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My Experience Using ACT (Advanced Cell Training) for Lyme Disease - An Honest Review! 

2/24/2016

60 Comments

 
Lady of Lyme: And Honest Review of ACT Advanced Cell Training
Since this is the section of my blog where I speak about different Treatments, I wanted to share a long delayed post about my experience with ACT - Advanced Cell Training. Every time I tried to find a review (prior to starting), all I found was a few blogs praising it but they didn't really explain much and they also are close to/with the creators of it. I'm not saying that they were influenced, but that didn't hold much clout in my mind. I wanted a real review that talked about all aspects. So, I am here to share my side of the experience using ACT, which is MUCH different than what you normally hear, and hope to answer as many questions as possible.

In a nutshell, does it do what it promises? Yes, and no. Did it work for me? No.

I did ACT for 3 months, from August 2014-October 2014. The first month is free, in that you pay and if you don't feel like it's doing anything you can get a full refund and stop. That seemed pretty fair to me, and was a big part of the reason why I jumped in. I figured it can't hurt to try! I went into this with a completely open mind. It made big promises and the reviews on the Facebook page were amazing. The method can seem a little "out there" to some, but I genuinely felt like if THAT many people got well then who am I to judge it or look down on it? Why not give it a try and see if I can add myself to the list of success stories? So, I did this with a completely open heart, just wanting to experience what ever would come my way. Maybe I was even a little bit desperate at the time, because I began this in August which is during the early stages of my health downfall, and at a point where I felt very hopeless. ACT was essentially my hope.

I did not tell anyone I was doing this, and afterwards still didn't share that I ever did it. Until now. Why? Reason #1 was that I didn't want or need anyone's opinions to cloud the process. I wanted to do this and give it my all, and getting flack for it or just hearing a, "oh my friend did that, it didn't work" comment would discourage me. I didn't want that. Secondly, I didn't share afterwards either because at one point I thought I might go back to it. I stopped because I got so ill from it (more on that later), and thought I could finish up at a later date. Now that I know that is highly unlikely I'm willing to talk about the ins and outs of this process.

What is Advanced Cell Training and how does it work?
This was my million dollar question too, because no one really explains what the heck it is until you get into the class. I could not find one review that talked about it in depth, but rather it's just a surface explanation.

The ACT website says: Advanced Cell Training (ACT) is a cellular behavior modification program. This simple and non-invasive healing process can be done from home by phone and internet. There are no pills, herbs, supplements, or machines involved. We have all trained ourselves to do things such as ride a bicycle, dance, play a sport or musical instrument. This is accomplished through focus, intent and practice. It’s called muscle memory, though it is really the cells that retain the information. ACT uses the same premise and applies it to the autonomic systems of the body, including, but not limited to the immune, digestive, elimination, endocrine and respiratory systems. We believe it is actually easier to train the body to do that which it is designed to do, rather than what it was never intended to do. While playing piano and golfing is not inherent in our DNA, our immune system is. Restoring proper bodily function at the cellular level can restore homeostasis. That is when the body processes stress, removes toxins, kills pathogen (viruses, bacteria, parasites), stops overreacting to allergens, and nourishes and protects itself; restored health is the likely result.

Soooo, what the heck does that even mean? Once I got into "class" (via a group conference call) on the first day all was explained. Essentially this is how it works: First we are read groups of code words, usually lasting about 3-4 minutes, which aren't even really words but rather snippets of words put together which the brain understands on a deeper level. For example we might be read IMGBORRELIA818 or something of the sort, which to the naked ear makes 0 sense but to the subconscious it does. There are pages and pages of codes that get read to the class, and they are read at lightning speed. I laid down, eyes closed, and just listened. After that is finished we are instructed to listen to an hour of a repetitive melody to "set" the codes in the brain. We got a CD and could download it to any computer or phone, so it was convenient. I laid down, put the music on and rested. (We also had to tap our thalamus for the first 5 minutes of the music). After the hour is up, you have to call a special phone number and get "set" with a few more words, and then listen to the hour of music again. The whole process (class, codes, music, setting, music) takes about 3 hours total. It seems long, but it's a small price to pay for health so I really was not phased. We met once a week like this, and each week we were to report our progress to Gary. We sent an email that had a list of our top 10 biggest concerns and then we rated how they felt on a scale of 1-10 each week. This is how people see progress, because as the weeks go on the numbers should go down from the 10's where it began to 1's and 0's. Also, during each class call Gary speaks to a few of us on the call personally so we all can follow along on each others progress.

Week 1 - Day 1
Going in to class on day 1 I expected to feel nothing. We were warned of the herxes to come, but I thought there is absolutely NO way in God's green earth that words and music could do anything to me. I really didn't. I guess I was a doubter in that respect, but it just seemed like an outrageous idea. I had conversations with my mom laughing at how stupid that would be. Well, guess who felt like an idiot the next day? Me. Because it knocked me on my butt. While listening to the music I had fatigue and exhaustion hit like no other, and the following 24-48 hours were hell. I am not even joking (but I wish I was). Let me just tell you that I have done a lot of treatment during my many years with Lyme, and I understand herxes, and can usually control them to an extent. But oh no, the herx I got from this ACT class was unlike anything I have ever felt. So intense, lots of pain, lots of everything. Once it eased up I remember asking myself what the heck I got myself into.

This continued on for the next 3 weeks, and essentially that's why I decided to continue on past the first "free" month. There was no doubt that it worked on some level because I reacted strongly and intensely, much to my great doubt. I wanted to continue, because even though the herxing was terrible, I was committed to coming out on the other side. In fact, our class of 26 still had all 26 students going into week 5, which tells me that everyone else likely felt the same way. I was also encouraged because some of the participants already were having massive changes in their symptoms for the better. So, I hunkered down and continued on into September.

Around this time in week 5 Gary realized that I was having a really hard time with the codes, and my body was being beaten up badly. This was, by no exaggeration the sickest I had been from a treatment of any kind. I get how insane that sounds, but it's true. I wasn't able to eat hardly anything, my mom was giving me sponge baths regularly because I couldn't physically move to shower, I had to sleep with my mom for her to watch me at night (had some intense episodes happening), and so much more. I was really freaking out about what the heck was happening to my body because it was intense, and sudden and I wasn't getting relief. At this point Gary spoke to me one on one and said that for some students he gives them "side codes" which are a smaller set of codes specifically created for ME to help ease my herxing and get my body to detox properly. I said sure, did the side codes, and that was the first time I had any ounce of relief. It felt like someone took 100lb weight off of my body, and I was so thankful.

This was short lived though, because by the time I did the codes for week 6, the herxes hit again and stronger than ever. At this point Gary veered me away from the course of the class and said that instead of giving me codes for bacteria, viruses, protozoa etc (which is what we have been getting in class until then), that he would give me codes to work on emotional blocks. Typically the emotional portion of the class doesn't come until much later, but he began me on it earlier separately because he felt that the class codes were much too strong for me and the emotional blocks were what were holding me back.

Now, if there was EVER a time for me to scoff at something, it was now. And boy did I scoff. I thought, "are you kidding me, what emotional blocks? oh good, it's obvious this is a bunch of hokey zen craziness and I'm done here." The idea of emotional blocks impeding my healing was laughable so new-agey to me at the time, and then the idea that code words could fix them and help me was even more absurd. I honestly almost quit at that point, and the only reason I didn't is because I was sitting there at week 6 feeling supremely WORSE than when I began. I felt like I couldn't quit or else I would be stuck in that, and I really wanted to come out on the other side. So, I continued.

Guess who again felt like the idiot the next week when the emotional codes made me herx EVEN worst? Yup, you guessed it, ME. At this point I realized that everything I thought I knew, I didn't know. And I was also ashamed that I was so judgmental about something. My attitude really shifted, and I realized whatever the heck this ACT business was, it was very real. That can't be doubted. Weeks continued, and so did the downward spiral. I had a few moments where I was like "oh good, I'm over this now!" But then I would get thrown right back into it. Advanced Cell Training took my body, chewed it up, and spit it out. I would be on the phone calling the ACT offices, trembling like a leaf, in tears, asking for someone to make this stop. And I kept getting told that it would all go away very soon so I need to keep on, and when it broke I would feel like a new person. I believed in this so much, and I tried so hard to keep going. But by week 12, I couldn't do it. I was a shell of the human that I was when this all began. My body was one toxic jumbled mess, and even I couldn't understand how I got there. At the end of October 2014 I stopped. At the time it was just a pause until I got stronger and could finish, but ultimately it was the end for me.

Afterwards..
If you read my main blog, I talk about how I relapsed hard at the end of 2014. Depression, which is something I had NEVER experienced before, reared its ugly head. That, coupled with being the absolute most sick and in pain that I had ever been put me at my low point. In November I missed being a bridesmaid in my best friends wedding, and my soul was crushed. I had so much hope and faith that this program would help me GET to the wedding, not the other way around. Following that I had bouts of severe pancreas and liver issues, leading to several months where I was genuinely unsure how I would make it or climb out of that low point. I never in my life was as sick as I was then.

Now, do I blame ACT fully, or even at all? No, I really don't. Not one bit. And that's because the program did what it said it would. It said it would use words and music to make my body attack and kill pathogens. Did it do that? Yes, I 100% believe it did. But my body wasn't strong enough to handle it. For whatever reason, I was the exception to the rule that ACT works for "everyone." Maybe it would have, had I decided to continue, but I physically couldn't. ACT could be a Godsend for so many, but for me ultimately it was anything but that. I was an optimistic skeptic going in but had that desire to heal and really felt like I could also be a success story along with the others. I don't know why I wasn't, but I can only assume that wasn't in my healing plan, and I'm okay and at peace with it.

This post is not in any way discrediting ACT, because if anything I know it does what it says and I admit it freely. But, it is vitally important for me to put my voice into the mix in case anyone is researching doing Advanced Cell Training and wants to hear both sides. Or maybe, someone is like me and feels like the outsider who doesn't understand what is happening. Have no fear, you are not alone! For some people it just does not mesh well with their bodies.

So that's everything, I think. If I left anything out or anyone has any specific questions please do ask, because I am more than happy to share anything. Or email me, if you would like to ask privately.

All the best,
Christina


Disclaimer: if you leave a comment defending ACT or arguing a side, it will be deleted. That is not the purpose of this space. This post is just my objective story about what happened to me personally. As I stated above, yes there are people who love ACT and get better. You can find such stories all over their official Facebook page. This is just my experience in an honest and detailed format. If it worked for you I'd love to hear that, but no comments which argue will be tolerated. I still urge people to read all sides and form their own opinions, and I support and encourage ACT to anyone who feels like it's right for them. I wish everyone healing and great success in whichever way they choose to pursue it.
60 Comments
Dianne Young
6/23/2016 09:31:51 pm

Hi Christina, Thank you for your post. I found it helpful. My lyme symptoms are in the lower half of my body. It feels like I have 10 lb. waits on my feet. Caused by nerve damage probably. I wonder if ACT would help with this?? Also do you know if ACT gives a financial award to people referring others for treatment??

Reply
Christina
6/25/2016 03:31:20 pm

Hi Dianne! I don't believe they offer anything for referrals, at least not when I did it. It certainly might help with your nerve pain yes! If you feel compelled to try it then you definitely should follow your gut instinct! It did help a lot of people who tried it.

Reply
Lisa Bevill link
8/8/2016 03:58:04 pm

Hey, i've been wanting to try this as i've dealt with lyme, parasites etc. as well. I have a friend who is just finishing up and told me there is a class starting in August. I'm wondering if folks with any type of childhood trauma herx harder.. and wondering, since they do prayer, I'm wondering if you are a Christian and do you think that has anything to do with how you felt or didn't feel as well. Herxing is NOT something I look forward to.. and do they also tell you that you can do Ionic Footbaths etc while on their program to detox. I REALLY would appreciate any insight you can give to those questions.. thanks, Lisa

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Christina
8/14/2016 12:31:14 am

Hi Lisa! I do think that having childhood trauma or other uncovered stress/trauma issues could be a stumbling block or cause for someone herxing harder than others. As far as the prayer it's not really a prayer in the form we know as Christians. You call a phone and someone silently "prays" a prayer they "sets" the codes. I don't understand that aspect as much because it's not religious in nature and I'm unsre what they say etc. I think since it's free for a month you can give it a shot & if you feel like your gut is telling you not to keep going then you will know! If you want to chat more in depth please email me [email protected]

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Dr Jeffrey Berube
9/11/2016 10:47:15 am

Hi Chritina,
I'm not sure if you currently monitor this site this blog/site, but I just read about your experiences regarding ACT. Today is September 11, 2016, and in reading your negative reaction to the ACT protocol and knowing very little about your clinical history, but it does signify that your body was quite depleted of systemic vitality. So your body was not readily equipped to handle/ manage the effects of the ACT protocol. By building up your bodies vitality you perhaps would have a better chance at recovery. Thus build up can be accomplished by "cell salts", homeopathically.
My email address is [email protected]
Be well,
Dr Berube

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Lisa
9/11/2016 05:35:33 pm

Dr. Berube.. so are you advocating for ACT? Have you worked for this company? Or know about what they do? Do you know anyone who has done the program and done well on it? Just curious as to what you mean by "your body was quite depleted of systemic vitality"?

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hmk
9/13/2016 07:49:33 pm

I have to wonder if the EM exposure from the multiple hours of being next to a speaker, phone, computer was contributing to your decline - and not the frequencies/codes/music/mumbo-jumbo broadcast in the treatments.

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Christina
9/13/2016 08:01:28 pm

Hey there. I didn't spend any extra time around EM's during this. Not more or less than on any given day. I also have an EMF protector blocking case on all my devices which helps a lot! It's a good thought process for sure, but definitely not the culprit. Also, if so it would also probably affect every other patient in the class. Have you done ACT?

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emfblocker
10/4/2020 09:30:30 pm

How is it that you have EMF blockers on your devices and not your body? The device RUNS on EMF (wifi, cellular all emf). I suspect if your devices still work, its not actually shielding EMF.

Lisa
10/2/2016 12:23:38 am

Hi Christina,
Thank you so much for publishing this review! I am like you in that I look for more detailed information and real reviews. Right now I am seriously considering this treatment since a family member has offered to pay for it.
I am wondering about your condition going in to it. I have had Lyme since 2010, and possibly longer. I have the MTHFR mutation. I have had about two years of antibiotic and herbals followed by a year break then a year of gut healthy treatment and parasite protocol which I am just finishing. I'm feeling pretty good most days. My worst symptoms are neck pain, headaches, severe brain fog, joint pain and extreme fatigue which puts me down at least once a week for the most part. I'm not currently working, but I am caring for my 24 yr. old daughter who is also suffering from Lyme with much more severe symptoms than I. I had a very stressful job for the past three years and went through a divorce. That was final last December and I left my job this past July, moved into a family owned property so I could take a break from work and rest and recuperate. I am feeling stronger since July.
How does this compare with how you were doing when you started ACT?

Reply
Christina
10/7/2016 03:07:21 am

Hi Lisa!
They offer the first month free & you will know by the first month how you react. If you react severely I don't recommend continuing just judging by what I experienced. But if you stay the same or even improve a little bit then with the help of your family if you could continue then that would be great! So many people have success and I don't want to deter anyone from following their gut & giving it a shot. But I thought it was important to just share that it can go either way & to follow your body and how it's responding. I wish you all the best in your quest to health Lisa!

Reply
Lisa Bevill
10/7/2016 03:45:50 pm

I can't keep up with how many Lisa's there are in this thread, so not sure who is talking to, so I'll be Lisa B from TN..

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Rita mckeon
12/20/2016 02:32:02 pm

Hi Christina ....thank you for writing about your experiences with ACT ...
Its comforting for me to read about someone who experienced what I am currently experiencing ...I am astonished at the severity of the herxs I am experiencing... It does feel like my immune system is switched on and going after the infections but the almost constant herxing is very difficult to endure ...I have had severe herxs on other treatments ( rife ,herbs ) but at least I could take a break if it got too much ..I can't do that with the codes ...I keep waiting to come out the other side ..hopefully soon ..how long after stopping doing the codes did it take for you to start feeling better and were you ultimately helped by other therapies ? Hope you are doing much better these days .

Reply
Christina
12/22/2016 04:27:50 pm

Hi Rita!
So for me I never improved from the codes. I just got so sick that I eventually had to give up because my body was in shambles. I speak a bit about it on my post, but sadly I didn't come out the other end. It took me about a solid year after the case for me to feel human again, I was so so sick from it.
Follow you gut instinct. If you are really having a bad time then maybe take a break and come back when you've regained some ground. The promise of "if you keep doing it you'll improve" is one which works for some & not others, so just be careful! I wish you all the best with this and I pray that things look up!

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Kim Buchholtz
7/4/2017 12:17:12 am

Thank you I was thinking about it but I know I'd get sick and have terrible pain. I've had chronic pain for 11yrs and getting worse .I just found out my blood test came back positive for Lyme disease. I also have tramadic stress .syndrome that causes pain .I tried a rife machine and it put me in terrible. So thank you for your message so for now I'll hold off

Reply
Lisa B.
7/22/2017 05:35:10 pm

I think that anyone who is wanting to use this for Lyme, please do your due diligence and go on to wwwlymenet.org and search under Advanced Cell Training and also ACT, and look at all that is posted there. There are many disturbing stories ..I'll just say that! This is what I did and then proceeded to ask some folks who had been involved with this program and then looked at ACT's FB page, there are some things that contradict and just don't make sense, and I'm very concerned there could wolves in sheeps clothing. Please be sure and do your research on Lymenet, which is anonymous and is a very respected informational site for all things Lyme.

Reply
Christina
7/22/2017 06:13:51 pm

Lisa B! Hi there, yes I fully agree with all that you said! If you'd like to share this blog post on LymeNet I would love that! I don't have an account personally, but it could be of great use to those there as well. Thank you for listening and being so supportive! :)

michelle
8/31/2017 03:50:01 pm

Lisa B, I just did a search on lymenet.org and found nothing...? First I searched advanced cell training and got nothing at all. Then I searched ACT and a number of things came up but none pertaining to advanced cell training. How do I find the reviews there on lymenet.org?

Christina
7/22/2017 06:12:21 pm

Hi Kim! Thanks for stopping by and taking the time to read this. I'm so sorry you too are struggling with this disease, but I pray that you find what you need to heal! <3

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Dana
7/28/2017 01:01:06 pm

This makes a lot of sense. One never knows what they may be tapping into and unlocking.
You may have said this, but do they offer emotional/psych support at all?
Great review. Thanks!

Reply
Christina
8/7/2017 06:10:46 pm

Hi Dana!
They don't, or at least not that I know of and not when j was doing it. They do "emotional codes" but they don't have anyone on hand who is qualified to deal with that at all. Which, in my opinion is so necessary! Especially because in class they would encourage people to talk about their emotional traumas, and some were very very intense. I don't think it's a good idea to leave people to deal with it alone. That could have changed since then, but I haven't heard of it!

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michelle
8/31/2017 03:46:26 pm

Wow! So very sorry you had that experience - and for so long!! This is good to know. I am going to look at the posts on lyme net as well as someone suggested. I've been trying to learn more about ACT.

I recently heard about Annie Hopper's Dynamic Neural Retraining System (DNRS) and I am wondering how this compares to ACT's program though I can not find any comparisons in the net searches I have done.

Highly informative post - THANK YOU

Reply
Heather
9/12/2017 05:54:50 pm

Hi Michelle,

I've been doing ACT for 3 months and just completed Annie Hoppers DNRS DVDs. My ND recommended DNRS. The DVDs helped my anxiety within one week. I've been fighting Lyme and Anxiety since giving birth to twins in late 2015. Annie states you must train for 1 hour per day for a total of 6 months straight for DNRS to fully work. I'm still wondering about ACT but highly recommend the DNRS training.
I also recommend Dr Joe Dispenza's book Breaking the Habit of Being Yourself and Anthony William, Medical Medium is interesting.
I came across this site and plan to try the 3 step protocol.
http://www.ppt-health.com/disease-protocols/lyme-disease/
Get well!

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Michelle
9/29/2017 07:01:37 pm

Thanks for the info Heather! How are your other symptoms with Lyme after 6 months of DNSR? How are you progressing with ACT and how would you compare the two? I will look into the books you mentioned and the website as well! Thank you:)

Debbie
9/29/2017 06:03:43 pm

Hello, I am so sorry to hear what happened to you. I am doing the Act treatment now. I have herxed as well and it was really hard. They mentioned to do an ionic foot bath to detox. I haven't done it yet. I have heard apple cider vinegar baths can help if you tried it. Please let me know how you are doing. I'm really concerned with everything that happened to you and would like to see if I can help in some way.

Reply
Christina
9/30/2017 03:05:09 am

Hi Debbie! Thank you for your kindness! I hope you have a great experience with ACT, and yes definitely keep up with detox during the treatment, that will be very useful!

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Cyd link
1/13/2018 10:31:54 pm

Hi, thank you so much for your story of act. I hae been suffering from lyme & 5 co-infections since 2009, may of had it longer. I had it in my brain but scan is clear now, as well as the brucella. I'm better than i was but still very sick. I've tried many treatments& was considering act. I don't think my system can handle it as i am so weak as is. I also have hashimotos thyroid, autoimmune, low ig, lots of spine & hip pain. I had to leave my job & don't know what to do. I'm with a functional medicine practioner to help heal my immune system. My pets keep me company & loved. Thank you so much for this post & god bless all of you in your healing journey.

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Nat
12/14/2018 04:26:10 pm

Hi Cyd, I seem to have the same issues as yourself incl. falling sick with lyme and coinfections in 2009, the brain stuff, brucella and having to quit my job etc. I also have severe derealization symptoms from Lyme and am seeing a functional medicine doctor as well. Did you end up trying ACT eventually? I would love to hear about your experience. Thanks.

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david peatross
1/27/2018 06:45:19 pm

Hi, having read all this I have to go the other way in offering a positive response to and for ACT in my personal case of chronic Lyme disease. Christina you have me deepest empathy for your pain and suffering. I suppose we are all wired differently as you certainly must be and ACT didn’t work for you. I would imagine the fact that after eight weeks all 25 were still participating in the class speaks of or has some validity to the positive. ( after the four week money back warranty has expired) I was in horrendous muscle pain, fatigue and brain fog before I began ACT. I was notch away from a wheelchair, I could not even dress myself. I couldn’t work or accomplish anything. After doctors and antibiotics plus a great diet, many herbs and vitamins failed miserably for me I was just about to give up, and I was totally depressed too. A friend of mine through Facebook contacted me knowing through FB that I had contracted Lymes and directed me to Act because her daughter had been fighting chronic Lyme for years with no help. She had been to special medical clinics all over the country, in fact broke their farming family with no insurance for life trying to cure her daughter who was in a wheelchair-by the way. After four months of Act treatments she was well/ cured and back to living. That’s what sold me on it, and as crazy as it sounds, ( One can almost believe it is a hoax) I signed up. Currently I am coming down off my ninth week of treatments and I have improved 75%! The more I hear in the classes the better I understand it all. So I would humbly advise for those in wonderment whereby regular medication and traditional doctors have not worked for you to try this alternative method. Christina I am truly sorry and I hope you find a path to healing, I know your misery. Capt Dave

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Sue
3/17/2018 04:54:18 pm

I am terrified of herx so this is enough to scare me away. There is no way I could handle anymore pain than I already have.thanks for your review. Very helpful. How are you doing now?

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Annika
4/23/2018 10:15:35 am

Hey,
Thank you for sharing your story with this. I didn't know that there was a completely other treatment called ACT. I had never heard of this before. I'm glad to be informed and aware. The ACT I did stands for autologus cyto immunotherapy, and its a treatment of stem-cells, a pretty new one too. Completely different treatments. No trearment should promise to work for everyone, i dont think thats okay. Thank you for your honesty, this could really help someone out. Healing wishes and hope you'll find what works best for you.

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Christina
4/23/2018 06:13:45 pm

Annika,

Thank you so much for your kindness! I have heard of your kind of ACT as well, and I've heard amazing things about that! I wish all the same for you, and I hope that you continue to heal and feel better as well :)

Reply
Erika
5/30/2018 02:30:48 pm

Thank you for your review on this I’m so sorry you weren’t able to get through ACT as your symptoms got so bad with herxing:’( my mom just mentioned ACT I instantly felt sceptacal and saw your post. I’m “interested” (I say that in like a 5-10% manner) in trying ACT as it worked for someone I know, but in my gut I feel I’m too ill for it to work for me. I feel like i’d have the same reaction you had as I tend to react the same way to treatments. I’m getting an ionic foot bath actually soon which someone above mentioned so maybe that’ll help. But I think I need to detox much more before ever even trying this ACT. I’m going to be doing EMDR with my counselor soon and that is going to be strenuous enough releasing emotions.

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Zora NH
9/25/2018 02:36:02 pm

A friend just got huge benefit from ACT and strongly encouraged me to try it. I’m so grateful that you took the time to write your review. To be very honest, I think you may save some lives. I myself would likely not survive a big sustained herx. I seem to herx in ways that land me in the ER with breathing and swallowing stopping. I also seem to herx to things no one else does so this is such useful info for me. I will not be taking the risk with trying it and want thank you 🙏🏼

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Richard
12/5/2018 07:20:12 pm

Very interesting expirence with ACT.
Modern medicine recognaize herx reaction as a good thing.
They say if you herxing it means treatment is working.
Mybe that was positive reaction ?

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Stephanie Kelley
12/27/2018 07:51:07 am

I'm very interested in trying it. I don't have Lyme. I have other chronic pain and health issues.
What hasn't been mentioned is the real actual cost after the free month. That would be a huge factor for me.
I truly appreciate your honest feedback on this treatment. I'm just now starting to look at "out of the box" treatment ideas that insurance won't cover. I'm just so sick of the pills and bi- weekly shots in my back and the side effects to everything. I'm still able to work... but I'm missing more and more.
I just became a grandmother and he's only 4 months old. I want to be able to play with him.
Thank you for any additional information you can give.

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Christina
12/27/2018 10:23:41 pm

From what I remembered it was about $60 a week, and they make you stay with it longer and longer. If you don’t feel better then they tell you that you are a slow responder and need another few months. Honestly, next thing you know you’re out $3,000 so just be cautious about that. Once you start they will say it’s dangerous to stop cold turkey. They will offer you extra classes to help “detox” or assist your body & that costs extra too. They also will try to refer you out or suggest other things to help support your body which also costs more money. I easily spent more than a grand or two on this, and I truly wish I hadn’t. But that’s just my experience, I also understand how you feel because I know what it’s like to be so desperate & wanting a better life for yourself.

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Maz link
1/16/2021 10:43:07 pm

Hi yes lots of money. 200pm is what I was told by someone who works with Gary and wanted me to do it. She's in an international Lyme group on Facebook. She keped saying it's free for first set of codes what do you have to lose except maybe pain.

Maz link
1/16/2021 10:39:14 pm

Hi I just looked into this Act and a practioner who works under Gary Blier tried to get me to do it. I'm glad I didn't as I herx over stupid things. Have Lyme desease and 4 coinfections diagnosed from a private Lyme blood test Armin labs low cd67 and nk cells and I was told by the act practitioner I basically don't have Lyme coming up on the muscle testing of symptoms. It was ankulosin coming up. I was told diabetes was an infection in the organs. That my symptoms I gave her first were not of Lyme symptoms. Muscle pain head pressure tinitis being my worst. I have mthfr and hit possible mcas. Alergies like bad reactions to meds and foods and other stuff so herx hard. Bad bad herxing can be very dangerous. Lyme Dr's stop treating for a few days to let peoples detox catch up. If you herx continously it can be fatal I heard. Maybe it's a goid thing I said no and what qualifications has she I asked. She replied Gary can verify them. No I want to see a certificate as proof. Not another person in the same company saying its true and 200 a momth is more then my Lyme np in London charges. 200 pm is lots of money.

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Jachan
2/21/2019 09:55:17 pm

Hi Christina, Thanks so much for posting this. I've been eyeballing ACT for a bit now, with similar attitude to yours at the beginning. I don't know that I have lyme, but do have chronic health issues, and I have had a LOT of trouble detoxing in the past, so your experience gives me pause. Do you happen to remember, did other people in your class have similar challenges but move through it more quickly? Or was it more "either-or", meaning, some moved right along and others got bogged down and really didn't recover? Thanks again!

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Bonita Poulin link
4/24/2019 03:21:25 pm

Were you doing things to help your body detoc through this? i.e. saunas, baths, footbaths, coffee enemas, detoxing frequencies etc.?

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Christina
4/24/2019 04:01:45 pm

Yes, I was doing quite a bit of detox on my own as well during this. But I couldn’t keep up enough to give me relief, it was still much too much for my body.

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Sandy
6/8/2019 11:37:38 pm

Hi. Thanks for your post. In their promotional videos he gives an example of someone having condition “X” whose code will be “whatever”. And each condition has different codes I assume. If I understand you correctly, the codes are read to the group, regardless of your condition. Am I right? Was it ever explained why would you would have to listen to a whole bunch of Other codes not pertinent to your condition and have your brain try to direct your immune system to correct itself?! Why not individual/custom codes? Just wondering if the question ever came up? Thanks.

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Christina
6/9/2019 07:02:10 pm

Hi Sandy! That question did come up, and they said it would be too difficult to do custom codes since they are so busy. So everyone gets all the codes & we were told the ones that don’t apply to us won’t hurt.
At one point i was having trouble and they sent me individual codes but they weren’t custom made to me, rather they were overall detoxing type codes.

Perhaps they would have better success with personalized codes, but they also claim some people might not realize they have parasitic infections or certain co infections so having all the codes for everyone is beneficial

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Maria
6/13/2019 03:48:18 pm

Hi Christina,

Did they give you herx codes to relive the herxing? I herxed quite bad too and could hardly eat anything with burning and throat tightening as if my lymph froze. I do not think am trying this for now.

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Christina
6/13/2019 07:16:17 pm

Hi Maria!
Yes, I did get codes to help the herxing (detox codes), but they didn’t work overall. On one occasion it felt like it worked, but by the time I did the next round of codes I got so bad that even the detox codes didn’t help at all.

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Fuchsia G
10/9/2019 11:38:01 am

In the Better Health Guy podcast with the founder of ACT, the treatment is compared to rife. Both are using frequencies to destroy pathogens. Apparently one needs to be as careful with ACT as with rife. As Dr. Neil Nathan says in his book Toxic: Heal Your Body from Mold, Lyme, MCS (highly recommended book) "While some patients have been helped by the use of Rife machines, many others report Herx reactions, and the indiscriminate use of these frequencies has made many sensitive patients worse."

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Kristy
3/10/2020 12:12:03 am

oh wow, I don't know how I have not read this post, until now. I did ACT. All of my symptoms flared. Even old ones. I actually started to feel a bit better, right before we went into the emotional codes. Then, everything went to crap. It got so bad that Gary went back and gave me the lyme and infection codes, again. It never got better and I just stopped. I seem to be the person who has more problems with any type of treatment that causes even the slightest 'detox'. I believe it is because of two things...1. lack of 'electricity' in my body (cells are not communicating correctly, due to dehydration, pathogens, metals, genetics? therefore, not enough energy required to detox) and 2. detox pathway issues, mostly liver. I found this out for sure, the hard way, after trying to do IV silver treatments. So complex. Getting really really tired. Lots of healing hugs to you. LOVE your blog. Thank you for sharing. Getting ready to order some ceralyte 70.

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Christina
3/10/2020 12:43:44 am

I’m so sorry you too had a less than stellar experience with ACT! Your theories about why it might not have worked is so interesting! It could certainly be those components that are working against it.
Thank you for your nice compliments too! :)
-Christina

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Maz link
1/16/2021 10:51:26 pm

Hi I'm the same with silver. I tried to put 2 drops of a good make in my ears on my skin not inside and herxed for 2 days I was bedridden in pain.

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Scott
3/23/2020 05:57:24 pm

Hi Christina - Can you tell me approximately how much ACT costs? My 15yr daughter as Lyme and PANDA and we cant seem to find help.

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Jamie
5/7/2020 07:33:51 am

Scott,

Advanced Cell Training cost $60 per week. Unfortunately, Gary the founder had to close temporarily due to illness. He is on the mend & revamping his program by training others in this technique. Please visit Lyme Free on facebook to ask any questions (this is an ACT community group), soon there will be other practioners that will be able to help your daughter. Wishing your daughter a full recovery.

-Jamie

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Maz link
1/16/2021 10:54:14 pm

So was Gary ill? Doesn't he do the codes and heal.

Todd
8/22/2021 04:26:20 pm

@Maz the codes are for particular issues. Gary hadn't ever had cancer before or even tried to treat people with cancer before. After his experience he now has new codes for cancer and has opened up his technique for all to learn.

Tara Adams
7/20/2021 12:40:00 am

I like to have this work done and I am disabled to some degree reaching and grasping at straws for help please get back to me 509 381 9971 Tara

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joyce
10/14/2021 04:20:51 pm

So if Gary didn’t have whatever a person has how does he have the codes? This doesn’t make sense that he has cancer if he’s helping people with various issues.

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Salvatore
8/4/2022 07:02:11 am

Thanks for writing this blog. Hope you’re doing well have you found any other therapies that helped you better? I’m only on my second code for lyme and I’m herxing probably the worst I’ve ever herxed. Its like my immune system and nervous system is on overdrive I couldn’t even sleep a wink. I’m wondering if Thymosin alpha 1 peptide would help modulate the immune response during these herxes? I remember trying it when Covid first hit me and it worked well but never tried it to bounce back from a severe herx. Anyone else tried this when they’re hurting? This is what happens to me every time I try and go after the pathogens. I almost feel like it’s better not to go after them and just work on the bodies terrain and keep your mitochondria working optimally🤷‍♂️. I try these different therapies bc i never get to a point where i feel 100% or even close its so frustrating it’s like I’m stuck in this hell!! I was also in really bad shape before I started act so now after reading all this I don’t know if I want to continue I’m hoping if I stop and focus on detox and mitochondria it will go away

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Maria
8/5/2022 01:34:31 pm

Hi Salvatore. I think some treatments are a bit strong like biophoton and bio magnetic therapy, code stuff too, which seemed odd to me. I’m wondering where you get the Thymosin Alpha 1. I think that is an ingredient in a Hep B medication. Thanks 😊

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Dustin Leclair link
12/14/2022 02:23:48 am

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Amy Hardwick link
7/3/2024 12:12:03 am

I was referred to ACT in 2010 and always did individual treatment. I had to change things, like the music, to help the process work with me. I had a very sensitive friend with lyme not do well on it, but she wasn't open to making it work for her. I have often had to adjust treatments to help me. ACT has helped me sooooo much, but there are many interventions I do that I believe work in conjuction to allow them to work well. I am grateful to have access to the code to help my clients with it now and I am doing all the other interventions I do along with it which is why I think people do better. I have always thought that certain people shouldn't do group things because they need treatment taliored to them. Someone who works with lyme alot recently said they hadn't had people have results with ACT and afterwards I thought I bet they were doing group sessions. I honestly think people should do individual, but Gary tried to make it more accessible to people struggling financially and if they did it individually along with other interventions they would have gotten better. Energy work to clear and deeper emotional work, along with making sure detox pathways are open would be the way to go. I had never used it for tick born illness with myself until 2023 and I cleared Lyme and rocky mountain spotted fever with it. Everything starts from trauma, EVERYTHING. Candice Pert proved that scientifically finally so not understanding that you have to deal with emotions to heal physically is a problem and also why most people don't heal. Cancer comes back if you don't deal with why it manifested in the first place. Gary learned that first hand, that cancer is an emotionally driven disease. I tease him that I told him that in 2010, but most people have to learn through experience. I have had ACT codes for emotional issues work very well, but the best work is body centered regression trauma work. You have to go at things from many directions. The music they used to use, I could never use and it triggered my sensitive friend as well so I am wondering if that was different and you did emotional work that things could have been different for you/ Again it's why I think it's better to do individual work with ACT and not group work.

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