Saturday (the day I took dose 2) was a really active day. I normally spend only 1 hour or 2 max out of bed a day. Even sitting on the couch downstairs is exhausting sometimes because I'm not laying & elevating my legs etc. So I usually am mostly in bed, some days entirely in bed. On Saturday though I was out of bed from 2pm-12am. Which I still don't know how I did it! I spent a lot of time out by the pool, gave myself a manicure, took a long walk with my parents, hung out downstairs & helped with dinner, watched TV on the couch, & then a friend came to visit & we spent a few hours laughing & carrying on. It felt so nice during that time to be normal-ish. I didn't feel awesome but it was tolerable & a really nice surprise! I normally can't do nearly that much no matter how hard I try. Of course Sunday it all hit me & Monday I was completely useless too.
My biggest issue is just exhaustion. When it hits it's the kind that makes me have no will to even lean down & pick up my phone charger. It hurts to even lift my legs. Also my senses have been very flustered. Visually I have had a lot of trouble reading for very long, or doing things on the computer, and even watching TV. I really REALLY hope that this flare is because that part of my brain that is damaged is healing!
Vial 3 tomorrow!
Xoxo,
Christina
My biggest issue is just exhaustion. When it hits it's the kind that makes me have no will to even lean down & pick up my phone charger. It hurts to even lift my legs. Also my senses have been very flustered. Visually I have had a lot of trouble reading for very long, or doing things on the computer, and even watching TV. I really REALLY hope that this flare is because that part of my brain that is damaged is healing!
Vial 3 tomorrow!
Xoxo,
Christina
