time the two weeks were up I had open sores everywhere. My skin was pretty much beyond frustrated with me for pestering it, and every night I apologized and put hydro-cortisone cream on, silently counting down the days. This however, was my only real complaint.

Outside of the skin irritation it all went smoothly and I managed to actually record quite a lot of heart events. It monitored me 24/7 and could pick up an event on its own (say, during sleep), but I also sent over events myself if I felt my heart was being particularly strange; fast, slow, skipping beats, etc.

In terms of symptoms being scary, I think I place heart symptoms right at the top (tied with neurological episodes). The sensations can be down right terrifying & although they're never necessarily painful they are very uncomfortable. Lyme disease & co-infections can cause a variety of symptoms, and some of them are just "sensations," as in, they aren't directly dangerous like a heart blockage or valve issue, but it can still strain the heart so the goal is to minimize it as much as possible. One strange feeling that I used to get constantly (now much less) is air hunger. It's a sensation of not getting enough air & almost paralyzing, like something is sitting on your chest, but in truth the lungs get enough air. It's just a sensation. I could go on for days discussing all these random sensations, but basically it is my hope that all the strange stuff happening with my heart will come back as something benign but still helpable (that's not really a word, but you get it...). Basically I hope there can be a solution or answer for the issues at hand, so if things flare up again I can calm it down in some way.

So for now I am just keeping my fingers and toes crossed for the test results to come, and essentially I'm just trying to have peace with whatever they say. It's worrisome to feel 'stuck' or uncertain about the future. I've been in this rut lately where things feel very consuming & bigger than me. It is during these times especially that I need a reminder that my life in this moment is part of a bigger plan...

"For I know the plans I have for you, declares the Lord, plans to prosper you and not harm you, plans to give you hope & a future." - Jeremiah 29:11

-xoxo,
Christina


6 Comments
Magatera
5/6/2016 03:40:34 pm

"For I know the plans I have for you, declares the Lord, plans to prosper you and not harm you, plans to give you hope & a future." - Jeremiah 29:11.
Keeping my fingers crossed for you. I hope that all goes well and that the results will be good, informative and helpful for your future course of action, all for positive results.
I am a silent follower of yours and have learnt many things from you. I thank you for sharing your journey with us, I can assure you it is worthwhile to many. I am always praying for you. God bless.

Reply
Christina
5/10/2016 10:34:20 pm

Magatera, thank you SO much for taking the time to leave a kind note & offer encouragement. It certainly made my day :) thank you for your prayers & for reading, it truly means so much
-Christina

Reply
Crystal
7/29/2016 02:59:48 pm

Hi , I just found your blog. I'm trying to educate myself as much as possible. I just got dignosed with chronic Lyme. We think I have had it since beginning of college in 1999. 17 years or so. I went to Lee Unviersity in TN outside a lot. It explains years of neruloglogy problems and nerve damaged that my Neruologidt blamed on a nerve disease I was born with. Now my husband and I are realizing so much more. My functional med dr started me on doxycline but I ended up in ER three times. My heart was racing and felt like someone is Squezzing it. My husband had to call 911 bc I couldn't respond well. We stopped doxy . Dr thinks it was to much got me so now I'm on des bio series 60 day kit. Slowly he said he will work me up to possibly doxy 😬 Not sure I will do that. But defiantly ozone theapry and something where he takes my blood out and puts through uv light then puts it back in. He says I'm not ready yet though. I'm still having a aching heart and racing at night. I'm getting a holter monitor for 4 weeks 24-7... I'm praying it simply goes away since this all started when we started treatment. I feel like we have a lot in common. My hope is in Christ Alone. I'm realizing theirs no point in being scared because for 17 years undiagnosed my God protected me and he can do it again! Your blog is encouraging! What results did you find with the holter? Praying healing for you! Do you have an instagram account? Mine is Crystalljung. Please share an wisdom I'm so open to learn from those before me :) be blessed

Reply
Christina
8/28/2016 11:55:29 pm

Hi crystal! I apologize for the delay in replying, I just saw your comment! Wow you have had quite the journey for a diagnosis! I couldn't tolerate doxy AT ALL either so you aren't alone! The DesBio series is wonderful, I hope you are doing well with it. It takes a little time to get through the kit and the results will keep coming after the fact. If you read my post on cd-57 levels I talk about how for months after I finished the series therapy my symptoms kept improving & I kept seeing the fruits of the labor pay off more so to speak. I pray that you are doing better a bit since your last comment!

Reply
Caitlin
8/28/2016 11:38:38 pm

Any results from the holter monitor? I had to wear one too and they didn't catch anything off of it in regards to Lyme but then but test came back positive. Would be interested in what yours had to say.

Reply
Christina
8/28/2016 11:51:09 pm

The trouble with Holter monitors is that they aren't very useful to diagnosing Lyme because they only look for a few certain things. Pre-diagnosis I wore a Holter on like 3 different occasions and they never caught anything. Those were for a shorter time period though. This one I had for 2 weeks and it caught a lot of my episodes so my Doctor could see how my heart goes from 60bpm's to 140bpm suddenly. That kind of info was helpful to him to see how quickly it spikes and he found other useful info like that. But outside of that it didn't show anything major.

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