Since there is no standard cure for Lyme disease (and so much debate on the terms of it), this means no 2 doctors will treat the same way for it. Every patient is doing something different with the same goal in mind: kill the Lyme.
As time moves on many doctors are slowly understanding the ins & outs of Lyme a bit more. This bacteria is so smart, so evasive of the immune system, and causes total body destruction. However, we still don't have an effective guaranteed way to rid the body of it. It's trial & error, until something sticks. Treatment is long because you have to do & try a lot while you piece the puzzle together. Just recently new research showed that the Lyme bacterium uses Manganese for fuel (most bacteria use iron). This was groundbreaking because going forward we know the Lyme must be starved of manganese to die. It can be a lead toward a cure.
More and more research is done constantly and I am like a sponge. I dedicate every free moment to researching & reading everything I possibly can. I constantly ask questions, I love talking to people in remission & learning from them. My inspiration has been Katina Makris, her book about healing Lyme was the first thing I read after being diagnosed, and she has helped keep my hope alive.
You have got to be obsessed with getting better. It can't be 3rd or 4th priority. You can't just take what a doctor tells you & do it like a zombie, you need to understand your treatment plan and be involved. Always ask your doctor questions, don't be afraid to ask him to run a test you researched, and fire him/her if something feels wrong. Remember, if you are educated to the highest degree possible, you follow your gut, and dedicate your heart to healing, you will get better.
I try to make this blog as informative as I know possible. As I get information, I will try it out & if I see results I love to share. I think as a community of people in the same boat we owe it to each other. And most importantly we owe it to be open minded.
I've gotten a lot of criticism from people because I'm not doing long term high dose antibiotics. That is a personal choice that I won't ever force on anyone. No one has to do what I'm doing for treatment, but if it works & I see myself improving I will certainly toot it's horn & say how great it is. On the flip side I don't judge anyone for wanting to do long term antibiotics because I believe for some people that's what is right, and if they get their lives back I am thrilled. We MUST support each other in this fight. At the end of the day we all want the same things: CDC recognition & a cure.
As new research comes out from doctors now who treat Lyme by treating immune system dysfunction, go for a total body approach, I see the Lyme community start to get a bit of a division. It saddens me that instead being open minded so many are tearing each other down, or even the Doctors down who did the research/treat patients like that. I just want to say that is not conducive to anyone or anything. It's so so important to always read up & analyze every different point of view & bottle that information up. Even if it offends you now or you don't agree with it, you never know if in the future it could be applied.
Long story short: be as informed as possible. Understand all your options. And always love & support your fellow Lyme warriors. I won't stop until there is a cure.